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Author: Carrey Dewey Publisher: ISBN: 9781941953877 Category : Languages : en Pages :
Book Description
Carrey Dewey and her husband, Eric, worked hard to build their dream life: a strong marriage, three incredible kids, and a beautiful home. It all came crashing down when Carrey was diagnosed at age 42 with amyotrophic lateral sclerosis (ALS) - a disease that had no treatment or cure, a disease that is 100 percent fatal. Her doctor told her, "Get your paperwork in order and go make memories." But Carrey, a smart, courageous, and often very funny woman, was determined to do more - to spend what life she had left advocating for ALS research and educating people about the disease.Kickin' ALS is a compilation of Carrey's personal Facebook posts, written from shortly after her diagnosis in June 2014 until just before her death in May 2018. It is a powerful and poignant chronicle of one woman's experience with the disease made famous through the Ice Bucket Challenge.More than 5,000 people in the United States are diagnosed with ALS each year, according to the ALS Association, and it is estimated that at least 16,000 Americans may be living with ALS at any given time.Proceeds from the sale of this book will be donated to organizations supporting ALS research and education, as well as ALS patients and their families.
Author: Carrey Dewey Publisher: ISBN: 9781941953877 Category : Languages : en Pages :
Book Description
Carrey Dewey and her husband, Eric, worked hard to build their dream life: a strong marriage, three incredible kids, and a beautiful home. It all came crashing down when Carrey was diagnosed at age 42 with amyotrophic lateral sclerosis (ALS) - a disease that had no treatment or cure, a disease that is 100 percent fatal. Her doctor told her, "Get your paperwork in order and go make memories." But Carrey, a smart, courageous, and often very funny woman, was determined to do more - to spend what life she had left advocating for ALS research and educating people about the disease.Kickin' ALS is a compilation of Carrey's personal Facebook posts, written from shortly after her diagnosis in June 2014 until just before her death in May 2018. It is a powerful and poignant chronicle of one woman's experience with the disease made famous through the Ice Bucket Challenge.More than 5,000 people in the United States are diagnosed with ALS each year, according to the ALS Association, and it is estimated that at least 16,000 Americans may be living with ALS at any given time.Proceeds from the sale of this book will be donated to organizations supporting ALS research and education, as well as ALS patients and their families.
Author: Steve Gleason Publisher: Knopf ISBN: 0593536827 Category : Biography & Autobiography Languages : en Pages : 313
Book Description
From NFL player Steve Gleason, a powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face of ALS In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that takes away the ability to move, talk, and breathe. Doctors gave him three years to live. He was thirty-three years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced. Writing using eye-tracking technology, Gleason covers his pre-ALS life through the highs and lows of his NFL career with the New Orleans Saints, where he made one of the most memorable plays in Saints history, leading to a victory in the first post-Katrina home game, uplifting the city, making him a hero, and reflected in a nine-foot bronze statue outside the Superdome. Then came his heartbreaking diagnosis. Gleason lost all muscle function, he now uses Stephen Hawking-like technology to communicate, and breathes with the help of a ventilator. This book captures Gleason and his wife Michel’s unmatched resilience as they reinvent their lives, refuse to succumb to despair, and face his disease realistically and existentially. This unsparing portrait argues that a person's true strength does not reside solely in one’s body but also in the ability to face unfathomable adversity and still be able to love and treasure life.
Author: Barbara Victoria Publisher: iUniverse ISBN: 1532059574 Category : Family & Relationships Languages : en Pages : 90
Book Description
When a hospice nurse explained the physical and emotional benchmarks in the end stages of life that my mother-in-law would experience after her cancer metastasized, a light went on in my head. I had been schooled in the physical and emotional phases of birth with Lamaze; dying is the journey at the other end of life! Both are wrought on sacred ground, accompanied by pain and awe and the unexpected. And both can reveal true miracles that cannot be foreseen unless we get out of the way and allow the process to reveal itself. Fifteen years later—eleven as a hospice volunteer and four on an interdisciplinary team—I appreciate the practical factors, financial and physical, of hospice care. The spiritual dimensions make this work I can’t NOT do. If we put away our fear, we can make choices for ourselves and with our loved ones that allow living all the way to the end with grace and dignity and peace.
Author: Jan Murray Publisher: ISBN: 9781500689261 Category : Amyotrophic lateral sclerosis Languages : en Pages : 210
Book Description
A family's journey through ALS/Amyotrophic Lateral Sclerosis, aka Lou Gehrig's Disease, taking the reader from shock and devastation to acceptance, hope and LIFE despite the terminal illness. "How ALS Changed Everything" follows the Murray family through everyday, real, raw experiences with ALS, its effects on them as individuals, their children, their marriage, and faith. The story immediately draws the reader into the Murray's lives and is a poignant tale of facing a monster of an illness, with little to no hope, with bravery, yet fear, and still coming out on top in happiness. Eleven other touching stories from ALS families from around the country are also included in the book. Inspiring. Heart wrenching. Compelling.
Author: Hiroshi Mitsumoto, MD Publisher: Demos Medical Publishing ISBN: 1935281194 Category : Health & Fitness Languages : en Pages : 499
Book Description
ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.
Author: Hiroshi Mitsumoto Publisher: ReadHowYouWant.com ISBN: 1458753573 Category : Family & Relationships Languages : en Pages : 458
Book Description
ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.
Author: Casey Sherman Publisher: University Press of New England ISBN: 1512601594 Category : Biography & Autobiography Languages : en Pages : 186
Book Description
While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body. A man whose love for others was unshakable. A man who refused to fight alone, and in so doing mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig's disease. When disease crippled Frates, the former Boston College baseball star turned tragedy into inspiration. Pete's story is a testament to the power of love, the steadfastness of family, the generosity of strangers, and the compassion of crowds. Half of the authors' proceeds will go to the Frates family.
Author: Deborah Gelinas Publisher: Demos Medical Publishing ISBN: 1934559067 Category : Health & Fitness Languages : en Pages : 258
Book Description
ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations.
Author: Cheryl Tsieprati Publisher: ISBN: 9781073767069 Category : Languages : en Pages : 231
Book Description
One Blink at a Time is Ismail and Cheryl Tsieprati's story of living with ALS (Amyotrophic Lateral Sclerosis, also known as Lou Gehrig's Disease} for more than 30 years. One Blink at a Time is upbeat, inspiring and full of optimism as Ismail and Cheryl recount in alternating chapters how they deal with their daily challenges. Although ALS has stolen Ismail's ability to move, speak, even to breathe on his own, it has not taken away his determination to live a happy and productive life. Ismail spelled out his chapters using eye blinks, letter by letter, word by word. Cheryl and Ismail's distinctive voices add to the impact of this exceptional book. Full of practical advice from training caregivers to preparing for emergencies to surviving the hospital, the book also includes an extensive glossary and resources for anyone dealing with ALS and other disabling conditions. But above all else, One Blink at a Time is an inspiring love story. Ismail and Cheryl are as devoted to one another today as they were the day they were married nearly 50 years ago.
Author: Carrey Dewey
Author: Carrey Dewey
Author: Steve Gleason
Author: Barbara Victoria
Author: Jan Murray
Author: Hiroshi Mitsumoto, MD
Author: Hiroshi Mitsumoto
Author: Casey Sherman
Author: Deborah Gelinas
Author: Cheryl Tsieprati
Author: