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Author: Mahin Kiwi Publisher: Linköping University Electronic Press ISBN: 917685230X Category : Languages : en Pages : 108
Book Description
Introduction: Today’s multicultural society has resulted in major changes, with healthcare undergoing significant modifications. Healthcare workers and patients are increasingly confronted with “cultural” backgrounds other than their own. The world’s population is ageing, and the number of people with dementia is growing, resulting in a growing number of older people with a foreign background whose care needs have increased at different rates. Migration does not only mean moving from one place to another; it also involves the transition of an individual’s lifestyle, life views, social and economic adjustments that may lead to certain changes. These transitions from the “old” to the “new” way of life and from a life without dementia to a life with dementia involve making sense of life’s changes. Aim: The aim of study I was to explore the experiences and perceptions of dementia among Iranian staff working in a culturally profiled nursing home (CPNH). The aim of studies II and III was to explore relatives’ decisions to end caregiving at home, and Iranian families’ and relatives’ attitudes towards CPNHs in Sweden. The aim of study (IV) was to explore how the residents with dementia at the CPNH expressed the feeling of “home”. Method: This thesis is based on more than one year’s fieldwork. The empirical material is based on interviews and observations. Three groups of participants were interviewed and observed: 10 people with dementia (IV), 20 family caregivers and relatives (II and III, respectively) and 34 staff members (I). The interviews were conducted in Persian/Farsi, Azerbaijani, English and Swedish. The choice of language was always up to the participants. All the interviews were audio-recorded, transcribed verbatim in the respective languages and then translated later into Swedish. The analysis of the material was based on content analysis blended with ethnography. Results: Study I shows that people from different culturally and linguistically diverse backgrounds could have different perceptions of what dementia entails. A lack of knowledge concerning dementia affects how staff approach these people. Study II shows that the CPNH is crucial when deciding to cease caregiving at home. It is important to ensure that relatives with dementia are cared for by someone who speaks the same mother tongue. The results indicate that positive feelings of relief or comfort are dominant responses among the participants, some of whom even feel pride in the high standard of care provided by the home. In Study III, most participants based their views on a comparison between the CPNH and Iranian nursing homes after the Islamic Revolution. Negative views of the nursing home were evaluated alongside what the respondents considered to be typically Iranian. In Study IV, the results show that people with dementia’s personal experiences of home played a great role, and although none of the participants felt at home, all of them stated that the CPNH was a place to live in. Conclusion: Perceptions of dementia can be based on cultural and traditional understanding, although this can shift through transition and knowledge accumulation. A lack of knowledge concerning dementia and residents’ sociocultural background, generational differences and incoherence, aligned with staff members’ different sociocultural backgrounds, created many challenges. The staff wanted to learn more about dementia, to be able to manage daily communication with the residents. On another point, the staff admitted that only being able to speak a person’s native language was not enough to claim that they were actually communicating. Family caregivers’ decisions to end caregiving at home involve mutuality, capability and management, but decision-making sometimes has nothing to do with violating a person’s autonomy and is more about protecting the person. The family caregivers do care for frail elderly family members. What has changed due to a transition is the structure and construction of family caregiving. The consequences of communication difficulties between staff and the residents have led to a small degree of social involvement, which in turn affects residents’ daily social state. Overall, many family members stated that the CPNH resembled Iran too much, which disturbed them. The residents thought of home as a geographical location, but also connected it with both positive and negative feelings. Furthermore, the CPNH reminded some of the residents of the nicer side of life back home in Iran, while for others it brought back sad experiences and memories from the past. Nevertheless, the nursing home, due to memories and experiences of life in Iran, “home”, was a place to be and to live.
Author: Mahin Kiwi Publisher: Linköping University Electronic Press ISBN: 917685230X Category : Languages : en Pages : 108
Book Description
Introduction: Today’s multicultural society has resulted in major changes, with healthcare undergoing significant modifications. Healthcare workers and patients are increasingly confronted with “cultural” backgrounds other than their own. The world’s population is ageing, and the number of people with dementia is growing, resulting in a growing number of older people with a foreign background whose care needs have increased at different rates. Migration does not only mean moving from one place to another; it also involves the transition of an individual’s lifestyle, life views, social and economic adjustments that may lead to certain changes. These transitions from the “old” to the “new” way of life and from a life without dementia to a life with dementia involve making sense of life’s changes. Aim: The aim of study I was to explore the experiences and perceptions of dementia among Iranian staff working in a culturally profiled nursing home (CPNH). The aim of studies II and III was to explore relatives’ decisions to end caregiving at home, and Iranian families’ and relatives’ attitudes towards CPNHs in Sweden. The aim of study (IV) was to explore how the residents with dementia at the CPNH expressed the feeling of “home”. Method: This thesis is based on more than one year’s fieldwork. The empirical material is based on interviews and observations. Three groups of participants were interviewed and observed: 10 people with dementia (IV), 20 family caregivers and relatives (II and III, respectively) and 34 staff members (I). The interviews were conducted in Persian/Farsi, Azerbaijani, English and Swedish. The choice of language was always up to the participants. All the interviews were audio-recorded, transcribed verbatim in the respective languages and then translated later into Swedish. The analysis of the material was based on content analysis blended with ethnography. Results: Study I shows that people from different culturally and linguistically diverse backgrounds could have different perceptions of what dementia entails. A lack of knowledge concerning dementia affects how staff approach these people. Study II shows that the CPNH is crucial when deciding to cease caregiving at home. It is important to ensure that relatives with dementia are cared for by someone who speaks the same mother tongue. The results indicate that positive feelings of relief or comfort are dominant responses among the participants, some of whom even feel pride in the high standard of care provided by the home. In Study III, most participants based their views on a comparison between the CPNH and Iranian nursing homes after the Islamic Revolution. Negative views of the nursing home were evaluated alongside what the respondents considered to be typically Iranian. In Study IV, the results show that people with dementia’s personal experiences of home played a great role, and although none of the participants felt at home, all of them stated that the CPNH was a place to live in. Conclusion: Perceptions of dementia can be based on cultural and traditional understanding, although this can shift through transition and knowledge accumulation. A lack of knowledge concerning dementia and residents’ sociocultural background, generational differences and incoherence, aligned with staff members’ different sociocultural backgrounds, created many challenges. The staff wanted to learn more about dementia, to be able to manage daily communication with the residents. On another point, the staff admitted that only being able to speak a person’s native language was not enough to claim that they were actually communicating. Family caregivers’ decisions to end caregiving at home involve mutuality, capability and management, but decision-making sometimes has nothing to do with violating a person’s autonomy and is more about protecting the person. The family caregivers do care for frail elderly family members. What has changed due to a transition is the structure and construction of family caregiving. The consequences of communication difficulties between staff and the residents have led to a small degree of social involvement, which in turn affects residents’ daily social state. Overall, many family members stated that the CPNH resembled Iran too much, which disturbed them. The residents thought of home as a geographical location, but also connected it with both positive and negative feelings. Furthermore, the CPNH reminded some of the residents of the nicer side of life back home in Iran, while for others it brought back sad experiences and memories from the past. Nevertheless, the nursing home, due to memories and experiences of life in Iran, “home”, was a place to be and to live.
Author: Susan Cook Merrill Publisher: Routledge ISBN: 113658305X Category : Medical Languages : en Pages : 121
Book Description
This fascinating book examines the concept of culture from a unique perspective--that of individual occupational therapists who have worked in environments very different from those in which they were educated or had worked previously. In Occupational Therapy Across Cultural Boundaries, six occupational therapists relate their experiences living and working in a foreign culture. Each author describes the daily demands placed upon her through immersion into a different way of life and discusses the environmental challenges she had to overcome to be able to live and work successfully. Many of the cultural differences the authors faced forced them to reassess and reconstruct their most basic assumptions of both personal and professional life as they discovered that activities and theories common or applicable in one culture are not necessarily translatable into another. The authors also analyze culture across treatment areas in occupational therapy practice, including mental health and physical disability, with both adults and children. Both beginning and experienced occupational therapists and occupational therapy students will find much valuable information in Occupational Therapy Across Cultural Boundaries. Whether interested in examining occupational therapy’s application to non-Western cultures, or actually contemplating practicing in a different culture, readers will benefit from learning about the experiences of the authors. This unique book is also helpful for occupational therapy students wishing to examine the philosophy of occupational therapy or the significance of culture to human occupation. Professors will find it useful as an ancillary textbook for undergraduate and graduate courses in occupational therapy on topics such as theory, occupation across cultures, or meaningful activity.
Author: Charlotta Plejert Publisher: Multilingual Matters ISBN: 178309768X Category : Medical Languages : en Pages : 239
Book Description
This book brings together international, linguistic research with a focus on interaction in multilingual encounters involving people with dementia in care and healthcare settings. The methodologies used (Conversation Analysis, Ethnography and Discursive Constructionism) capture practices on the micro-level, revealing how very subtle details may be of critical importance for the everyday well-being of participants with dementia, particularly in settings and contexts where there is a lack of a common verbal language of interlocutors, or where language abilities have been lost as a result of dementia. Chapters analyse the practices and actions employed by interlocutors to facilitate mutual understanding, enhance high-quality social relations and assure optimal care and treatment, in spite of language and cognitive difficulties, with an emphasis put on the participants’ remaining capacities, and what can be achieved between people with dementia and their interlocutors in a collaborative fashion. This book goes beyond the study of two-party communication to address multiparty and group interactions which are common in residential care and other healthcare settings and will be of interest to professionals and policy makers as well as to medical sciences and linguistics researchers and students.
Author: Ramon Valle Publisher: Routledge ISBN: 1317763300 Category : Psychology Languages : en Pages : 288
Book Description
Seeking to assist professionals and care providers looking to develop culturally-based techniques for the care of dementia-afflicted elders, this book first presents the need for culturally sensitive care, and then describes how this method of care may be utilized, developed, approved, and evaluated. The book includes numerous case studies, and highlights the authors' model.; Dealing with facets of intercultural practice, Part 1 of the text centres around the professional or provider already engaged or seeking to engage in day-to-day contact with ethnically diverse clientele. The emphasis is on highlighting those skills which serve the practitioner to establish intercultural rapport on their daily cross- ethnic assignments. The central tenet of this section is that the worker's attention has to be on maintaining both the dementia-affected elders' and the ethnic family members' cultural dignity.
Author: Lynn Casteel Harper Publisher: Catapult ISBN: 1948226294 Category : Social Science Languages : en Pages : 126
Book Description
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Author: National Research Council Publisher: National Academies Press ISBN: 0309175569 Category : Social Science Languages : en Pages : 312
Book Description
Older Americans, even the oldest, can now expect to live years longer than those who reached the same ages even a few decades ago. Although survival has improved for all racial and ethnic groups, strong differences persist, both in life expectancy and in the causes of disability and death at older ages. This book examines trends in mortality rates and selected causes of disability (cardiovascular disease, dementia) for older people of different racial and ethnic groups. The determinants of these trends and differences are also investigated, including differences in access to health care and experiences in early life, diet, health behaviors, genetic background, social class, wealth and income. Groups often neglected in analyses of national data, such as the elderly Hispanic and Asian Americans of different origin and immigrant generations, are compared. The volume provides understanding of research bearing on the health status and survival of the fastest-growing segment of the American population.
Author: Dr Shibley Rahman Publisher: Jessica Kingsley Publishers ISBN: 1784507547 Category : Health & Fitness Languages : en Pages : 242
Book Description
To provide high quality dementia care, professionals need to be both knowledgeable about dementia and skilled in the provision of care. This book is an introductory reference guide that will help students, professionals and practitioners develop their skills and expertise to better respond to the needs of people with dementia. It sets out information and advice on essential topics, research and evidence-based practice within dementia care in a clear, sensible way. Based on the standard course structure for higher and further dementia education, this wide-ranging textbook covers topics including dementia diagnosis, person-centred care and law, ethics and safeguarding. The new go-to book for the dementia curriculum, it is an invaluable tool for anyone wishing to improve the required core skills and values needed to care for those affected by dementia.
Author: Jason Karlawish Publisher: St. Martin's Press ISBN: 1250218748 Category : Health & Fitness Languages : en Pages : 269
Book Description
A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Author: Alberto Luis Fernández Publisher: Routledge ISBN: 1000551520 Category : Psychology Languages : en Pages : 150
Book Description
Understanding Cross-Cultural Neuropsychology thoroughly examines the meaning of culture in the context of neuropsychology, focusing on the fundamental neuroscience underlying how different aspects of culture influence neuropsychological test performance, and how that is related to brain function. It explores in detail the relationship between brain activity and culture, and the influence of various cultural, educational, and linguistic factors on neuropsychological test performances across various cognitive domains. Written by leadings researchers in cross-cultural neuropsychology, the book first introduces the basic concepts in the field. It goes on to focus on the influence of cultural variables on specific domains of cognition, including perception, attention, memory, language, and executive functions. It also explores the implications of cross-cultural neuropsychology in practice, including a focus on test adaptation, the use of interpreters, the influence of acculturation, and the practice of neuropsychological rehabilitation in different cultural settings. This book is essential reading for neuropsychologists and related practitioners working with culturally diverse clients, who need a good grasp of the cultural impacts on neuropsychological test performance when assessing clients from different cultural, linguistic, and educational backgrounds. It is also valuable for neuropsychologists in countries around the world who need a means of understanding the ways in which their culture impacts the performances of their clients on tests, which have been mostly developed in the U.S. or other Western cultures.
Author: Mahin Kiwi
Author: Mahin Kiwi
Author: Susan Cook Merrill
Author: Charlotta Plejert
Author: Ramon Valle
Author: Lynn Casteel Harper
Author: National Research Council
Author: Dr Shibley Rahman
Author: Jason Karlawish
Author: Bruce Miller
Author: Alberto Luis Fernández