Young Adult Carers in the UK PDF Download

Author: Fiona Becker
Publisher:
ISBN: 9780853582519
Category : Caregivers
Languages : en
Pages : 83

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Author: J. Horsfield
Publisher: Hearts Minds Media
ISBN: 8828322853
Category : Education
Languages : en
Pages : 212

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Book Description
Young adult carers in the North-West UK - Mental health, wellbeing and isolation.

Author: Rachel Harris
Publisher:
ISBN:
Category : Career development
Languages : en
Pages : 33

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Author: Chloe Alexander
Publisher:
ISBN:
Category : Caregivers
Languages : en
Pages : 24

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Author: Cynda Hylton Rushton
Publisher: Oxford University Press
ISBN: 0190619295
Category : Medical
Languages : en
Pages : 321

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Book Description
Suffering is an unavoidable reality in health care. Not only are patients and families suffering but also the clinicians who care for them. Commonly the suffering experienced by clinicians is moral in nature, in part a reflection of the increasing complexity of health care, their roles within it, and the expanding range of available interventions. Moral suffering is the anguish that occurs when the burdens of treatment appear to outweigh the benefits; scarce human and material resources must be allocated; informed consent is incomplete or inadequate; or there are disagreements about goals of treatment among patients, families or clinicians. Each is a source of moral adversity that challenges clinicians' integrity: the inner harmony that arises when their essential values and commitments are aligned with their choices and actions. If moral suffering is unrelieved it can lead to disengagement, burnout, and undermine the quality of clinical care. The most studied response to moral adversity is moral distress. The sources and sequelae of moral distress, one type of moral suffering, have been documented among clinicians across specialties. It is vital to shift the focus to solutions and to expanded individual and system strategies that mitigate the detrimental effects of moral suffering. Moral resilience, the capacity of an individual to restore or sustain integrity in response to moral adversity, offers a path forward. It encompasses capacities aimed at developing self-regulation and self-awareness, buoyancy, moral efficacy, self-stewardship and ultimately personal and relational integrity. Clinicians and healthcare organizations must work together to transform moral suffering by cultivating the individual capacities for moral resilience and designing a new architecture to support ethical practice. Used worldwide for scalable and sustainable change, the Conscious Full Spectrum approach, offers a method to solve problems to support integrity, shift patterns that undermine moral resilience and ethical practice, and source the inner potential of clinicians and leaders to produce meaningful and sustainable results that benefit all.

Author: Feylyn Mercedies Lewis
Publisher:
ISBN:
Category : Child caregivers
Languages : en
Pages : 0

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Book Description
Young adult carers are those individuals aged 18-25 who provide unpaid care, support, and assistance to an ill or disabled family member. While it is understood that young adult carers play an important role in supporting their families, little is known about the effect providing care during youth and young adulthood may have onto a young person's development of identity. Therefore, this doctoral research project sought to understand the potential impact that caring responsibilities may have upon the development of identity for young adult carers living in the United Kingdom and United States. This comparative research utilized 55 qualitative semi-structured interviews from young adult carers in the United Kingdom (27) and United States (28). A thematic analysis was used to highlight themes connected to identity development. One major contribution of this work includes a multidisciplinary approach to its theoretical underpinnings, by drawing from developmental psychology, sociology, and sociolinguistic perspectives to better understand the identity development of young adults with caring responsibilities. Secondly, this work revealed the ways young adults with caring responsibilities opt to engage the socially constructed discourse on young caring through the complex use of language (and specifically, labels and codes). In all, this research study sets the stage for future work on the implications of the social construction of identities in low and advanced young carer awareness country contexts and the meanings it may have on the actual lived experience of young adults with caring responsibilities.

Author: Julia Chisholm
Publisher: Springer
ISBN: 3319661736
Category : Medical
Languages : en
Pages : 260

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Book Description
This book discusses the most important practical aspects involved in providing multidisciplinary Adolescent and Young Adult (AYA) services for cancer patients. It draws on international experience in several continents of establishing and running such services and provides a contemporary, practical approach to AYA care based on accumulated experience. It is of interest to those establishing or seeking to improve AYA services as well as those already caring for AYA cance patients. Among topics discussed are incidence trends and treatment pathways, access to clinical trials for adolescents, transition from pediatric to adult services, psychological support and social care as well as survivorship and fertility. This book is of value of those establishing new services, those developing an existing service and those whose work includes the care of AYA patients. It is an important companion for pediatricians, oncologists as well as other medical, nursing and allied health professionals caring for Adolescents and Yound Adults with cancer.

Author: Aldridge, Jo
Publisher: Policy Press
ISBN: 1847425674
Category : Social Science
Languages : en
Pages : 225

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Book Description
Little is known about the experiences of children living in families affected by severe and enduring mental illness. This is the first in-depth study of children and young people caring for parents affected in this way. Drawing on primary research data collected from 40 families, the book presents the perspectives of children (young carers), their parents and the key professionals in contact with them. Children caring for parents with mental illness makes an invaluable contribution to the growing evidence base on parental mental illness and outcomes for children. It: · is the first research-based text to examine the experiences and needs of children caring for parents with severe mental illness; · provides the perspectives of children, parents and key professionals in contact with these families; · reviews existing medical, social, child protection and young carers literatures on parental mental illness and consequences for children; · provides a chronology and guide to relevant law and policy affecting young carers and parents with severe mental illness; · makes concrete recommendations and suggestions for improving policy and professional practice; · contributes to the growing evidence base on parental mental illness and outcomes for children and families.

Author: William McGovern
Publisher: Emerald Group Publishing
ISBN: 1837531269
Category : Education
Languages : en
Pages : 176

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Book Description
Rooted in actual practice, this collected work identifies the best methodology for creating learning environments that feel both safe and critically stimulating for all involved.

Author: Allison J. Applebaum
Publisher: Oxford University Press
ISBN: 0190868570
Category : Medical
Languages : en
Pages : 377

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Book Description
Informal caregivers - family members, friends, and other loved ones - are an essential, uncompensated and significantly burdened extension of the healthcare team. Rapid advances in cancer care, including new drugs and immunotherapies and more sophisticated diagnostic tools, have markedly improved the ability to medically extend lives and enhance survival. As patients are living longer, with today's shorter hospital stays and shift towards increased outpatient care, however, the demands placed on all caregivers and their needs have substantially increased. Cancer Caregivers reveals the field of Psycho-Oncology's exploration of the depth of complexities of caregiving experiences and identifies the vast expanses left to be understood. This text describes the characteristics and experiences of cancer caregivers based on their life stage, relationship to the patient, and ethnic group membership, as well as patients' disease and treatment type. It highlights the significant progress in research focused on the development and dissemination of psychosocial interventions for cancer caregivers, and includes in-depth case studies to illustrate their delivery and application. The text also explores the provision of support to caregivers in the community and the legal and ethical concerns faced by caregivers throughout the caregiving process. Cancer Caregivers offers both fundamental and practical information and is the essential resource for all healthcare professionals who work with patients and families facing cancer.