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Author: Martin J Schreiber Publisher: Harper Horizon ISBN: 0785291709 Category : Biography & Autobiography Languages : en Pages : 192
Book Description
In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.
Author: Martin J Schreiber Publisher: Harper Horizon ISBN: 0785291709 Category : Biography & Autobiography Languages : en Pages : 192
Book Description
In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.
Author: Angela G. Gentile Publisher: Createspace Independent Publishing Platform ISBN: 9781505565577 Category : Caregivers Languages : en Pages : 0
Book Description
A dementia diagnosis can frighten and devastate all who are affected. When a husband is diagnosed with dementia, his wife is at risk of becoming the "hidden patient." Sometimes the responsibilities of caring for a husband with dementia causes stress leading to caregiver burnout. Caregiving wives may feel trapped, obligated or compelled to go it alone at the expense of their own well-being. Others find many rewards in caring and give of themselves to a fault - "until death do us part." Asking for help can be difficult for caregivers, for many reasons. Gaining knowledge about dementia and its emotional impacts can provide comfort and improve confidence. Practical tips and solutions can offer hope in challenging situations. This survival guide and workbook is a vital companion for caregivers. You will refer to "Caring for a Husband with Dementia" often on your caregiving journey.
Author: Charles Cowger Publisher: ISBN: 9780578249537 Category : Languages : en Pages :
Book Description
This book will be helpful to those going through a dementia caregiving journey with a loved one. For those wishing to start a caregiving group, the structure and procedures described herein should be informative.
Author: Betty J. Kramer, PhD Publisher: Springer Publishing Company ISBN: 0826197213 Category : Social Science Languages : en Pages : 407
Book Description
Today, more and more caregivers are male. Despite this fact, the vast majority of research on caregiving has centered on the experience of the female caregiver. This volume addresses the fundamental gap in our knowledge and theories about the growing male subpopulation of caregivers. The authors identify the serious limitations that result from viewing men caregivers through the lens of women's experiences and call for an unbiased and fresh perspective in future research. Special consideration is given to men who care for a family member with dementia; fathers of adult children with mental retardation; gay male caregivers for partners with AIDS; and sons and parent care.
Author: Mackenzie Hiemstra Publisher: ISBN: Category : Dementia Languages : en Pages : 70
Book Description
The purpose of this mixed method study was to explore the voice of husbands to learn about the positive aspects of caregiving for a wife with dementia. The study utilized a semi-structured interview guide with open-ended questions and the Gain in Alzheimer's Care INstrument with a sample of ten husbands. The husbands on average were caring for a wife with dementia for 7.45 years and averaged 77.8 years old. While listening to the audio-recorded interviews, themes were transcribed focusing on the positive aspects of caregiving and the overall caregiving experience. All husband participants stated at least one positive aspect of caregiving and eight of the ten husbands stated more than one positive aspect of caregiving. The most common positive aspect of caregiving for a wife with dementia that was found was still being able to do things with her and spend time with her and seven of the ten husbands stated this. Knowing their wives are getting proper and personalized care and their wives still knowing who they are were the second most mentioned positive aspects with five of the ten husbands stating these. Other positive aspects included things like growing closer to their wives and seeing them happy. All husbands stated that there was a change in the relationship with their wife. There were no linkages found between characteristics of husbands (e.g. age, length of time caregiving, length of marriage) and likelihood to increase or decrease the chances of them finding positive aspects of caregiving. This research used a strengths-based approach to the examination of caregiving from the perspective of the husband caregiver contributing to the gaps in the current literature while building upon the recently created Gain in Alzheimer's Care INstrument.
Author: Jessica Dumas Publisher: ISBN: Category : Languages : en Pages : 104
Book Description
Did you know that there are 5 million people in the US living with Alzheimer's and by 2050, there are projected to be 14 million? Spreading awareness of Alzheimer's and other types of dementia is desperately needed. There are many more people with these diseases than other diseases that get much more money approved for research from the government or from donations. This book was written to bring better awareness that people with dementia matter. Plus, the self-sacrificing hardworking caregivers who take care of spouses also matter. Having a spouse that you have loved for years begin to change because of dementia can be distressing. This book will help you by informing you of 50 or more things that will help reduce many of those scary and stressful feelings, as well as help you be more calm in situations you may be facing such as anger, delusions or misbeliefs, depression, unusual behavior, and more. Some of the 50 or more things will be lessons learned from the author while she was caring for her husband and the rest will be from different resources. The author, Jessica Dumas, does not claim to be in the medical field but rather has an abundance of knowledge due to the experience of caring for her husband who had vascular dementia for almost five years. Ask yourself if any of the following is a concern to you: Do you suspect that your spouse has some type of dementia? Has your spouse been diagnosed with a type of dementia? Are you apprehensive about what to do to be prepared for the future of caring for your spouse with dementia? If you answered yes to any of these questions, then this book is for you... 50 Things to Know to Take Care of a Spouse with Dementia by author Jessica Dumas offers a more personal approach as well as being detailed and more understandable than many books. Much of the information in books or online is in clinical or medical terms. Although there's nothing wrong with that approach, it can be hard to understand. Instead of getting lost in the large amount of information on the internet, you can use this book as a research tool and a workbook. Jessica has written this book to help you not have to go through some of the awful experiences that she did that could have been avoided if she would have had a book like this. The main objective of this book is to help you take care of your spouse as best you can. Jessica realizes what an exhausting, complicated, and tedious job you have and has given you 23 extra things or tips to help you with caring for your spouse. In these pages, if your spouse has not found out that he/she has dementia, you will discover what the early symptoms are, why it is important to see a doctor early, doctor visit preparation, what tests will be done, and more. If you know your spouse has dementia and has been diagnosed with a certain type, this book will help with how to deal with denial, pulling together a Care Team with ways to get people to volunteer to help, hiring other caregivers, documents needed for a Care Plan to plan for the future, ways of handling situations like delusions, the different stages and their symptoms, links to several types of checklists and forms, plenty of resources, and much more. By the time you finish this book, you will know at least 50 things to be able to give your spouse with dementia the care that is needed and that he/she rightly deserves.... So, grab YOUR copy today. You'll be glad you did!
Author: Dr. David Kirkpatrick Publisher: Brush Education ISBN: 1550597280 Category : Health & Fitness Languages : en Pages : 136
Book Description
When Dr. David Kirkpatrick’s wife was diagnosed with Alzheimer’s disease in 2007, their lives—and their marriage—would change forever. In an honest, uplifting, and sometimes heartbreaking account of loving a partner with dementia, Dr. Kirkpatrick creates a clear guide for others in similar circumstances. He shares his perspective both as a loving and grief-stricken husband coping with a profound change in his marriage, and as a geriatric psychiatrist doing everything he can for his wife while continually learning throughout that experience. Dr. Kirkpatrick tackles the tough questions about caretaking, grief, loss, love, and sex for those whose partners have dementia. When is the right time to find or even to begin considering a care home for your loved one? How can you navigate the complexities of your changing sexual relationship with an Alzheimer’s partner? When is it appropriate for you to consider new relationships? With wisdom and compassion, Dr. Kirkpatrick reflects on these questions and more. Whether your partner has been recently diagnosed or has been living with dementia for many years, Neither Married Nor Single will help lead you to effective strategies for living and loving in an Alzheimer’s marriage, and for dealing with the changes ahead. And it will help you remember that you are not alone.
Author: Elizabeth Shulman Publisher: ISBN: 9781732850705 Category : Religion Languages : en Pages : 70
Book Description
Spouses now provide the majority of care for persons with Alzheimer's disease (Daley et. al., 2017). This program is comprised of two separate but parallel studies subtitled, "Providing Sanctuary" (for pastors and congregation members) and "Seeking Sanctuary" (for spousal caregivers). Ideally, these studies occur simultaneously; however, an increasing number of places, such as assisted living and retirement communities, are adapting either one or both studies to cater to the needs of their population. Used separately, each study can be used as a 4-week spousal support group or as an educational program for those wanting to know how to better support dementia caregivers. Both studies use scripture and personal narratives as the foundation for discussion. Anyone can lead the discussions, as directions have been embedded within each week's lesson. To find out more about the author, visit her website at www.elizabethshulman.com
Author: Kate Washington Publisher: Beacon Press ISBN: 0807011754 Category : Medical Languages : en Pages : 224
Book Description
The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Author: Martin J Schreiber
Author: Martin J Schreiber
Author: Angela G. Gentile
Author: Charles Cowger
Author: Betty J. Kramer, PhD
Author: Mackenzie Hiemstra
Author: Melanie Mayo
Author: Jessica Dumas
Author: Dr. David Kirkpatrick
Author: Elizabeth Shulman
Author: Kate Washington