The Relationships Among Chronicity Impact, Coping Strategies, and the Care Giver Role of Parents Whose Child Has End Stage Renal Disease PDF Download

Author: Diane Bowman Diedrich
Publisher:
ISBN:
Category :
Languages : en
Pages : 194

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Book Description

Author: Mark Hardy
Publisher: Psychology Press
ISBN: 9781560241492
Category : Chronic renal failure
Languages : en
Pages : 240

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Book Description
This thoughtful new book presents strategies for helping end-stage renal disease patients and their families deal with the psychosocial aspects of the chronic long-term illness. Technological advances in the treatment of this disease have offered much hope for improved quality in living which has led caregivers to have a greater concern for preserving the quality of life of their patients. In Psychosocial Aspects of End-Stage Renal Disease leaders in the field of many disciplines share knowledge and reveal problems that are still evident to them in the confrontation with this potentially fatal illness. Five comprehensive sections devote special attention to the different areas of concern for the psychosocial well-being of end-stage renal disease patients. The impact of renal disease on family relationships is covered by examining issues of family responses and coping measures such as marital and family reactions to home and hospital dialysis treatment. Ethical issues in treatment are explored, including the ethics of treatment refusal and a Jewish perspective on kidney transplants. Relations between staff and patients and a timely section on renal disease and special populations, particularly the elderly and AIDS patients, make up the final two sections of this informative volume. Professionals in all allied health disciplines will benefit from this important volume as it demonstrates a model approach, if not the definitive one, for the treatment of the psychosocial aspects of end-stage renal disease as well as other chronic illnesses.

Author: T. A. Lamke
Publisher:
ISBN:
Category : Dissertations, Academic
Languages : en
Pages : 480

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Book Description

Author: Ginger L. Welch
Publisher: Springer
ISBN: 3319260332
Category : Social Science
Languages : en
Pages : 238

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Book Description
This interdisciplinary volume offers theoretical, empirical, and practical insights into the strengths of families beset by chronic health issues. Featuring topics that run the lifespan from infancy to late adulthood, its coverage reflects both the diversity of family challenges in long-term illness and the wealth of effective approaches to intervention. The component skills of resilience in life-changing circumstances, from coping and meaning making to balancing care and self-care, are on rich display in a framework for their enhancement in therapy. The book’s expert contributors include tools to aid readers in the learning and teaching of concepts as they model respectful, meaningful research methods and ethical, non-judgmental practice. Among the topics covered: Helping families survive and thrive through the premature birth of an infant. Enhancing coping and resiliency among families of individuals with sickle cell disease. A family science approach to pediatric obesity treatment. Risk and resilience of children and families involved with the foster care system. Strengthening families facing breast cancer: emerging trends and clinical recommendations. The unfolding of unique problems in later life families. With its mix of practical and empirical expertise, Family Resilience and Chronic Illness: Interdisciplinary and Translational Perspectives has much to offer both researchers in the family resilience field and mental health practitioners working with clients with chronic illness.

Author: Tara Sue Brascia
Publisher:
ISBN:
Category : Chronic diseases in children
Languages : en
Pages : 238

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Book Description

Author: Debra P. Hymovich
Publisher:
ISBN:
Category : Family & Relationships
Languages : en
Pages : 356

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Book Description
Provides a model to analyze the impact of chronic illness on the large population, patients and families, who are affected by it. Illustrates a systematic approach for psychosocial assessment and interventions. This text brings together ideas from extensive research and provides a perspective on chronic illness throughout the lifespan. Through case studies and a well researched nursing model, the book provides innovative approaches for the hospital and community-based nurse. Special features include a review of literature specific to chronicity, excellent diagrams and charts to highlight content, and chapters on time, coping, orientation to life, and stressors.

Author: Monica Rae Petroski
Publisher:
ISBN:
Category :
Languages : en
Pages : 176

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Book Description
Parenting is a challenging task that requires meeting both one's own basic needs, as well as the needs of another, more vulnerable human being. Raising a child who is chronically ill typically increases the time and effort required in caretaking children. Given parents of chronically ill children have greater demands and stressors with which to reconcile, these parents likely incorporate various coping strategies into their daily lives in order to remain successful in the various facets of their lives. The present study will investigate specific types of coping strategies utilized among a sample of parents of chronically ill children. Specific coping strategies will be examined, as well as overall use of adaptive and nonproductive strategies. The impact of strategy use on parent stress, depression, and self-efficacy will also be examined. One hundred and forty parents caring for children with a wide range of chronic medical conditions participated in this nationally advertised survey. A variety of both adaptive and maladaptive strategies were used among parents. Further, both adaptive and maladaptive strategies were found to have a relationship with parenting stress, depression, and parenting sense of competence.

Author:
Publisher:
ISBN:
Category : Medicine
Languages : en
Pages : 1304

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Author: Colbie Marie May
Publisher:
ISBN:
Category : Adjustment (Psychology)
Languages : en
Pages : 126

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Book Description
Pediatric chronic pain research regarding familial communication and coping is wide-ranging. Currently, there is a gap in the data for qualitative information that aims to gather a viewpoint from the parent regarding communication of their child’s diagnosis and their coping styles. In addition, there has been a limited amount of research covering both the parent and child perspectives of communication and coping styles. The present study utilizes quantitative and semi-qualitative survey methods from a retrospective viewpoint to better comprehend how communication and coping styles may influence levels of caregiver strain for a parent, as well as feelings of isolation in children with chronic pain. The survey was offered to the U.S. population on Amazon’s Mechanical Turk. A total of 284 non-dyad participants (141 parents of an offspring with chronic pain, and 143 unrelated adults who had chronic pain between the ages of 10 and 17) were recruited. The survey included measures of caregiver strain, quality of life, self-compassion, and feelings of isolation, as well as open-ended questions about communication. The main objectives of this study were to identify predominant coping styles and assess the relationships between coping styles and caregiver strain or feelings of isolation. Specifically, in regard to coping, I hypothesized that self-compassion would result in improvements in well-being and reductions in isolation and caregiver strain. In addition, I hypothesized that greater amounts of self-compassion will lead to decreased levels of caregiver strain and isolation. In respect to the qualitative research, I aimed to identify if the quantitative reports are attuned to the qualitative reports in terms of social support, feelings of isolation, and coping habits. Stepwise linear regression showed that parents with high amounts of caregiver strain were predominantly using venting, behavioral disengagement, substance use, and denial to cope. Stepwise linear regression likewise showed that children with heightened feelings of isolation were primarily using negative coping skills such as isolation, self-blame, behavioral disengagement, while emotional support appeared protective against isolation. Self-compassion was statistically significantly negatively correlated with isolation and caregiver strain; thus, as self-compassion was used more, feelings of isolation and caregiver strain were lessened. The quantitative reports of social support predominantly matched the qualitative reports, indicating that while qualitative reports provide additional information, parents and children are reporting consistently between both methods.

Author: Shayna L. Henry
Publisher:
ISBN: 9781321367461
Category :
Languages : en
Pages : 278

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Book Description
End-stage renal disease is a chronic, terminal condition in which the kidneys retain less than 5% of their normal capacity for filtering wastes and fluids from the bloodstream. Kidney failure represents a significant and costly public health problem, especially for Hispanic patients. While there are no known direct psychosocial causes of kidney failure, sociobehavioral factors play a crucial role in determining the capacity for survival for the end-stage renal disease patient; in addition to taking on dialysis treatment, in which an artificial kidney filters waste products from the body, patients must take dozens of medications and monitor and restrict their diet and fluid intake, resulting in high disease burden, high cognitive demand, and high risk for morbidity and mortality. Additionally, changes in cognitive and psychosocial functioning over the course of the dialytic cycle may be crucial in determining treatment outcomes for these patients. The purpose of the present study was to examine the interrelationships between cognitive functioning, general and disease-specific social support, and the length of the interdialytic interval on adherence to treatment in a sample of patients on hemodialysis. The study was the first to explore these relationships using a sophisticated electronic diary system. Participants included 22 (female n = 11; Mean age 44 years) English- and Spanish-speaking, primarily Hispanic patients being treated for kidney failure at the UC Irvine Medical Center. Overall, levels of social support in this sample were high, and reports of cognitive dysfunction were minimal. Some aspects of social support, particularly diet-related support, were associated with improved adherence to treatment, but in general, support did not substantially influence engagement in behaviors of disease self-management. Additionally, contrary to hypotheses, cognitive functioning was greater over two-day interdialytic intervals than shorter one-day intervals, and was not found to mediate the relationship between length of the interdialytic interval and disease self-management. Likewise, the effect of cognitive functioning on treatment adherence was not buffered by social support. Such findings provide some limited support for an osmotic theory of cognitive dysfunction resulting from hemodialysis, but should interpreted with caution pending recruitment of a larger sample and a higher degree of compliance with the ecological momentary assessment protocol.