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Author: Nadina LaSpina Publisher: New Village Press ISBN: 161332104X Category : Biography & Autobiography Languages : en Pages : 352
Book Description
A memoir by a disability rights activist Such a Pretty Girl is Nadina LaSpina's story—from her early years in her native Sicily, where still a baby she contracts polio, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness; to her adolescence and youth in America, spent almost entirely in hospitals, where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her; to her rebellion and her activism in the disability rights movement. LaSpina’s personal growth parallels the movement’s political development—from coming together, organizing, and fighting against exclusion from public and social life, to the forging of a common identity, the blossoming of disability arts and culture, and the embracing of disability pride. While unique, the author's journey is also one with which many disabled people can identify. It is the journey to find one's place in an ableist world—a world not made for disabled people, where disability is only seen in negative terms. La Spina refutes all stereotypical narratives of disability. Through the telling of her life’s story, without editorializing, she shows the harm that the overwhelming focus on pity and on a cure that remains elusive has done to disabled people. Her story exposes the disability prejudice ingrained in our sociopolitical system and denounces the oppressive standards of normalcy in a society that devalues those who are different and denies them basic rights. Written as continuous narrative and in a subtle and intimate voice, Such a Pretty Girl is a memoir as captivating as a novel. It is one of the few disability memoirs to focus on activism, and one of the first by an immigrant.
Author: Nadina LaSpina Publisher: New Village Press ISBN: 161332104X Category : Biography & Autobiography Languages : en Pages : 352
Book Description
A memoir by a disability rights activist Such a Pretty Girl is Nadina LaSpina's story—from her early years in her native Sicily, where still a baby she contracts polio, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness; to her adolescence and youth in America, spent almost entirely in hospitals, where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her; to her rebellion and her activism in the disability rights movement. LaSpina’s personal growth parallels the movement’s political development—from coming together, organizing, and fighting against exclusion from public and social life, to the forging of a common identity, the blossoming of disability arts and culture, and the embracing of disability pride. While unique, the author's journey is also one with which many disabled people can identify. It is the journey to find one's place in an ableist world—a world not made for disabled people, where disability is only seen in negative terms. La Spina refutes all stereotypical narratives of disability. Through the telling of her life’s story, without editorializing, she shows the harm that the overwhelming focus on pity and on a cure that remains elusive has done to disabled people. Her story exposes the disability prejudice ingrained in our sociopolitical system and denounces the oppressive standards of normalcy in a society that devalues those who are different and denies them basic rights. Written as continuous narrative and in a subtle and intimate voice, Such a Pretty Girl is a memoir as captivating as a novel. It is one of the few disability memoirs to focus on activism, and one of the first by an immigrant.
Author: National Research Council Publisher: National Academies Press ISBN: 0309212405 Category : Medical Languages : en Pages : 202
Book Description
In the United States, health care devices, technologies, and practices are rapidly moving into the home. The factors driving this migration include the costs of health care, the growing numbers of older adults, the increasing prevalence of chronic conditions and diseases and improved survival rates for people with those conditions and diseases, and a wide range of technological innovations. The health care that results varies considerably in its safety, effectiveness, and efficiency, as well as in its quality and cost. Health Care Comes Home reviews the state of current knowledge and practice about many aspects of health care in residential settings and explores the short- and long-term effects of emerging trends and technologies. By evaluating existing systems, the book identifies design problems and imbalances between technological system demands and the capabilities of users. Health Care Comes Home recommends critical steps to improve health care in the home. The book's recommendations cover the regulation of health care technologies, proper training and preparation for people who provide in-home care, and how existing housing can be modified and new accessible housing can be better designed for residential health care. The book also identifies knowledge gaps in the field and how these can be addressed through research and development initiatives. Health Care Comes Home lays the foundation for the integration of human health factors with the design and implementation of home health care devices, technologies, and practices. The book describes ways in which the Agency for Healthcare Research and Quality (AHRQ), the U.S. Food and Drug Administration (FDA), and federal housing agencies can collaborate to improve the quality of health care at home. It is also a valuable resource for residential health care providers and caregivers.
Author: Nicholas Eberstadt Publisher: Templeton Foundation Press ISBN: 1599474360 Category : Political Science Languages : en Pages : 145
Book Description
In A Nation of Takers: America’s Entitlement Epidemic, one of our country’s foremost demographers, Nicholas Eberstadt, details the exponential growth in entitlement spending over the past fifty years. As he notes, in 1960, entitlement payments accounted for well under a third of the federal government’s total outlays. Today, entitlement spending accounts for a full two-thirds of the federal budget. Drawing on an impressive array of data and employing a range of easy- to- read, four color charts, Eberstadt shows the unchecked spiral of spending on a range of entitlements, everything from medicare to disability payments. But Eberstadt does not just chart the astonishing growth of entitlement spending, he also details the enormous economic and cultural costs of this epidemic. He powerfully argues that while this spending certainly drains our federal coffers, it also has a very real,long-lasting, negative impact on the character of our citizens. Also included in the book is a response from one of our leading political theorists, William Galston. In his incisive response, he questions Eberstadt’s conclusions about the corrosive effect of entitlements on character and offers his own analysis of the impact of American entitlement growth.
Author: Sabrina Ching Yuen Luk Publisher: Routledge ISBN: 1351631349 Category : Business & Economics Languages : en Pages : 176
Book Description
This book uses a revised version of Kingdon’s multiple-streams framework to examine health financing reforms in China, Hong Kong, Taiwan, and the Republic of Korea (ROK) as well as long-term care insurance (LTCI) reforms in Japan and Singapore. It shows that the explanatory power of the multiple-streams framework can be strengthened through enriching the concepts of policy entrepreneurs, ideas, and windows of opportunity in the original framework as well as bringing the theoretical lens of historical institutionalism into the framework.
Author: Howard Waitzkin Publisher: NYU Press ISBN: 1583676759 Category : Medical Languages : en Pages : 336
Book Description
Disobedience : doctor workers unite! / Howard Waitzkin -- Becoming employees : the deprofessionalization and emerging social class position of health professionals / Matt Anderson -- The degradation of medical labor and the meaning of quality in health care / Gordon Schiff and Sarah Winch -- The political economy of health reform / David Himmelstein and Steffie Woolhandler -- The transformation of the medical industrial complex : financialization, the corporate sector, and monopoly capital / Matt Anderson and Robb Burlage -- The pharmaceutical industry in the context of contemporary capitalism / Joel Lexchin -- Obamacare : the neoliberal model comes home to roost in the United States, if we let it / Howard Waitzkin and Ida Hellander -- Austerity and health / Adam Gaffney and Carles Muntaner -- Imperialism's health component / Howard Waitzkin and Rebeca Jasso-Aguilar -- U.S. philanthrocapitalism and the global health agenda : the Rockefeller and Gates foundations, past and present / Anne-Emanuelle Birn and Judith Richter -- Resisting the imperial order and building an alternative future in medicine and public health / Rebeca Jasso-Aguilar and Howard Waitzkin -- The failure of Obamacare and a revision of the single payer proposal after a quarter century of struggle / Adam Gaffney, David Himmelstein, and Steffie Woolhandler -- Overcoming pathological normalcy : mental health challenges in the coming transformation / Carl Ratner -- Confronting the social and environmental determinants of health / Carles Muntaner and Rob Wallace -- Conclusion : moving beyond capitalism for our health / Adam Gaffney and Howard Waitzkin
Author: David Blumenthal Publisher: Rowman & Littlefield ISBN: 0815710143 Category : Medical Languages : en Pages : 290
Book Description
As the population ages, policymakers must evaluate the nation's readiness to assist a growing group of people with conditions requiring chronic and long-term care. Based on the 2002 annual meeting of the National Academy of Social Insurance, this new volume offers a variety of viewpoints from policymakers, researchers, and experts who examine how well the needs of the elderly and disabled Americans are being met by today's financing and delivery systems, in light of potential reform options. Particular attention is paid to care coordination issues—namely, the impact of acute-care policies on long-term and chronic care—to draw attention to how the segmentation of healthcare provision can create disruptions in patient care. Authors address the advantages and disadvantages of varying levels of state, federal, and private involvement in long-term care. Clearly, for people to access appropriate long-term care today and tomorrow, a careful balance of financing sources and integrated health care must be achieved. Researchers, analysts, and policymakers, therefore, will find this volume useful to informing thoughtful analysis of important long-term care issues.
Author: Michael Barbato Publisher: McGraw-Hill Europe ISBN: 9780074712146 Category : Death Languages : en Pages : 278
Book Description
Caring for the Dyingexplores the extraordinary experience of caring for a lovedone who is dying, looking at the practicalities of everyday and long-term care. Using true, poignant stories gleaned from his many years of experience in the medical profession, Michael Barbato broadens the reader's understanding of death and what it means to the many patients, family and friends he has cared for in his professional and personal life. The author approaches this confronting, sensitive subject with a unique, thoughtful understanding of the carer and of the cared for in this enlightening, insightful book.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 030913319X Category : Medical Languages : en Pages : 191
Book Description
The Institute of Medicine study Crossing the Quality Chasm (2001) recommended that an interdisciplinary summit be held to further reform of health professions education in order to enhance quality and patient safety. Health Professions Education: A Bridge to Quality is the follow up to that summit, held in June 2002, where 150 participants across disciplines and occupations developed ideas about how to integrate a core set of competencies into health professions education. These core competencies include patient-centered care, interdisciplinary teams, evidence-based practice, quality improvement, and informatics. This book recommends a mix of approaches to health education improvement, including those related to oversight processes, the training environment, research, public reporting, and leadership. Educators, administrators, and health professionals can use this book to help achieve an approach to education that better prepares clinicians to meet both the needs of patients and the requirements of a changing health care system.
Author: Nadina LaSpina
Author: Nadina LaSpina
Author: National Research Council
Author: Nicholas Eberstadt
Author: Michael Marien
Author: Sabrina Ching Yuen Luk
Author: Howard Waitzkin
Author: David Blumenthal
Author: Michael Barbato
Author: Olivia S. Mitchell
Author: Institute of Medicine