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Author: Alexis Quinn Publisher: ISBN: 9781801292368 Category : Languages : en Pages : 200
Book Description
After being wrongly diagnosed following her brother's death, Alexis struggled with care for several years before escaping to Africa. She shares the story of her experience in order to promote neurodiversity and end stigma surrounding mental health.
Author: Amy Mattson Publisher: ISBN: 9780578480220 Category : Languages : en Pages : 222
Book Description
When a child is diagnosed with a disability or special needs, parents can feel lost not knowing what to do next. Doctors will tell you what your child needs medically, but no one tells you what to expect emotionally as a special needs parent. "Beyond the Diagnosis" will help parents know what to expect and how to thrive as a special needs family.
Author: Steven Pantilat Publisher: Da Capo Lifelong Books ISBN: 0738219541 Category : Medical Languages : en Pages : 227
Book Description
A renowned expert in palliative care, who is featured in the Netflix documentary, End Game, Dr. Pantilat delivers a compassionate and sensitive guide to living well with serious illness. In Life After the Diagnosis, Dr. Steven Z. Pantilat, a renowned international expert in palliative care demystifies the medical system for patients and their families. He makes sense of what doctors say, what they actually mean, and how to get the best information to help make the best medical decisions. Dr. Pantilat covers everything from the first steps after the diagnosis and finding the right caregiving and support, to planning your future so your loved ones don't have to. He offers advice on how to tackle the most difficult treatment decisions and discussions and shows readers how to choose treatments that help more than they hurt, stay consistent with their values and personal goals, and live as well as possible for as long as possible.
Author: Reverend Thomas Lynch Publisher: Createspace Independent Publishing Platform ISBN: 9781981230457 Category : Languages : en Pages : 386
Book Description
Regardless of our age or status, any one of us could be faced with a diagnosis - it might be a curable sickness or a chronic disease, a serious condition or a terminal illness. In the 21st century, dying is, more often than not, an elongated process that may stretch out for many years. And since all of us will, eventually, die, the question is, how do we live well while dying? How can we avoid being bullied by the obsessive inner voices of anxiety and fear that leave us self-absorbed and disconnected from the very life we hope to save? In this book, we'll share a rare slice of heaven that can be grasped on this side of the grave, at any point along the path of living and dying. A place beyond acceptance. A place of transformation in which we can realize, in the fullest, purest way, what our life's purpose has been, and what an amazing gift we can entrust to those we'll leave behind. We can learn to embrace mystery, to understand that our suffering can be transformative. Our legacy can become one of love - pure, powerful, and eternal. It's never too early to embark on this work of living and loving that begins and ends with God. Healing work that deepens faith and enriches relationships, inspires open, honest, and loving conversations, and frees us from the burdens of our ego selves. As inspirational as it is practical, this book is intended for patients and caregivers, friends and family - anyone struggling to live life wholly and joyfully during the challenges of sickness, dying, and death.
Author: Alexis Quinn Publisher: ISBN: 9781801292368 Category : Languages : en Pages : 200
Book Description
After being wrongly diagnosed following her brother's death, Alexis struggled with care for several years before escaping to Africa. She shares the story of her experience in order to promote neurodiversity and end stigma surrounding mental health.
Author: Steven C. Hayes Publisher: New Harbinger Publications ISBN: 1684036631 Category : Psychology Languages : en Pages : 273
Book Description
As a mental health clinician, you know that every client is unique, and a client’s symptoms are the result of a complex combination of psychological, environmental, genetic, and neural factors. However, the de facto DSM model poses considerable constraints on how you can treat clients—often resulting in a one-size-fits-all diagnosis. This important volume challenges the assumptions and approach made by the DSM, and provides a vision and plan for an evidence-based, process-based approach to individualized care. With contributions from renowned experts in the field—including Steven C. Hayes, Stefan G. Hofmann, Joseph Ciarrochi, Matthew McKay, Uma Vaidyanathan, Sarah Morris, David Sommers, J. Scott Fraser, and many more—this groundbreaking book will show you a new way to recognize the complexity of human suffering and human prosperity. You’ll find solid tips for treating a wide variety of psychological issues in a more flexible way. And, finally, you’ll come away with a greater understanding of the “processes of change,” and how to build a solid foundation for an alternative to syndromal diagnosis. The future of mental health treatment is process-based. Whether you’re a clinician, researcher, student, instructor, or other professional working in the mental health field, this breakthrough volume offers everything you need to understand process-based treatment and create a more customized and effective approach to treating clients.
Author: Kate Swaffer Publisher: ISBN: 9781849056083 Category : Alzheimer's disease Languages : en Pages : 392
Book Description
Drawing on her own experiences, Kate Swaffer explores the daily challenges faced by those diagnosed with young onset dementia. Challenging the notion of 'prescribed disengagement', Kate offers a fresh perspective on how to live beyond dementia, and how family, friends and dementia care professionals can support people post diagnosis.
Author: David Fajgenbaum Publisher: Ballantine Books ISBN: 1524799629 Category : Biography & Autobiography Languages : en Pages : 256
Book Description
LOS ANGELES TIMES AND PUBLISHERS WEEKLY BESTSELLER • The powerful memoir of a young doctor and former college athlete diagnosed with a rare disease who spearheaded the search for a cure—and became a champion for a new approach to medical research. “A wonderful and moving chronicle of a doctor’s relentless pursuit, this book serves both patients and physicians in demystifying the science that lies behind medicine.”—Siddhartha Mukherjee, New York Times bestselling author of The Emperor of All Maladies and The Gene David Fajgenbaum, a former Georgetown quarterback, was nicknamed the Beast in medical school, where he was also known for his unmatched mental stamina. But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime. Miraculously, Fajgenbaum survived—only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself. More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide. Praise for Chasing My Cure “A page-turning chronicle of living, nearly dying, and discovering what it really means to be invincible in hope.”—Angela Duckworth, #1 New York Times bestselling author of Grit “[A] remarkable memoir . . . Fajgenbaum writes lucidly and movingly . . . Fajgenbaum’s stirring account of his illness will inspire readers.”—Publishers Weekly
Author: Jessica Stout Publisher: ISBN: 9780986135309 Category : Languages : en Pages : 170
Book Description
Neither Jessica Stout nor her father, Walter Horak, set out to publish this book, both authors wishing foremost and forevermore that there had never been a reason. Yet love for a little boy compelled them. FEEL ME BRAVE began as a blog by Jessica to keep her family and friends abreast of her young son's struggle with an incurable disease. But the power of her prose-unflinchingly honest, piercingly insightful, and on occasion startlingly humorous-settled deeply into the hearts of people following Ryland Stout's journey. Caught up in the same struggle, Walter began to write poetry as he groped for a way to express a grief that tormented his entire family, even as each day brought them closer to that inevitable moment of parting. Over time, the idea took hold to merge the words of father and daughter into unique, shared testimony. And readers urged that it find a wide audience, especially those facing serious life challenges or simply contemplating its difficult mysteries. The result is this remarkable book, a "treasure" in Dr. Ira Byock's estimation. Heartbreaking and uplifting in equal measure, FEEL ME BRAVE invites you to open your own heart and to dwell a while within those deep places that make us all more fully human.
Author: Alexis Quinn
Author: Joseph J. Trunzo
Author: Annette Mulligan
Author: Amy Mattson
Author: Steven Pantilat
Author: Reverend Thomas Lynch
Author: Alexis Quinn
Author: Steven C. Hayes
Author: Kate Swaffer
Author: David Fajgenbaum
Author: Jessica Stout