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Author: Agency for Healthcare Research and Quality/AHRQ Publisher: Government Printing Office ISBN: 1587634333 Category : Medical Languages : en Pages : 385
Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author: Agency for Healthcare Research and Quality/AHRQ Publisher: Government Printing Office ISBN: 1587634333 Category : Medical Languages : en Pages : 385
Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author: Hsia-Ching Chang Publisher: CRC Press ISBN: 1000065766 Category : Computers Languages : en Pages : 314
Book Description
Information professionals have been paying more attention and putting a greater focus on privacy over cybersecurity. However, the number of both cybersecurity and privacy breach incidents are soaring, which indicates that cybersecurity risks are high and growing. Utilizing cybersecurity awareness training in organizations has been an effective tool to promote a cybersecurity-conscious culture, making individuals more cybersecurity-conscious as well. However, it is unknown if employees’ security behavior at work can be extended to their security behavior at home and personal life. On the one hand, information professionals need to inherit their role as data and information gatekeepers to safeguard data and information assets. On the other hand, information professionals can aid in enabling effective information access and dissemination of cybersecurity knowledge to make users conscious about the cybersecurity and privacy risks that are often hidden in the cyber universe. Cybersecurity for Information Professionals: Concepts and Applications introduces fundamental concepts in cybersecurity and addresses some of the challenges faced by information professionals, librarians, archivists, record managers, students, and professionals in related disciplines. This book is written especially for educators preparing courses in information security, cybersecurity, and the integration of privacy and cybersecurity. The chapters contained in this book present multiple and diverse perspectives from professionals in the field of cybersecurity. They cover such topics as: Information governance and cybersecurity User privacy and security online and the role of information professionals Cybersecurity and social media Healthcare regulations, threats, and their impact on cybersecurity A socio-technical perspective on mobile cybersecurity Cybersecurity in the software development life cycle Data security and privacy Above all, the book addresses the ongoing challenges of cybersecurity. In particular, it explains how information professionals can contribute to long-term workforce development by designing and leading cybersecurity awareness campaigns or cybersecurity hygiene programs to change people’s security behavior.
Author: Erika McCallister Publisher: DIANE Publishing ISBN: 1437934889 Category : Computers Languages : en Pages : 59
Book Description
The escalation of security breaches involving personally identifiable information (PII) has contributed to the loss of millions of records over the past few years. Breaches involving PII are hazardous to both individuals and org. Individual harms may include identity theft, embarrassment, or blackmail. Organ. harms may include a loss of public trust, legal liability, or remediation costs. To protect the confidentiality of PII, org. should use a risk-based approach. This report provides guidelines for a risk-based approach to protecting the confidentiality of PII. The recommend. here are intended primarily for U.S. Fed. gov¿t. agencies and those who conduct business on behalf of the agencies, but other org. may find portions of the publication useful.
Author: Vasileios Pezoulas Publisher: Academic Press ISBN: 0128165596 Category : Science Languages : en Pages : 384
Book Description
Medical Data Sharing, Harmonization and Analytics serves as the basis for understanding the rapidly evolving field of medical data harmonization combined with the latest cloud infrastructures for storing the harmonized (shared) data. Chapters cover the latest research and applications on data sharing and protection in the medical domain, cohort integration through the recent advancements in data harmonization, cloud computing for storing and securing the patient data, and data analytics for effectively processing the harmonized data. - Examines the unmet needs in chronic diseases as a part of medical data sharing - Discusses ethical, legal and privacy issues as part of data protection - Combines data harmonization and big data analytics strategies in shared medical data, along with relevant case studies in chronic diseases
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309124999 Category : Computers Languages : en Pages : 334
Book Description
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Author: Sherri Davidoff Publisher: Addison-Wesley Professional ISBN: 013450772X Category : Business & Economics Languages : en Pages : 552
Book Description
Protect Your Organization Against Massive Data Breaches and Their Consequences Data breaches can be catastrophic, but they remain mysterious because victims don’t want to talk about them. In Data Breaches, world-renowned cybersecurity expert Sherri Davidoff shines a light on these events, offering practical guidance for reducing risk and mitigating consequences. Reflecting extensive personal experience and lessons from the world’s most damaging breaches, Davidoff identifies proven tactics for reducing damage caused by breaches and avoiding common mistakes that cause them to spiral out of control. You’ll learn how to manage data breaches as the true crises they are; minimize reputational damage and legal exposure; address unique challenges associated with health and payment card data; respond to hacktivism, ransomware, and cyber extortion; and prepare for the emerging battlefront of cloud-based breaches. Understand what you need to know about data breaches, the dark web, and markets for stolen data Limit damage by going beyond conventional incident response Navigate high-risk payment card breaches in the context of PCI DSS Assess and mitigate data breach risks associated with vendors and third-party suppliers Manage compliance requirements associated with healthcare and HIPAA Quickly respond to ransomware and data exposure cases Make better decisions about cyber insurance and maximize the value of your policy Reduce cloud risks and properly prepare for cloud-based data breaches Data Breaches is indispensable for everyone involved in breach avoidance or response: executives, managers, IT staff, consultants, investigators, students, and more. Read it before a breach happens! Register your book for convenient access to downloads, updates, and/or corrections as they become available. See inside book for details.
Author: Lillian Ablon Publisher: Rand Corporation ISBN: 0833093126 Category : Business & Economics Languages : en Pages : 79
Book Description
This report sets out the results of a study of consumer attitudes toward data breaches, notifications of those breaches, and company responses to such events.
Author: United States. Department of Justice. Privacy and Civil Liberties Office Publisher: ISBN: Category : Government publications Languages : en Pages : 276
Book Description
The "Overview of the Privacy Act of 1974," prepared by the Department of Justice's Office of Privacy and Civil Liberties (OPCL), is a discussion of the Privacy Act's disclosure prohibition, its access and amendment provisions, and its agency recordkeeping requirements. Tracking the provisions of the Act itself, the Overview provides reference to, and legal analysis of, court decisions interpreting the Act's provisions.
Author: Sen, Devjani Publisher: IGI Global ISBN: 1799834891 Category : Computers Languages : en Pages : 335
Book Description
Health and fitness apps collect various personal information including name, email address, age, height, weight, and in some cases, detailed health information. When using these apps, many users trustfully log everything from diet to sleep patterns. However, by sharing such personal information, end-users may make themselves targets to misuse of this information by unknown third parties, such as insurance companies. Despite the important role of informed consent in the creation of health and fitness applications, the intersection of ethics and information sharing is understudied and is an often-ignored topic during the creation of mobile applications. Privacy Concerns Surrounding Personal Information Sharing on Health and Fitness Mobile Apps is a key reference source that provides research on the dangers of sharing personal information on health and wellness apps, as well as how such information can be used by employers, insurance companies, advertisers, and other third parties. While highlighting topics such as data ethics, privacy management, and information sharing, this publication explores the intersection of ethics and privacy using various quantitative, qualitative, and critical analytic approaches. It is ideally designed for policymakers, software developers, mobile app designers, legal specialists, privacy analysts, data scientists, researchers, academicians, and upper-level students.
Author: Agency for Healthcare Research and Quality/AHRQ
Author: Agency for Healthcare Research and Quality/AHRQ
Author: Hsia-Ching Chang
Author: Erika McCallister
Author: Vasileios Pezoulas
Author: Institute of Medicine
Author: United States. Social Security Administration
Author: Sherri Davidoff
Author: Lillian Ablon
Author: United States. Department of Justice. Privacy and Civil Liberties Office
Author: Sen, Devjani