Disability Human Rights Law 2018 PDF Download

Author: Anna Arstein-Kerslake (Ed.)
Publisher: MDPI
ISBN: 3038972509
Category : Law
Languages : en
Pages : 241

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Book Description
This book is a printed edition of the Special Issue "Disability Human Rights Law" that was published in Laws

Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309047986
Category : Medical
Languages : en
Pages : 353

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Book Description
Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

Author: Lori B. Andrews
Publisher: West Academic Publishing
ISBN:
Category : Law
Languages : en
Pages : 1000

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Book Description
This is the revised edition of the casebook, Genetics: Ethics, Law, and Policy, which has been used successfully in law schools in both the seminar and course context. It is authored by three of the nation's leading experts on genetic ethics, law and policy. Students enjoy the course because of the topicality of the subjects, many of which they hear about in the news (gene discoveries, embryo stem cell research). Faculty members enjoy teaching from the book because of the excellent teaching manual and because they can link it to other topics ? the casebook covers issues in health law, employment law, insurance law, criminal law, family law, and other fields. The casebook is supplemented regularly on the TWEN website, so that it is always current. A background in genetics is not required for either students or teachers. The casebook and teachers? manual are written so that the casebook can be used for undergraduate courses or courses for the health professions, for public health, or for public policy.

Author: Australia. Law Reform Commission
Publisher: Sydney : Australian Law Reform Commission
ISBN: 9780642732118
Category : Data protection
Languages : en
Pages : 441

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Book Description
13. Law enforcement issues

Author: Erik Parens
Publisher: Georgetown University Press
ISBN: 9781589013940
Category : Medical
Languages : en
Pages : 392

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Book Description
As prenatal tests proliferate, the medical and broader communities perceive that such testing is a logical extension of good prenatal care—it helps parents have healthy babies. But prenatal tests have been criticized by the disability rights community, which contends that advances in science should be directed at improving their lives, not preventing them. Used primarily to decide to abort a fetus that would have been born with mental or physical impairments, prenatal tests arguably reinforce discrimination against and misconceptions about people with disabilities. In these essays, people on both sides of the issue engage in an honest and occasionally painful debate about prenatal testing and selective abortion. The contributors include both people who live with and people who theorize about disabilities, scholars from the social sciences and humanities, medical geneticists, genetic counselors, physicians, and lawyers. Although the essayists don't arrive at a consensus over the disability community's objections to prenatal testing and its consequences, they do offer recommendations for ameliorating some of the problems associated with the practice.

Author: Abigail Perdue
Publisher:
ISBN: 9781531002763
Category : Discrimination
Languages : en
Pages :

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Book Description
"America is undergoing an intense cultural evolution. Recently, race, sex, and other relations have been incredibly strained, and communities, both urban and rural, have experienced social turbulence, which at times, has erupted into violence. These issues are surfacing at campuses across America. But what underlying factors account for these recurring eruptions of prejudice, discrimination, violence, and hate? And perhaps more importantly, what, if anything, can we, as educators, do to prevent prejudice, promote empathy and understanding, and empower our students to compassionately and thoughtfully navigate these turbulent times? Grappling with these difficult but important questions inspired Exploring Diversity and Discrimination: Sex, Disability, and Genetic Information. The book aims to encourage educators to teach inclusive courses about diversity and discrimination at their respective institutions, and that these courses will provide opportunities for compassionate engagement and meaningful dialogue among people from different backgrounds. Although one book is certainly not an all-inclusive solution, it is a step in the right direction. After all, relations between different groups may continue to deteriorate unless we, as educators, provide more opportunities for meaningful, open, and honest dialogue about these issues and facilitate compassionate engagement with people who differ from us. Such exposure can foster empathy as can education and understanding. With this purpose in mind, the book explores the sociological underpinnings and legal regulation of diversity and discrimination in the United States, primarily through the lens of my areas of scholarly interest and practical expertise: sex discrimination, disability discrimination, and discrimination on the basis of genetic information"--

Author: Aisling de Paor
Publisher: Cambridge University Press
ISBN: 1108509274
Category : Law
Languages : en
Pages : 335

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Book Description
While advances in science and technology bring many advantages, we must not ignore the harm that they can cause. Rapid changes in genetic testing are a prime example, and indicators can now help to detect, address and treat diseases. However, in this new study, Aisling de Paor examines how genetic testing is also being used for non-medical reasons, for example for work opportunities and insurance coverage. Genetics, Disability and the Law is the first book of its kind to substantively consider an EU-level response to the use of genetic information. de Paor discusses how to help genetic and scientific research to evolve and grow, how to enhance public confidence in research, and how to control it so that it recognises our values and fundamental human rights. An understudied but vitally important topic, de Paor's work provides a valuable and timely contribution to the field of disability rights.

Author: I. Glenn Cohen
Publisher: Cambridge University Press
ISBN: 1108485979
Category : Health & Fitness
Languages : en
Pages : 313

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Book Description
Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.

Author: Jay Aronson
Publisher: Rutgers University Press
ISBN: 0813543835
Category : Law
Languages : en
Pages : 287

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Book Description
When DNA profiling was first introduced into the American legal system in 1987, it was heralded as a technology that would revolutionize law enforcement. As an investigative tool, it has lived up to much of this hype—it is regularly used to track down unknown criminals, put murderers and rapists behind bars, and exonerate the innocent. Yet, this promise took ten turbulent years to be fulfilled. In Genetic Witness, Jay D. Aronson uncovers the dramatic early history of DNA profiling that has been obscured by the technique’s recent success. He demonstrates that robust quality control and quality assurance measures were initially nonexistent, interpretation of test results was based more on assumption than empirical evidence, and the technique was susceptible to error at every stage. Most of these issues came to light only through defense challenges to what prosecutors claimed to be an infallible technology. Although this process was fraught with controversy, inefficiency, and personal antagonism, the quality of DNA evidence improved dramatically as a result. Aronson argues, however, that the dream of a perfect identification technology remains unrealized.

Author: National Research Council
Publisher: National Academies Press
ISBN: 0309162165
Category : Medical
Languages : en
Pages : 106

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Book Description
Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing. Rapid advances in genetic research already have begun to transform clinical practice and our understanding of disease progression. Existing research has revealed a genetic basis or component for numerous diseases, including Parkinson's disease, Alzheimer's disease, diabetes, heart disease, and several forms of cancer. The availability of the human genome sequence and the HapMap, plummeting costs of high-throughput screening, and increasingly sophisticated computational analyses have led to an explosion of discoveries of linkages between patterns of genetic variation and disease susceptibility. While this research is by no means a straight path toward better public health, improved knowledge of the genetic linkages has the potential to change fundamentally the way health professionals and public health practitioners approach the prevention and treatment of disease. Realizing this potential will require greater sophistication in the interpretation of genetic tests, new training for physicians and other diagnosticians, and new approaches to communicating findings to the public. As this rapidly growing field matures, all of these questions require attention from a variety of perspectives. To discuss some of the foregoing issues, several units of the National Academies held a workshop on August 31 and September 1, 2009, to bring together a still-developing community of professionals from a variety of relevant disciplines, to educate the public and policy-makers about this emerging field, and to identify issues for future study. The meeting featured several invited presentations and discussions on the many technical, legal, policy, and ethical questions that such DTC testing raises, including: (1) overview of the current state of knowledge and the future research trajectory; (2) shared genes and emerging issues in privacy; (3) the regulatory framework; and (4) education of the public and the medical community.