Confidentiality, Privacy, and Data Protection in Biomedicine PDF Download

Author: Edward S. Dove
Publisher: Taylor & Francis
ISBN: 1040132499
Category : Social Science
Languages : en
Pages : 334

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Book Description
Featuring contributions from leading scholars of health privacy law, this important volume offers insightful reflection on issues such as confidentiality, privacy, and data protection, as well as analysis in how a range of jurisdictions—including the US, the UK, Europe, South Africa, and Australia—navigate a rapidly developing biomedical environment. While the collection of personal health information offers the potential to drive research and innovation, it also generates complex legal and ethical questions in how this information is used to ensure the rights and interests of individuals and communities are respected. But in many ways laws have struggled to keep pace with technological developments. This book therefore seeks to fill a lacuna for legal insight and reflection. Over three parts, the book first explores the conceptual landscape which law and legal institutions must contend, and then turns to examine practical issues such as the GDPR, secondary use of data for research, genomic research, and data trusts. With cutting-edge analysis drawing on domestic and international case law, legislation, and policy, this comprehensive volume will prove fascinating reading for all students and researchers interested in this evolving and contentious area of study.

Author: Cannataro, Mario
Publisher: IGI Global
ISBN: 1605663751
Category : Medical
Languages : en
Pages : 960

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Book Description
"This book provides methodologies and developments of grid technologies applied in different fields of life sciences"--Provided by publisher.

Author: H. D. C. Roscam Abbing
Publisher: Martinus Nijhoff Publishers
ISBN: 9004148221
Category : Law
Languages : en
Pages : 295

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Book Description
In 1997, the Council of Europe established the Convention on Human Rights and Biomedicine. It is generally regarded as an important addition to the general human rights laid down in the European Convention for the Protection of Human Rights and Fundamental Freedoms (1950), in particular with a view to the developments in modern biology and medicine. The Biomedicine Convention, which entered into force in 2000, is a framework treaty, meaning that a number of issues have to be dealt with or will be elaborated in additional Protocols; at this moment, three such Protocols have already been opened for signature. This volume of essays, written in honour of Henriette Roscam Abbing upon her retirement as Professor of Health Law at the University of Utrecht, gives an overview of some of the most important issues raised by the Convention. In six parts, this volume discusses the basic concepts and leading principles; the provision of services; the rights of patients; research; human tissue and genetics; and the implementation of the Convention.

Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309071879
Category : Computers
Languages : en
Pages : 208

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Book Description
The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.

Author: Thierry Vansweevelt
Publisher: Edward Elgar Publishing
ISBN: 1035309432
Category : Law
Languages : en
Pages : 323

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Book Description
This seminal book delivers an international examination of the duty of medical confidentiality and a patient’s right to privacy in the face of contemporary threats such as cyber-security, patient autonomy, and the greater reliance on telemedicine post Covid-19 pandemic.

Author: Nicolas Jacq
Publisher: IOS Press
ISBN: 1586037382
Category : Medical
Languages : en
Pages : 356

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Book Description
The main focus of this publication is on technologies, solutions and requirements that interest the grid and the life-science communities to foster the integration of grids into health. The proceedings are especially interesting for grid middleware and grid application developers, biomedical and health informatics users, and security and policy makers with a common focus on the application in the health domain. Topics in this publication are: State-of-the-art of the grid research and use at molecule, cell, organ, individual and population levels; and security and imaging. In security, data protection and pseudonymization are being discussed. In imaging, there's Globus MEDICUS, which federates DICOM devices through a grid architecture and KnowARC on facilitating grid networks for the biomedical research community. Finally, there's a report on the successful use of multimodal workflows in diabetic retinopathy research.

Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 030948247X
Category : Science
Languages : en
Pages : 103

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Book Description
In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training. International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated dataâ€"this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well. A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domainsâ€"all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.

Author: Matthias Herdegen
Publisher: Edward Elgar Publishing
ISBN: 1035302055
Category : Law
Languages : en
Pages : 219

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Book Description
In this thoroughly updated second edition, Matthias Herdegen provides a comprehensive and contemporary assessment of the regulation of biotechnology processes and products from an international and comparative perspective, complete with analysis of intricate legal and ethical debates.

Author: Sabine Michalowski
Publisher: Routledge
ISBN: 1351918761
Category : Social Science
Languages : en
Pages : 415

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Book Description
Medical confidentiality is universally recognised as a value worth protecting. However, difficulties arise when confidential medical information becomes relevant in the context of crime prevention and criminal prosecution. Should medical confidentiality be upheld where the physician holds information which is essential for the investigation of a serious crime; for establishing the truth in a criminal trial; for an accused’s defence; or for the prevention of a criminal offence? And according to which criteria should such decisions be made? Based on an examination of different approaches in medical ethics and a comparison of the relevant law of France, Germany, England and Wales and the US, this book analyses how a balance of the competing interests can best be struck.

Author: Management Association, Information Resources
Publisher: IGI Global
ISBN: 1799889556
Category : Computers
Languages : en
Pages : 2188

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Book Description
With the immense amount of data that is now available online, security concerns have been an issue from the start, and have grown as new technologies are increasingly integrated in data collection, storage, and transmission. Online cyber threats, cyber terrorism, hacking, and other cybercrimes have begun to take advantage of this information that can be easily accessed if not properly handled. New privacy and security measures have been developed to address this cause for concern and have become an essential area of research within the past few years and into the foreseeable future. The ways in which data is secured and privatized should be discussed in terms of the technologies being used, the methods and models for security that have been developed, and the ways in which risks can be detected, analyzed, and mitigated. The Research Anthology on Privatizing and Securing Data reveals the latest tools and technologies for privatizing and securing data across different technologies and industries. It takes a deeper dive into both risk detection and mitigation, including an analysis of cybercrimes and cyber threats, along with a sharper focus on the technologies and methods being actively implemented and utilized to secure data online. Highlighted topics include information governance and privacy, cybersecurity, data protection, challenges in big data, security threats, and more. This book is essential for data analysts, cybersecurity professionals, data scientists, security analysts, IT specialists, practitioners, researchers, academicians, and students interested in the latest trends and technologies for privatizing and securing data.