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Author: Joan Sutton Publisher: iUniverse ISBN: 149173163X Category : Family & Relationships Languages : en Pages : 140
Book Description
One who Forgets and One who is Forgotten One in eight over the age of sixty-five and one in three over the age of eighty will be diagnosed with Alzheimers Disease. In her memoir, author Joan Sutton narrates a moving account of her years as caregiver to her husband, noting that Alzheimers is a disease of the brain that is paid for with the currency of the heart. A member of the board of overseers of The Alzheimers Drug Discovery Foundation, she stresses the need to develop more effective treatment for the five million Americans currently diagnosed with this incurable disease, pointing out that for every patient there is a large circle of others also affected. Sutton offers practical advice for the care of the caregiver and the patient, and shares the pain that came as she watched pieces of her husbands self disappear. Following his death, after what Nancy Reagan described as the long goodbye, she writes candidly about coping with her new status as a widow and the aching loneliness of the heart that is the price paid for having known a great love. 100% of the authors royalties (20 to 40% of the purchase price) will benefit the Alzheimers Drug Discovery Foundation/Canada. Cover design by John R. Lewis
Author: Joan Sutton Publisher: iUniverse ISBN: 149173163X Category : Family & Relationships Languages : en Pages : 140
Book Description
One who Forgets and One who is Forgotten One in eight over the age of sixty-five and one in three over the age of eighty will be diagnosed with Alzheimers Disease. In her memoir, author Joan Sutton narrates a moving account of her years as caregiver to her husband, noting that Alzheimers is a disease of the brain that is paid for with the currency of the heart. A member of the board of overseers of The Alzheimers Drug Discovery Foundation, she stresses the need to develop more effective treatment for the five million Americans currently diagnosed with this incurable disease, pointing out that for every patient there is a large circle of others also affected. Sutton offers practical advice for the care of the caregiver and the patient, and shares the pain that came as she watched pieces of her husbands self disappear. Following his death, after what Nancy Reagan described as the long goodbye, she writes candidly about coping with her new status as a widow and the aching loneliness of the heart that is the price paid for having known a great love. 100% of the authors royalties (20 to 40% of the purchase price) will benefit the Alzheimers Drug Discovery Foundation/Canada. Cover design by John R. Lewis
Author: Kate Whouley Publisher: Beacon Press ISBN: 0807003204 Category : Health & Fitness Languages : en Pages : 241
Book Description
From the author of the much-loved memoir Cottage for Sale, Must Be Moved comes an engaging and inspiring account of a daughter who must face her mother’s premature decline. In Remembering the Music, Forgetting the Words, Kate Whouley strips away the romantic veneer of mother-daughter love to bare the toothed and tough reality of caring for a parent who is slowly losing her mind. Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom. As her mother, Anne, falls into forgetting, Kate remembers for her. In Anne we meet a strong-minded, accidental feminist with a weakness for unreliable men. The first woman to apply for—and win—a department-head position in her school system, Anne was an innovative educator who poured her passion into her work. House-proud too, she made certain her Hummel figurines were dusted and arranged just so. But as her memory falters, so does her housekeeping. Surrounded by stacks of dirty dishes, piles of laundry, and months of unopened mail, Anne needs Kate’s help—but she doesn’t want to relinquish her hard-won independence any more than she wants to give up smoking. Time and time again, Kate must balance Anne’s often nonsensical demands with what she believes are the best decisions for her mother’s comfort and safety. This is familiar territory for anyone who has had to help a loved one in decline, but Kate finds new and different ways to approach her mother and her forgetting. Shuddering under the weight of accumulating bills and her mother’s frustrating, circular arguments, Kate realizes she must push past difficult family history to find compassion, empathy, and good humor. When the memories, the names, and then the words begin to fade, it is the music that matters most to Kate’s mother. Holding hands after a concert, a flute case slung over Kate’s shoulder, and a shared joke between them, their relationship is healed—even in the face of a dreaded and deadly diagnosis. “Memory,” Kate Whouley writes, “is overrated.”
Author: Candace Minor Comstock Publisher: ISBN: 9781463730819 Category : Alzheimer's disease Languages : en Pages : 0
Book Description
"Throughout the book, Comstock returns to the theme of community, giving credit and gratitude to the friends and family members who helped with her mom's care and supported Comstock through the process, and these are among the memoir's strongest moments... [It is] an affectionate portrait of a damaged but enduring family that has suffered a profound loss but continues to adapt, survive and move forward." --Kirkus Reviews Remember Joan is the account of a daughter beside her mother as they face a life disrupted by Alzheimer's disease. The book opens with a wedding and closes with a funeral. Embedded between these two ceremonial rituals are two tales, a story of the mother's decline and death due to Alzheimer's and a story of the author's relationships and life as the daughter of Joan. Humor is the family's favorite coping strategy when damage control is necessary. In the end, this book is not only a tribute to Joan's life, but a tribute to all who try to create a celebrated life with the people that surround them.
Author: Gerda Saunders Publisher: Hachette Books ISBN: 0316502634 Category : Family & Relationships Languages : en Pages : 271
Book Description
A "courageous and singular book" (Andrew Solomon), Memory's Last Breath is an unsparing, beautifully written memoir -- "an intimate, revealing account of living with dementia" (Shelf Awareness). Based on the "field notes" she keeps in her journal, Memory's Last Breath is Gerda Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders, a former university professor, nonetheless embarks on a personal investigation of the brain and its mysteries, examining science and literature, and immersing herself in vivid memories of her childhood in South Africa. "For anyone facing dementia, [Saunders'] words are truly enlightening . . . Inspiring lessons about living and thriving with dementia." -- Maria Shriver, NBC's Today Show
Author: Jason Karlawish Publisher: St. Martin's Press ISBN: 1250218748 Category : Health & Fitness Languages : en Pages : 269
Book Description
A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Author: Amy Bloom Publisher: Random House ISBN: 0593243943 Category : Biography & Autobiography Languages : en Pages : 241
Book Description
NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.
Author: Stefan Merrill Block Publisher: Random House ISBN: 1588366855 Category : Fiction Languages : en Pages : 322
Book Description
In Stefan Merrill Block’s extraordinary debut, three narratives intertwine to create a story that is by turns funny, smart, introspective, and revelatory. Abel Haggard is an elderly hunchback who haunts the remnants of his family’s farm in the encroaching shadow of the Dallas suburbs, adrift in recollections of those he loved and lost long ago. As a young man, he believed himself to be “the one person too many”; now he is all that remains. Hundreds of miles to the south, in Austin, Seth Waller is a teenage “Master of Nothingness”–a prime specimen of that gangly, pimple-rashed, too-smart breed of adolescent that vanishes in a puff of sarcasm at the slightest threat of human contact. When his mother is diagnosed with a rare form of early-onset Alzheimer’s, Seth sets out on a quest to find her lost relatives and to conduct an “empirical investigation” that will uncover the truth of her genetic history. Though neither knows of the other’s existence, Abel and Seth are linked by a dual legacy: the disease that destroys the memories of those they love, and the story of Isidora–an edenic fantasy world free from the sorrows of remembrance, a land without memory where nothing is ever possessed, so nothing can be lost. Through the fusion of myth, science, and storytelling, this novel offers a dazzling illumination of the hard-learned truth that only through the loss of what we consider precious can we understand the value of what remains.
Author: Cynthia R. Green Publisher: Johns Hopkins University Press ISBN: 1421436469 Category : Health & Fitness Languages : en Pages : 128
Book Description
A collection of easy-to-follow activities, organized by seasons of the year, to help family members and caregivers engage with memory-challenged adults. Dementia and related disorders impact the lives of those affected in countless ways, making it difficult to remain independent at work, at home, and in the wider world. But recent studies have shown that structured activities can make a significant, positive difference by stimulating mental engagement while improving interactions between caregivers and memory-challenged adults. Fun and easy to use, this large-format, full-color picture book is divided into themes representing the four seasons. Each section describes several multisensory experiences—such as walking on the beach, making ice cream, or planting flowers—along with related topics for discussion and activities to elicit memories and encourage new positive associations. The topics and activities incorporate all five senses to facilitate connections and conversations. The book adopts a compassionate, person-centered approach and is designed so that two people can easily look together while sitting side by side. This latest edition, which has been thoroughly revised, • takes a multicultural approach • includes all-new images, as well as 14 completely new highlighted activities • integrates modern wellness concepts • features a new introduction and an updated resource section • offers guidance about activity planning and optimizing interactions between care partners and the individual with dementia Helping you and your loved one make cherished new memories, Through the Seasons is an indispensable solution to the question of what to do together to maintain well-being and connection.
Author: Steven R. Sabat Publisher: Oxford University Press ISBN: 0190603135 Category : Medical Languages : en Pages : 273
Book Description
Alzheimer's is swiftly on the rise: it is estimated that every 67 seconds, someone develops the disease. For many, the words "Alzheimer's disease" or "dementia" immediately denote severe mental loss and, perhaps, madness. Indeed, the vast majority of media coverage of Alzheimer's disease (AD) and other types of dementia focuses primarily on the losses experienced by people diagnosed and the terrible burden felt by care partners yearning for a "magic bullet" drug cure. Providing an accessible, question-and-answer-format primer on what touches so many lives, and yet so few of us understand, Alzheimer's Disease and Dementia: What Everyone Needs to Know® contributes what is urgently missing from public knowledge: unsparing investigation of their causes and manifestations, and focus on the strengths possessed by people diagnosed. Steven R. Sabat mines a large body of research to convey the genetic and biological aspects of Alzheimer's disease, its clinical history, and, most significantly, to reveal the subjective experience of those with Alzheimer's or dementia. By clarifying the terms surrounding dementia and Alzheimer's, which are two distinct conditions, Sabat corrects dangerous misconceptions that plague our understanding of memory dysfunction and many other significant abilities that people with AD and dementia possess even in the moderate to severe stages. People diagnosed with AD retain awareness, thinking ability, and sense of self; crucially, Sabat demonstrates that there are ways to facilitate communication even when the person with AD has great difficulty finding the words he or she wants to use. From years spent exploring and observing the points of view and experiences of people diagnosed, Sabat strives to inform as well as to remind readers of the respect and empathy owed to those diagnosed and living with dementia. Alzheimer's Disease and Dementia conveys this type of information and more, which, when applied by family and professional caregivers, will help improve the quality of life of those diagnosed as well as of those who provide support and care.
Author: John Dunlop, MD Publisher: Crossway ISBN: 1433552124 Category : Religion Languages : en Pages : 194
Book Description
There Is Hope . . . When a patient is diagnosed with dementia, it impacts not only the patient but also those who care for them. It can be devastating to watch loved ones lose the independence, personality, and abilities that once defined them, knowing there is no cure. How should Christians respond to a diagnosis of dementia? Experienced geriatrician Dr. John Dunlop wants to transform the way we view dementia—showing us how God can be honored through such a tragedy as we respect the inherent dignity of all humans made in the image of God. Sharing stories from decades of experience with dementia patients, Dunlop provides readers, particularly caregivers, with a biblical lens through which to understand the experience and challenge of this life-altering disease. Finding Grace in the Face of Dementia will help you see God's purposes as you love and care for those with dementia.
Author: Joan Sutton
Author: Joan Sutton
Author: Kate Whouley
Author: Candace Minor Comstock
Author: Gerda Saunders
Author: Jason Karlawish
Author: Amy Bloom
Author: Stefan Merrill Block
Author: Cynthia R. Green
Author: Steven R. Sabat
Author: John Dunlop, MD