The Relationships Among Chronicity Impact, Coping Strategies, and the Care Giver Role of Parents Whose Child Has End Stage Renal Disease PDF Download

Author: Diane Bowman Diedrich
Publisher:
ISBN:
Category :
Languages : en
Pages : 194

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Author: Catherine Walsh Olsen
Publisher:
ISBN:
Category : Families
Languages : en
Pages : 158

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Author: Kendra Dianne Koch
Publisher:
ISBN:
Category :
Languages : en
Pages : 228

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Book Description
In 2015, 224 infants in the United States were diagnosed with end-stage renal disease (ESRD). Infants with ESRD often require renal replacement therapy (RRT), commonly known as dialysis, for treatment. Although they are a minute subset of children, like other children with medical complexity (CMC), infants who require renal replacement therapy (RRT) are medically complex and need high levels of professional and home care. Although treatments are proving more promising, infants with ESRD have historically poor outcomes. Medical decision making for parents of infants with end stage renal disease can be a process fraught with conflict, uncertainty, discord, and stress. Questions of which treatment to pursue or whether or not to forego life-sustaining treatment, weigh heavily. Knowing which decision to make is not a simple task. To aid in decision making, healthcare professionals have promoted Shared Decision Making (SDM) as a model, however, the vast majority of individuals who become patients, still are not supported with the SDM model. The SDM model and others have not been adequately studied from the parent and patient perspective. Parents of infants with ESRD and other CMC, are affected emotionally, financially, physically and relationally by the everyday parenting and care of their child. Decision making is another task that increases the burden to caregivers. This dissertation will provide an explanation of the experience of parents making decisions for infants with ESRD, the meaning made for mothers within that experience, situating both in current research. The dissertation the provides the implications of experience and meaning findings--to social work practice, policy, and education. Article 1 describes the experience of mothers, resulting in four essential themes: (a) information and communication are important, (b) I want to give my baby every chance, (c) it's hard to know for certain what to do, and (d) mothers and fathers take different roles in care giving and decision making. Article 2 provides an explanation of the meaning that mothers of infants with ESRD make of their decision making and caregiving experience: 1) Information has its limits, and 2) Mothers pull the load. Understanding the broader experience and meaning of decision-making for parents, and specifically, mothers of infants with CMC, may increase the effectiveness of decision-making techniques, interventions, and tools developed for parent caregivers in the future. In addition this dissertation and the articles included in it provide a close look at author reflexivity in qualitative study as well as a template for studying the broad experience of parent decision makers that includes beginning with experience, adding meaning in order to reveal a practical purpose and meaningful implications for social workers, social work reserachers and other healthcare professionals

Author: Mark A Hardy
Publisher: Routledge
ISBN: 1317765311
Category : Medical
Languages : en
Pages : 240

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This thoughtful new book presents strategies for helping end-stage renal disease patients and their families deal with the psychosocial aspects of the chronic long-term illness. Technological advances in the treatment of this disease have offered much hope for improved quality in living which has led caregivers to have a greater concern for preserving the quality of life of their patients. In Psychosocial Aspects of End-Stage Renal Disease leaders in the field of many disciplines share knowledge and reveal problems that are still evident to them in the confrontation with this potentially fatal illness. Five comprehensive sections devote special attention to the different areas of concern for the psychosocial well-being of end-stage renal disease patients. The impact of renal disease on family relationships is covered by examining issues of family responses and coping measures such as marital and family reactions to home and hospital dialysis treatment. Ethical issues in treatment are explored, including the ethics of treatment refusal and a Jewish perspective on kidney transplants. Relations between staff and patients and a timely section on renal disease and special populations, particularly the elderly and AIDS patients, make up the final two sections of this informative volume. Professionals in all allied health disciplines will benefit from this important volume as it demonstrates a model approach, if not the definitive one, for the treatment of the psychosocial aspects of end-stage renal disease as well as other chronic illnesses.

Author: Susan Jean Ditchett Klein
Publisher:
ISBN:
Category : Adaptability (Psychology)
Languages : en
Pages : 768

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Author: Paraskevi Theofilou
Publisher: Bentham Science Publishers
ISBN: 1608057356
Category : Medical
Languages : en
Pages : 258

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With an increase of the population of elderly people in modern society due to advances in medicine and healthcare facilities, there is also an increase in the incidence and duration of chronic illnesses. Similarly, advanced age is considered a significant determinant of depression and poor quality of life. Additionally, the provision of therapies relevant to chronic diseases addresses the issues beyond the concept of cure, bringing to the center the need for a dignified quality of life of patients. An increased interest in quality of life is observed in patients who suffer from chronic diseases, including those with end-stage kidney disease (ESKD). End-stage kidney disease patients have a high burden of disease affecting their quality of life and dramatically shortening their life expectancy. Therefore, exploring quality of life issues among such patients becomes an essential task in the management of this population. This volume is written by researchers with a well-rounded understanding of the characteristics and impact of ESKD and provides a penetrating practical discussion to date of alternative approaches for comprehensively measuring the burden of end-stage kidney disease. Outcomes Assessment in End-Stage Kidney Disease focuses on the impact of this complex and exacting condition on patients and those that care for them. It also examines the economic impact of ESKD and the healthcare policy implications of this disease. It also brings comprehensive and thoughtful insights into the issues confronted by patients with ESKD to readers interested in nursing or medical caregiving, geriatrics and health psychology.

Author: Maha N. Haddad
Publisher: Springer
ISBN: 3319972200
Category : Medical
Languages : en
Pages : 284

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Book Description
End-stage renal disease is a devastating diagnosis to the patient, family and their care provider. This book covers all aspects of chronic kidney disease from a general description to its psychological impact on the adolescent and lastly its progression to end-stage and dialysis. It details the important aspects of the patient’s journey from diagnosis to their final destination including transplant and discussion of the medications used. It includes chapters on important etiologies of chronic kidney disease in adolescence, addressing the particular challenges a provider may be faced with in caring for this age group, and finally transition of their care to adult care providers. Written by experts in the field of pediatrics and nephrology Adolescents with Chronic Kidney Disease is the definitive resource in diagnosing and transitioning patients with chronic kidney disease.

Author: Bradley A. Warady
Publisher: Springer Science & Business Media
ISBN: 9781402018589
Category : Medical
Languages : en
Pages : 684

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Book Description
The provision of optimal dialysis therapy to children requires a thorough understanding of the multi-disciplinary manner in which the pediatric patient is affected by renal insufficiency. Knowledge of the technical aspects of peritoneal dialysis, hemodialysis and continuous renal replacement therapy must be complemented by attention to issues such as anemia, renal osteodystrophy, hypertension, growth, cognitive development, nutrition, nursing care and the psychosocial adaptation of the child and family to chronic disease. The inaugural edition of Pediatric Dialysis provides a comprehensive review of these and other related topics with a singular emphasis on the unique aspects of their application to children. With authoritative, clinically relevant, well-referenced chapters written by a host of recognized international experts who emphasize key aspects of contemporary management, Pediatric Dialysis has been designed to serve as a primary resource to all clinicians involved in the care of the pediatric dialysis patient.

Author: Ruth Nass, MD
Publisher: Oxford University Press
ISBN: 0199711577
Category : Medical
Languages : en
Pages :

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Book Description
This book provides a detailed account of intellectual, other neuropsychological and behavioral manifestations of general pediatric diseases. The conditions discussed include the whole range of pediatric diseases - genetic syndromes, other congenital conditions, metabolic, endocrine, gastrointestinal, infectious, immunologic, toxic, trauma, and neoplastic, as well as sensory disabilities including deafness and blindness. Although the book is not intended to discuss cognitive and behavioral manifestations of conditions usually considered to be primary neurological disease, some of those, including cerebral palsy, muscular dystrophy, myotonic dystrophy and epilepsy, are included. Where possible, a "translational" approach is used, linking the behavioral and cognitive manifestations of these conditions, to the underlying structural, chemical or genetic abnormalities and their effect on the brain, and, in turn, on behavior and cognition. At the same time, included are significant psychosocial factors. Together, those factors have a major effect on patients' performance, including school performance, and on their families. This book is unique in its extensive coverage of the major pediatric conditions and of the detailed neurological, neuropsychological and behavioral aspects of each condition.

Author: Richard N. Fine
Publisher: Springer Science & Business Media
ISBN: 1461549310
Category : Medical
Languages : en
Pages : 640

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Book Description
During the past quarter century there has been a renaissance of interest in the use of peritoneal dialysis as the primary dialytic modality for the treatment of children with end-stage renal disease (ESRD). The development of continuous ambulatory peritoneal dialysis (APD) has facilitated the provision of prolonged dialysis to infants, children and adolescents and has provided pediatric nephrologists worldwide with a real opportunity to administer effective dialysis therapy to all patients afflicted with ESRD. It has been more than a decade since the initial publication of CAPD/CCPD in Children. In the interim, a great deal of clinical experience with patients receiving peritoneal dialysis has been accumulated and research efforts have substantially increased our understanding of the technique. Therefore, we felt that a second edition of CAPD/CCPD in Children was propitious to update the advances of the past decade.