Author: David M. Orenstein
Publisher: Lippincott Williams & Wilkins
ISBN: 1451154380
Category : Medical
Languages : en
Pages : 788
Book Description
This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Cystic Fibrosis
Liver Disease in Children
Author: Frederick J. Suchy
Publisher: Cambridge University Press
ISBN: 1108911374
Category : Medical
Languages : en
Pages : 875
Book Description
Liver disease in children is increasing in prevalence, placing a huge burden on healthcare systems and often requiring long-term management. Offering an integrative approach to the science and clinical practice of pediatric hepatology, this is the definitive reference text for improved diagnosis and treatment strategies. In the new edition of this authoritative text, chapters have been thoroughly revised in line with major advances in the field, such as recognizing the increased frequency of fatty liver disease, and how genetic testing has the potential to establish earlier diagnoses for a variety of diseases. Disorders covered include cholestasis, metabolic disorders and hepatitis, with their presentation across the spectrum of infancy, childhood and adolescence discussed. The indications and surgical aspects of liver transplant are explained and post-transplant care is described in detail. This is a valuable resource for pediatricians, hepatologists, gastroenterologists and all clinicians involved in the care of children with liver diseases.
Publisher: Cambridge University Press
ISBN: 1108911374
Category : Medical
Languages : en
Pages : 875
Book Description
Liver disease in children is increasing in prevalence, placing a huge burden on healthcare systems and often requiring long-term management. Offering an integrative approach to the science and clinical practice of pediatric hepatology, this is the definitive reference text for improved diagnosis and treatment strategies. In the new edition of this authoritative text, chapters have been thoroughly revised in line with major advances in the field, such as recognizing the increased frequency of fatty liver disease, and how genetic testing has the potential to establish earlier diagnoses for a variety of diseases. Disorders covered include cholestasis, metabolic disorders and hepatitis, with their presentation across the spectrum of infancy, childhood and adolescence discussed. The indications and surgical aspects of liver transplant are explained and post-transplant care is described in detail. This is a valuable resource for pediatricians, hepatologists, gastroenterologists and all clinicians involved in the care of children with liver diseases.
Cystic Fibrosis
Author: David M. Orenstein
Publisher: Lippincott Williams & Wilkins
ISBN: 9780781741521
Category : Medical
Languages : en
Pages : 504
Book Description
Explains the how and why behind the disease process, outlines the fundamentals of diagnosis and screening, and addresses the challenges of treatment for those living with CF.
Publisher: Lippincott Williams & Wilkins
ISBN: 9780781741521
Category : Medical
Languages : en
Pages : 504
Book Description
Explains the how and why behind the disease process, outlines the fundamentals of diagnosis and screening, and addresses the challenges of treatment for those living with CF.
Alex
Author: Frank Deford
Publisher: Open Road Media
ISBN: 1504007336
Category : Biography & Autobiography
Languages : en
Pages : 115
Book Description
A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.
Publisher: Open Road Media
ISBN: 1504007336
Category : Biography & Autobiography
Languages : en
Pages : 115
Book Description
A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.
A Parent's Guide to Cystic Fibrosis
Author: Burton L. Shapiro
Publisher: U of Minnesota Press
ISBN: 9781452902449
Category : Children
Languages : en
Pages : 156
Book Description
Publisher: U of Minnesota Press
ISBN: 9781452902449
Category : Children
Languages : en
Pages : 156
Book Description
This Child Has Cystic Fibrosis
Author: Cystic Fibrosis Association of NSW.
Publisher:
ISBN:
Category : Cystic fibrosis
Languages : en
Pages : 0
Book Description
Publisher:
ISBN:
Category : Cystic fibrosis
Languages : en
Pages : 0
Book Description
Cystic Fibrosis, a Plea for a Future
Author: Cystic Fibrosis Foundation
Publisher:
ISBN:
Category : Cystic fibrosis
Languages : en
Pages : 90
Book Description
Publisher:
ISBN:
Category : Cystic fibrosis
Languages : en
Pages : 90
Book Description
Family Nursing
Author: Dorothy A. Whyte
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 250
Book Description
This publication is the outcome of several years' work on families caring for a child with cystic fibrosis (CF). Four case studies provide a portrayal of the efforts of parents to come to terms with the diagnosis and its implications, and trace the crisis points in the long haul of the illness.
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 250
Book Description
This publication is the outcome of several years' work on families caring for a child with cystic fibrosis (CF). Four case studies provide a portrayal of the efforts of parents to come to terms with the diagnosis and its implications, and trace the crisis points in the long haul of the illness.
Our Child Has Cystic Fibrosis
Author: Carla Woyak
Publisher:
ISBN:
Category : Children with disabilities
Languages : en
Pages : 71
Book Description
Publisher:
ISBN:
Category : Children with disabilities
Languages : en
Pages : 71
Book Description
Taking Cystic Fibrosis to School
Author: Cynthia S. Henry
Publisher: Jayjo Books
ISBN: 9781891383090
Category : Cystic fibrosis in children
Languages : en
Pages : 0
Book Description
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Publisher: Jayjo Books
ISBN: 9781891383090
Category : Cystic fibrosis in children
Languages : en
Pages : 0
Book Description
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.