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Informal Caregivers: From Hidden Heroes to Integral Part of Care

Informal Caregivers: From Hidden Heroes to Integral Part of Care PDF Author: Andreas Charalambous
Publisher: Springer Nature
ISBN: 3031167457
Category : Medical
Languages : en
Pages : 219

Book Description
This book builds on the current trends in informal caregivers’ role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users’ perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle “outpatient before inpatient”, the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts’ high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers’ impact on patients’ outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.

Informal Caregivers: From Hidden Heroes to Integral Part of Care

Informal Caregivers: From Hidden Heroes to Integral Part of Care PDF Author: Andreas Charalambous
Publisher: Springer Nature
ISBN: 3031167457
Category : Medical
Languages : en
Pages : 219

Book Description
This book builds on the current trends in informal caregivers’ role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users’ perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle “outpatient before inpatient”, the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts’ high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers’ impact on patients’ outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.

Informal Caregivers: From Hidden Heroes to Integral Part of Care

Informal Caregivers: From Hidden Heroes to Integral Part of Care PDF Author: Andreas Charalambous
Publisher:
ISBN: 9783031167478
Category :
Languages : en
Pages : 0

Book Description
This book builds on the current trends in informal caregivers' role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users' perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle "outpatient before inpatient", the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts' high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers' impact on patients' outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book. .

Improving Support for America's Hidden Heroes

Improving Support for America's Hidden Heroes PDF Author: Terri Tanielian
Publisher:
ISBN: 9780833097675
Category : History
Languages : en
Pages : 0

Book Description
"Sponsored by the Elizabeth Dole Foundation."

Families Caring for an Aging America

Families Caring for an Aging America PDF Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309448093
Category : Medical
Languages : en
Pages : 367

Book Description
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Forced to Care

Forced to Care PDF Author: Evelyn Nakano Glenn
Publisher: Harvard University Press
ISBN: 9780674048799
Category : Education
Languages : en
Pages : 280

Book Description
"Scouring the history of Native American boarding schools, nineteenth-century reformatories, and programs to Americanize immigrants, Glenn brilliantly reveals the role of coercion in caregiving. An important read for us all."---Arlie Hochschild, author of The Time Bind --

Hidden Heroes

Hidden Heroes PDF Author: Rajeev Ramchand
Publisher: Rand Corporation
ISBN: 0833085581
Category : Biography & Autobiography
Languages : en
Pages : 289

Book Description
"While much has been written about the role of caregiving for the elderly and chronically ill and for children with special needs, little is known about "military caregivers" -- the population of those who care for wounded, ill, and injured military personnel and veterans. These caregivers play an essential role in caring for injured or wounded service members and veterans. This enables those for whom they are caring to live better quality lives, and can result in faster and improved rehabilitation and recovery. Yet playing this role can impose a substantial physical, emotional, and financial toll on caregivers. This report summarizes the results of a study designed to describe the magnitude of military caregiving in the United States today, as well as to identify gaps in the array of programs, policies, and initiatives designed to support military caregivers. Improving military caregivers' well-being and ensuring their continued ability to provide care will require multifaceted approaches to reducing the current burdens caregiving may impose, and bolstering their ability to serve as caregivers more effectively. Given the systematic differences among military caregiver groups, it is also important that tailored approaches meet the unique needs and characteristics of post-9/11 caregivers."--Abstract.

The Best Care Possible

The Best Care Possible PDF Author: Ira Byock
Publisher: Penguin
ISBN: 1583335129
Category : Social Science
Languages : en
Pages : 338

Book Description
A doctor on the front lines of hospital care illuminates one of the most important and controversial social issues of our time. It is harder to die in this country than ever before. Though the vast majority of Americans would prefer to die at home—which hospice care provides—many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to “fight disease and illness at all cost.” Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that how we die represents a national crisis today. To ensure the best possible elder care, Dr. Byock explains we must not only remake our healthcare system but also move beyond our cultural aversion to thinking about death. The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning life-or-death medical drama. It has the power to lead a new national conversation.

User Participation Research in Health and Social Care

User Participation Research in Health and Social Care PDF Author: Mike Nolan
Publisher: Open University Press
ISBN:
Category : Medical
Languages : en
Pages : 264

Book Description
Involving 'users' and careers in healthcare service delivery has grown in popularity over recent years, and so too has the popularity of this app

Caring for our future

Caring for our future PDF Author: Great Britain: Department of Health
Publisher: The Stationery Office
ISBN: 9780101837828
Category : Medical
Languages : en
Pages : 72

Book Description
Care and support affects a large number of people: eight out of 10 people aged 65 will need some care and support in their later years; some people have impairments from birth or develop them during their working life; some 5 million people care for a friend or relative, some for more than 50 hours a week. The current system does not offer enough support until a crisis point is reached, the quality of care is variable and inconsistent, and the growing and ageing population is only going to increase the pressure. Consequently, two core principles lie at the heart of this White Paper. The first is that individuals, communities and Government should do everything possible to prevent, postpone and minimise people's need for formal care and support. The system should be built around the promotion of people's independence and well-being. The second principle is that people should be in control of their own care and support, with personal budgets and direct payments, backed by clear, comparable information and advice that will allow individuals and their carers to make the choices that are right for them. This paper sets out the principles and approach, with sections covering: strengthening support within communities; housing; better information and advice; assessment, eligibility and portability for people who use care services; carers' support; defining high-quality care; improving quality; keeping people safe; a better local care market; workforce; personalised care and support; integration and joined-up care.

Pragmatics of Human Communication: A Study of Interactional Patterns, Pathologies and Paradoxes

Pragmatics of Human Communication: A Study of Interactional Patterns, Pathologies and Paradoxes PDF Author: Paul Watzlawick
Publisher: W. W. Norton & Company
ISBN: 0393707229
Category : Psychology
Languages : en
Pages : 293

Book Description
The properties and function of human communication. Called “one of the best books ever about human communication,” and a perennial bestseller, Pragmatics of Human Communication has formed the foundation of much contemporary research into interpersonal communication, in addition to laying the groundwork for context-based approaches to psychotherapy. The authors present the simple but radical idea that problems in life often arise from issues of communication, rather than from deep psychological disorders, reinforcing their conceptual explorations with case studies and well-known literary examples. Written with humor and for a variety of readers, this book identifies simple properties and axioms of human communication and demonstrates how all communications are actually a function of their contexts. Topics covered in this wide-ranging book include: the origins of communication; the idea that all behavior is communication; meta-communication; the properties of an open system; the family as a system of communication; the nature of paradox in psychotherapy; existentialism and human communication.