Before the Diagnosis: Stories of Life and Love Before Dementia PDF Download

Author: Gincy Heins
Publisher: Lulu.com
ISBN: 1387621823
Category : Family & Relationships
Languages : en
Pages : 164

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Book Description
This book is a love story and a labor of love. It is an anthology of stories by 36 authors, each about a relative they have known and loved before that person was diagnosed with Alzheimer's disease or another type of dementia. First and foremost, these stories are about human beings. They are about moms, dads, attorneys, teachers, sailors, dreamers, doers, and lovers. They are about people like you and me; people with hopes and plans for the future who lived, or are still living, a life worth remembering. I hope what you read in these pages touches your life.

Author: Barbara Smith
Publisher: Harmony
ISBN: 0553447122
Category : Biography & Autobiography
Languages : en
Pages : 338

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Book Description
"Working with Vanity Fair contributing editor Michael Shnayerson, B. and her husband Dan share B.'s unfolding story on dealing with early-onset Alzheimer's. Crafted in short chapters that interweave their narrative with ... advice, readers learn in small bites about dealing with Alzheimer's disease's day-to-day challenges, the family tensions, and ways of coping, as well as gain tips on diet and exercise from a lifestyle maven using her decades of expertise in a new and unexpected way"--

Author: Amy Bloom
Publisher: Granta Books
ISBN: 1783788003
Category : Biography & Autobiography
Languages : en
Pages : 183

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Book Description
In January 2020, Amy Bloom travelled with her husband Brian to Switzerland, where he was helped by Dignitas to end his life while Amy sat with him and held his hand. Brian was terminally ill and for the last year of his life Amy had struggled to find a way to support his wish to take control of his death, to not submerge 'into the darkness of an expiring existence'. Written with piercing insight and wit, In Love is Bloom's intimate, authentic and startling account of losing Brian, first slowly to the disease of Alzheimer's, and then on becoming a widow. It charts the anxiety and pain of the process that led them to Dignitas, while never avoiding the complex ethical problems that are raised by assisted death. A poignant love letter to Bloom's husband and a passionate outpouring of grief, In Love reaffirms the power and value of human relationships.

Author:
Publisher:
ISBN:
Category :
Languages : en
Pages :

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Author: Lynn Casteel Harper
Publisher: Catapult
ISBN: 1948226294
Category : Social Science
Languages : en
Pages : 126

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Book Description
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

Author: Gincy Heins
Publisher: Independently Published
ISBN:
Category :
Languages : en
Pages : 0

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Book Description
Worldwide, there are over 55 million people who have been diagnosed with some form of dementia. Whether it is Alzheimer's, Lewy-body, vascular, mild cognitive impairment, or another type, each of these individuals is more than their diagnosis. They are a person with a rich, vibrant history, and people who love them. It is because of this that Before the Diagnosis: More Stories of Life and Love Before Dementia was written. Continuing in the style of Before the Diagnosis: Stories of Life and Love Before Dementia, the stories of the 23 individuals in this book introduce us to more people with a life worth remembering. In the pages of this book, some of the people you'll meet are a well-loved teacher, a shop owner, a good gift-giver, cyclists, parents, spouses, an acupuncturist, a family physician, a marathoner, and an artistic storyteller. Two women who were both young when they were diagnosed with a type of dementia wrote positively about their lives since their diagnoses, with their first-hand accounts bookending the other essays. We all need to remember that people with any type of diagnosis, whether it is a form of dementia or something else entirely, are so much more than their diagnosis. They are people. Remind people they are so much more than a medical condition. Find out about people. Share their story, and share yours as well. I hope you are touched by what you read on the pages of this book. Your purchase of this book supports the work of Alzheimer's Orange County since 100% of the sales of the book are donated to them. You can find out more about the work they do at www.alzoc.org.

Author: Nicci Gerrard
Publisher: Penguin
ISBN: 0525521984
Category : Biography & Autobiography
Languages : en
Pages : 274

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Book Description
From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.

Author: Marianne Sciucco
Publisher: Bunky Press
ISBN: 9780989559201
Category : Alzheimer's disease
Languages : en
Pages : 247

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Book Description
What if the person who knew you best and loved you most forgot your face, and couldn't remember your name? A nursing facility is everyone's solution for what to do about Sara, but her husband, Jack, can't bear to live without her. He is committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer's disease. He and Sara retired years ago to the house of their dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: He and Sara will stay together in their beautiful home no matter what the disease brings. However, after nine years of selfless caregiving, complicated by her progressing Alzheimer's and his own failing heart, he finally admits he can no longer care for her at home. With reluctance, he arranges to admit her to an assisted living facility. But, on the day of admission, Sara is having one of her few good days, and he is unable to follow through. Instead, he takes them on an impulsive journey to confront their past and reclaim their future. In the end, he realizes that staying together at any cost is what truly matters.

Author: Thomas B. Graboys
Publisher: Union Square Press
ISBN: 1402753411
Category : Biography & Autobiography
Languages : en
Pages : 228

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Book Description
Chronicles the author's descent from a top cardiologist to a patient slowly succumbing to Parkinson's disease and dementia, including how he struggles with the feelings he experiences daily and the impact of the diseases in his life.

Author: Jane M Mullins
Publisher: Duetcare
ISBN: 9781999926809
Category :
Languages : en
Pages : 226

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Book Description
'Finding the Light in Dementia: a guide for families, friends and caregivers' is an essential book that explains common changes that can occur in those living with dementia. By offering valuable approaches, tips and suggestions interspersed with individuals' stories, the reader can learn to care for and maintain a connection with their loved one (care partner). Whether you're a spouse, partner, daughter, son, sibling, friend or even a parent caring for a loved one living with dementia, this book is for you. Finding the Light in Dementia will help give you more confidence to care by: Supporting you through your partner's diagnosis of dementia Helping you understand what your partner is experiencing Teaching you ways to communicate and connect with each other Helping you make subtle changes to your home to help your partner feel safe and content Introducing practical and creative ways to stimulate memories to help with day to day living Showing you how to create lifestories together Suggesting ways to keep your partner interested and engaged in meaningful activities Providing tips for sleeping, eating and drinking Suggesting ways to help your partner with their appearance and dignity Showing you ways of overcoming the challenges of changing behaviour, reactions and responses Helping reduce the effects of hallucinations, delusions and misperceptions Suggesting ways for you to care for yourself Involving families and friends Giving advice when considering professional care at home and in residential care Knowing how tired and stressed you may feel, 'Finding the Light in Dementia' is written in bite sized chunks that makes it easy to follow. By giving you space to write down any points you would like to make and providing question sheets for you to refer to when speaking with your doctor and/or legal professionals you can make this your personal guide. When following the approaches in this book, you should find that your partner will feel more understood and you will become calmer thereby helping you both find a sense of connection and continue to live well.