Rethinking Experiences Of Childhood Cancer: A Multidisciplinary Approach To Chronic Childhood Illness PDF Download

Author: Dixon-Woods, Mary
Publisher: McGraw-Hill Education (UK)
ISBN: 0335212557
Category : Medical
Languages : en
Pages : 219

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Book Description
Written by a sociologist, psychologist and practising paediatric oncologist, this book offers a fresh theoretical approach to the experience of childhood cancer. The book also discusses the impact on parents and other family members when a child is diagnosed with cancer.

Author: Mary Dixon-Woods
Publisher: McGraw-Hill Education (UK)
ISBN: 0335224865
Category : Medical
Languages : en
Pages : 219

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Book Description
"The experiences of the families rang true throughout. I have experienced many of these personally. ...It made me think differently about my personal experience as a parent of a child with cancer and my son's current social experiences." Macmillan Cancer Support This book offers a radical critique of existing psychosocial research on children’s experiences of cancer and proposes an alternative view informed by recent interpretive perspectives. Exploring topics from obtaining a diagnosis of childhood cancer through to sharing decision-making and communication, it reviews a wide-ranging body of research and theory on childhood, chronic illness, and cancer. The book also examines research that has focused on how parents and other family members experience childhood illness. Written by a sociologist, a psychologist and a practising paediatric oncologist, this book is unique in its approach and provides key reading across traditional disciplinary boundaries. In particular, the book highlights the emerging contribution of interpretive work to understanding chronic childhood illness and further develops the dialogue that has only recently emerged between the sociology of illness and the sociology of childhood. Rethinking Experiences of Childhood Cancer is aimed at researchers, students and practitioners in the fields of social science, childhood studies, nursing, medicine, mental health care, social work, clinical psychology and other professions allied to medicine, and will also be of interest to families who have been affected by childhood cancer.

Author: Grinyer, Anne
Publisher: McGraw-Hill Education (UK)
ISBN: 0335221548
Category : Medical
Languages : en
Pages : 201

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Book Description
This book uses original data gathered from in-depth research to present an account of what it is like to be an adolescent or young adult living with cancer.

Author: Françoise Charnay-Sonnek
Publisher: Springer
ISBN: 3319764578
Category : Medical
Languages : en
Pages : 454

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Book Description
This book provides a unique overview of oncology nursing care in a new health environment, one in which oncology nurses play an increasingly important role. In this regard, it addresses not only the biomedical aspects of new drugs but also the challenges they pose in day-to-day nursing practice. It also highlights the new skills that oncology nurses will need to develop in light of the changing care setting. Drawing on evidence-based practice in Europe and around the globe, the book offers a holistic approach to nursing for adult and pediatric patients. Written by respected professionals in the field, it provides nurses interested in oncology with clear and comprehensive information on the specific abilities required, with a focus on therapeutic education, supportive care, genetic counseling and e-health. In addition, it addresses the new role of patients as decision makers and full partners throughout their treatment cycle.

Author: Gosia M. Brykczynska
Publisher: John Wiley & Sons
ISBN: 1444392042
Category : Medical
Languages : en
Pages : 288

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Book Description
Nurses and healthcare professionals are constantly faced with ethical and philosophical dilemmas when working with children in everyday practice. Ethical and Philosophical Aspects of Nursing Children and Young People is a comprehensive text on the ethics and philosophy behind paediatric nursing that reflects the contemporary issues encountered while working with children and young people. The title provides a philosophical and historical analysis of the subject, looking at a review of sociological and political theories concerning the nature of childhood, and providing a critical analysis of contemporary notions about childhood. It then goes on to look at moral theories and their application to paediatric nursing practice, ethical issues when caring for children of all ages, from infancy to adolescence. It considers issues of disabled children, confidentiality, mental health issues, children's rights, and pain management. With case studies and activities throughout, this book will enable students and newly qualified nurses both to understand philosophical concepts and issues but also to articulate their own reflections and observations on these subjects. Written by children's nurses for children's nurses With contributions from internationally recognised experts in the field Reflective scenarios, further reading, extensive referencing, case studies, guided questions, and resources throughout Includes appendices on the RCPCH Guidelines on Withdrawal of Treatment, the ICN Ethical Code, the Summary of the UNCRC, and the RCPCH Guidelines for the Conduct of Ethical Research

Author: Cynthia Comacchio
Publisher: McGill-Queen's Press - MQUP
ISBN: 0773574581
Category : Art
Languages : en
Pages : 324

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Book Description
In 1990, the UN Convention on the Rights of the Child declared that children's "survival, protection, growth and development in good health and with proper nutrition is the essential foundation of human development." Drawing from many disciplines - history, anthropology, demography, art history, disability studies, and sociology - and across a broad geography, Healing the World's Children sheds light on the medical, political, and cultural dimensions of the efforts to preserve and protect the lives of our most vulnerable citizens.

Author: Mimi Mahon
Publisher: Elsevier Health Sciences
ISBN: 1455700460
Category : Medical
Languages : en
Pages : 186

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Book Description
This issue of Nursing Clinics, Guest Edited by Mimi Mahon, features subject topics such as: Understanding Children's Involvment in Medical Decision Making; Symptom Management at End of Life; Assessing respiratory distress when the patient can’t self-report; Barriers to Palliative Care, Legislative Issues; End Stage Liver Disease: Symptoms & Practice Implications; Dying children: Creating opportunities out of a “Last Chance ; Decision making in palliative care; Discussing a family member's serious illness: children's and families' perspectives; Living with cognitive impairments in Long Term Care: Palliative Care & End of Life implications; Withdrawal of Life-Sustaining Therapy; The patient and family perspectives: Living with cancer; Palliative care concepts in the sickle cell population.

Author: Ignasi Clemente
Publisher: John Wiley & Sons
ISBN: 1118909712
Category : Language Arts & Disciplines
Languages : en
Pages : 244

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Book Description
This book examines children and young people’s attempts to participate in conversations about their own treatment throughout uncertain cancer trajectories, including the events leading up to diagnosis, treatment, remission, relapse, and cure or death. Clearly and compellingly written, Clemente relies on a new multi-layered method to identify six cancer communication strategies Illustrates that communication is central to how children, parents, and healthcare professionals constitute, influence, and make sense of the social worlds they inhabit—or that they want to inhabit Provides ethnographic case studies of childhood cancer patients in Spain, using children's own words Examines the challenges of how to talk to and how to encourage patients' involvement in reatment discussions In his critique of the “telling” versus “not telling” debates, Clemente argues that communication should be adjusted to the children’s own needs, and that children's own questions can indicate how much or little they want to be involved Uncertain Futures is the winner of the 15th Annual Modest Reixach Prize.

Author: Daniel Kelly
Publisher: John Wiley & Sons
ISBN: 0470698012
Category : Medical
Languages : en
Pages : 272

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Book Description
Cancer in Adolescents and Young Adults is a practical guide to cancer care in adolescents and young adults. It considers the impact of diagnosis on individuals, and their families, as well as examining the impact on the health professionals responsible for their care. There are sections focussing on the adolescent’s experience of cancer and ongoing care needs during treatment, and on life after cancer, including rehabilitation and palliative care. • Builds on the forthcoming NICE guidelines on Supportive Cancer Care for Children & Young People, and recent Department of Health guidelines & policy initiatives • Adopts an integrated inter-professional approach • Contains evidence-based contributions from leading professionals in cancer care Cancer in Adolescents and Young Adults is an essential resource for all those involved with the provision of care and support for adolescents and young adults with cancer. About the Editors: Dr Daniel Kelly is Reader in Cancer & Palliative Care, Middlesex University, London. Dr Faith Gibson is Senior Lecturer in Children’s Nursing Research, Institute of Child Health, Great Ormond Street Hospital and King’s College London.

Author: Richard Hain
Publisher: Oxford University Press
ISBN: 0192554549
Category : Medical
Languages : en
Pages : 1269

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Book Description
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.