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Author: Ada Anbar Publisher: McFarland ISBN: 1476633762 Category : Health & Fitness Languages : en Pages : 211
Book Description
Frontotemporal Degeneration (FTD) is now recognized as one of the most common forms of dementia in individuals under age 65, second only to Alzheimer's. Shedding light on a little known brain disease, this volume examines FTD from a few angles, beginning with the author's insightful memoir of her husband's struggle with FTD and its impact on their family. Detailed background information on the disease is provided along with discussion of related issues, and information on how to minimize the chances of becoming a victim.
Author: Ada Anbar Publisher: McFarland ISBN: 1476633762 Category : Health & Fitness Languages : en Pages : 211
Book Description
Frontotemporal Degeneration (FTD) is now recognized as one of the most common forms of dementia in individuals under age 65, second only to Alzheimer's. Shedding light on a little known brain disease, this volume examines FTD from a few angles, beginning with the author's insightful memoir of her husband's struggle with FTD and its impact on their family. Detailed background information on the disease is provided along with discussion of related issues, and information on how to minimize the chances of becoming a victim.
Author: Nicci Gerrard Publisher: Penguin ISBN: 0525521984 Category : Biography & Autobiography Languages : en Pages : 274
Book Description
From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.
Author: Scott M. Rose Publisher: ISBN: 9781736820346 Category : Medical Languages : en Pages : 420
Book Description
This memoir shares the early, troubled years of the author's wife and transitions to their first meeting, relationship, and marriage. A woman with low self-esteem found courage, comfort, and support and dared to dream again. Friends and family often referred to their marriage as a romance meant to be. Frontotemporal Dementia, FTD, interrupted that love story. The author devotedly cared for his wife until her passing. He weaves in journals, letters, and posts and lays bare their life through her incurable disease. Throughout much of the book, the author offers dementia mileposts, tips, and observations to assist those struggling in their own journeys. While dementia will differ person to person, many will find similarities to their own experiences. The book serves two purposes as both an aid to those in a dementia care partner role but also as a love story.
Author: Pauline Boss Publisher: John Wiley & Sons ISBN: 1118077288 Category : Psychology Languages : en Pages : 256
Book Description
Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
Author: Amy Bloom Publisher: Random House ISBN: 0593243943 Category : Biography & Autobiography Languages : en Pages : 241
Book Description
NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.
Author: Deborah G. Thelwell Publisher: Createspace Independent Publishing Platform ISBN: 9781495406195 Category : Dementia Languages : en Pages : 0
Book Description
The Dance is a lively memoir of a couple's five-year journey through a little-known, non-Alzheimer's dementia -Frontotemporal Degeneration (FTD). Deborah and Alan's story is told with honesty, humor and love. The Dance illustrates of how the 'normality' of Deborah and Alan's life was stolen away by FTD. They danced together for almost thirty-eight years until Alan's death in 2012. How they handled this challenge together and with the help of their family and friends shines some light on this uncommonly diagnosed disease. FTD strikes men and women from the age of 35 onwards. It is most commonly diagnosed from age 50 onwards but has been seen in people as young as 20 and as old as 80. It is often accompanied by physical conditions such as Motor Neuron Disease or ALS (Lou Gehrig's disease). The average time between diagnosis and death is between four and ten years. Added to the pain of dealing with an untreatable, incurable illness is the loss of person, insight, and empathy for others. The grieving begins long before physical death. Further information on FTD can be found at www.theaftd.org
Author: Sally Hepworth Publisher: St. Martin's Press ISBN: 146685264X Category : Fiction Languages : en Pages : 351
Book Description
With huge heart, humor, and a compassionate understanding of human nature, Sally Hepworth delivers a page-turning novel about the power of love to grow and endure even when faced with the most devastating of obstacles. You won’t forget The Things We Keep. Anna Forster is only thirty-eight years old, but her mind is slowly slipping away from her. Armed only with her keen wit and sharp-eyed determination, she knows that her family is doing what they believe to be best when they take her to Rosalind House, an assisted living facility. But Anna has a secret: she does not plan on staying. She also knows there's just one another resident who is her age, Luke. What she does not expect is the love that blossoms between her and Luke even as she resists her new life. As her disease steals more and more of her memory, Anna fights to hold on to what she knows, including her relationship with Luke. Eve Bennett, suddenly thrust into the role of single mother to her bright and vivacious seven-year-old daughter, finds herself putting her culinary training to use at Rosalind house. When she meets Anna and Luke, she is moved by the bond the pair has forged. But when a tragic incident leads Anna's and Luke's families to separate them, Eve finds herself questioning what she is willing to risk to help them. Eve has her own secrets, and her own desperate circumstances that raise the stakes even higher.
Author: Mary Ann Drummond Publisher: Morgan James Publishing ISBN: 1683509595 Category : Medical Languages : en Pages : 140
Book Description
Me Where I Am provides knowledge and essential tools to lovingly, confidently and, above all, successfully care for those who live with Alzheimer’s and related dementias. Over 5 million Americans currently live with Alzheimer’s disease. Along with them, 15 million unpaid caregivers seek knowledge and resources to assist them in the journey. The unique care principles found in Meet Me Where I Am help mitigate depression, decrease anxiety, and allow for successful relationships as long as possible in the dementia journey. Mary Ann Drummond, RN credits her unique care philosophy to the greatest teachers of all—the many individuals living with Alzheimer’s and related dementias she has had the pleasure of caring for over the years. Imbuing practical tips with wisdom, respect, and sensibility, Drummond comes full circle by sharing what happened when her own mentor fell prey to the disease. Meet Me Where I Am is a road map that teaches caregivers how to focus on the possibilities, discover the joy in the journey, and prepare for the road ahead.
Author: Ada Anbar
Author: Ada Anbar
Author: Nicci Gerrard
Author: Scott M. Rose
Author: Pauline Boss
Author: Amy Bloom
Author: Joy A. Glenner
Author: Deborah G. Thelwell
Author: Sally Hepworth
Author: Mary Ann Drummond
Author: Cathy Greenblat