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Author: Nadina LaSpina Publisher: New Village Press ISBN: 161332104X Category : Biography & Autobiography Languages : en Pages : 352
Book Description
A memoir by a disability rights activist Such a Pretty Girl is Nadina LaSpina's story—from her early years in her native Sicily, where still a baby she contracts polio, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness; to her adolescence and youth in America, spent almost entirely in hospitals, where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her; to her rebellion and her activism in the disability rights movement. LaSpina’s personal growth parallels the movement’s political development—from coming together, organizing, and fighting against exclusion from public and social life, to the forging of a common identity, the blossoming of disability arts and culture, and the embracing of disability pride. While unique, the author's journey is also one with which many disabled people can identify. It is the journey to find one's place in an ableist world—a world not made for disabled people, where disability is only seen in negative terms. La Spina refutes all stereotypical narratives of disability. Through the telling of her life’s story, without editorializing, she shows the harm that the overwhelming focus on pity and on a cure that remains elusive has done to disabled people. Her story exposes the disability prejudice ingrained in our sociopolitical system and denounces the oppressive standards of normalcy in a society that devalues those who are different and denies them basic rights. Written as continuous narrative and in a subtle and intimate voice, Such a Pretty Girl is a memoir as captivating as a novel. It is one of the few disability memoirs to focus on activism, and one of the first by an immigrant.
Author: Nadina LaSpina Publisher: New Village Press ISBN: 161332104X Category : Biography & Autobiography Languages : en Pages : 352
Book Description
A memoir by a disability rights activist Such a Pretty Girl is Nadina LaSpina's story—from her early years in her native Sicily, where still a baby she contracts polio, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness; to her adolescence and youth in America, spent almost entirely in hospitals, where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her; to her rebellion and her activism in the disability rights movement. LaSpina’s personal growth parallels the movement’s political development—from coming together, organizing, and fighting against exclusion from public and social life, to the forging of a common identity, the blossoming of disability arts and culture, and the embracing of disability pride. While unique, the author's journey is also one with which many disabled people can identify. It is the journey to find one's place in an ableist world—a world not made for disabled people, where disability is only seen in negative terms. La Spina refutes all stereotypical narratives of disability. Through the telling of her life’s story, without editorializing, she shows the harm that the overwhelming focus on pity and on a cure that remains elusive has done to disabled people. Her story exposes the disability prejudice ingrained in our sociopolitical system and denounces the oppressive standards of normalcy in a society that devalues those who are different and denies them basic rights. Written as continuous narrative and in a subtle and intimate voice, Such a Pretty Girl is a memoir as captivating as a novel. It is one of the few disability memoirs to focus on activism, and one of the first by an immigrant.
Author: Maia Dolphin-Krute Publisher: punctum books ISBN: 1947447262 Category : Medical Languages : en Pages : 150
Book Description
Memoirs about being sick are popular and everywhere and only ever contribute to pop narratives of illness as a single event or heroic struggle or journey. Visceral: Essays on Illness as Metaphor is not that. Visceral, to the extent that it is a memoir, is a record not of illness but of the research project being sick became. While rooted firmly in critical disability and queer practices, the use of personal narratives opens these approaches up to new ways of writing the body-ultimately a body that is at once theoretical and unavoidably physical. A body where everything is visceral, so theory must be too. From the gothic networks of healthcare bureaucracy and hospital philanthropy to the proliferation of wellness media, off-label usage of drugs, and running off to live a life with, these essays move fluidly through theoretical and physical anger, curiosity and surprise. Arguing for disability rights that attend to the theoretical as much as the physical, this is Illness Not As Metaphor, Being Sick and Time, and The Body in Actual Pain as one. A sick body of text that is-and is not-in direct correspondence to an actual sick body, Visceral is an unrelenting examination of chronic illness that turns towards the theoretical only to find itself in the realms of the biological and autobiographical: because how much theory can a body take?
Author: Ann Patchett Publisher: A&C Black ISBN: 1408842408 Category : Biography & Autobiography Languages : en Pages : 335
Book Description
'So compellingly personal you feel you're looking over her shoulder as she sits down to write' New York Times 'Electrically entertaining ... Funny, generous, spirited and kind' The Times This Is the Story of a Happy Marriage is an irresistible blend of literature and memoir revealing the big experiences and little moments that shaped Ann Patchett as a daughter, wife, friend and writer. Here, Ann Patchett shares entertaining and moving stories about her tumultuous childhood, her painful early divorce, the excitement of selling her first book, driving a Winnebago from Montana to Yellowstone Park, her joyous discovery of opera, scaling a six-foot wall in order to join the Los Angeles Police Department, the gradual loss of her beloved grandmother, starting her own bookshop in Nashville, her love for her very special dog and, of course, her eventual happy marriage. This Is the Story of a Happy Marriage is a memoir both wide ranging and deeply personal, overflowing with close observation and emotional wisdom, told with wit, honesty and irresistible warmth.
Author: United States. Congress. Senate. Committee on Finance. Subcommittee on Health Care Publisher: ISBN: Category : Business & Economics Languages : en Pages : 108
Author: National Research Council Publisher: National Academies Press ISBN: 0309212405 Category : Medical Languages : en Pages : 202
Book Description
In the United States, health care devices, technologies, and practices are rapidly moving into the home. The factors driving this migration include the costs of health care, the growing numbers of older adults, the increasing prevalence of chronic conditions and diseases and improved survival rates for people with those conditions and diseases, and a wide range of technological innovations. The health care that results varies considerably in its safety, effectiveness, and efficiency, as well as in its quality and cost. Health Care Comes Home reviews the state of current knowledge and practice about many aspects of health care in residential settings and explores the short- and long-term effects of emerging trends and technologies. By evaluating existing systems, the book identifies design problems and imbalances between technological system demands and the capabilities of users. Health Care Comes Home recommends critical steps to improve health care in the home. The book's recommendations cover the regulation of health care technologies, proper training and preparation for people who provide in-home care, and how existing housing can be modified and new accessible housing can be better designed for residential health care. The book also identifies knowledge gaps in the field and how these can be addressed through research and development initiatives. Health Care Comes Home lays the foundation for the integration of human health factors with the design and implementation of home health care devices, technologies, and practices. The book describes ways in which the Agency for Healthcare Research and Quality (AHRQ), the U.S. Food and Drug Administration (FDA), and federal housing agencies can collaborate to improve the quality of health care at home. It is also a valuable resource for residential health care providers and caregivers.
Author: Sejal Shah Publisher: University of Georgia Press ISBN: 0820357235 Category : Biography & Autobiography Languages : en Pages : 201
Book Description
Deluxe -- Thank You -- Pelham Road -- There Is No Mike Here -- Things People Said: An Essay in Seven Steps -- Temporary Talismans -- Six Hours from Anywhere You Want to Be -- No One Is Ordinary; Everyone Is Ordinary -- Ring Theory -- Saris and Sorrows -- Voice Texting with My Mother.
Author: Sarah Ruhl Publisher: Macmillan + ORM ISBN: 0374711976 Category : Performing Arts Languages : en Pages : 179
Book Description
100 Essays I Don't Have Time to Write is an incisive, idiosyncratic collection on life and theater from major American playwright Sarah Ruhl. This is a book in which chimpanzees, Chekhov, and child care are equally at home. A vibrant, provocative examination of the possibilities of the theater, it is also a map to a very particular artistic sensibility, and an unexpected guide for anyone who has chosen an artist's life. Sarah Ruhl is a mother of three and one of America's best-known playwrights. She has written a stunningly original book of essays whose concerns range from the most minimal and personal subjects to the most encompassing matters of art and culture. The titles themselves speak to the volume's uniqueness: "On lice," "On sleeping in the theater," "On motherhood and stools (the furniture kind)," "Greek masks and Bell's palsy."
Author: David Blumenthal Publisher: Rowman & Littlefield ISBN: 0815710143 Category : Medical Languages : en Pages : 290
Book Description
As the population ages, policymakers must evaluate the nation's readiness to assist a growing group of people with conditions requiring chronic and long-term care. Based on the 2002 annual meeting of the National Academy of Social Insurance, this new volume offers a variety of viewpoints from policymakers, researchers, and experts who examine how well the needs of the elderly and disabled Americans are being met by today's financing and delivery systems, in light of potential reform options. Particular attention is paid to care coordination issues—namely, the impact of acute-care policies on long-term and chronic care—to draw attention to how the segmentation of healthcare provision can create disruptions in patient care. Authors address the advantages and disadvantages of varying levels of state, federal, and private involvement in long-term care. Clearly, for people to access appropriate long-term care today and tomorrow, a careful balance of financing sources and integrated health care must be achieved. Researchers, analysts, and policymakers, therefore, will find this volume useful to informing thoughtful analysis of important long-term care issues.
Author: Nadina LaSpina
Author: Nadina LaSpina
Author: Maia Dolphin-Krute
Author: Ann Patchett
Author: United States. Congress. Senate. Committee on Finance. Subcommittee on Health Care
Author: National Research Council
Author: Sejal Shah
Author: Olivia S. Mitchell
Author: Sarah Ruhl
Author: David Blumenthal
Author: