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Author: Mary Kalfoss Publisher: Cambridge Scholars Publishing ISBN: 1527520374 Category : Psychology Languages : en Pages : 227
Book Description
This book describes what it is like to embody chaos and liminality in living with a physical chronic illness and how these experiences are related to the loss and remaking of one’s sense of self. It also encourages readers to listen closely to the figurative language people use in trying to articulate the unspeakable. Focusing upon a wide array of narrative fragments gathered from first-person literary work and research, the author portrays how a conglomerate of sensations, feelings, and thoughts are embodied in the illness experience. The voices present in this text speak of vulnerability, suffering, and brokenness, yet also, endurance and fortitude. The ethics of philosopher Emmanuel Levinas provide the grounds for offering care lovingly. This book makes a significant contribution to helping students, practitioners and carers understand the chaos that is inherent, yet so often silenced, in the illness experience. This text could also be of interest to laypeople who are curious about how subjective illness is experienced, and to those who are ill who may be seeking affirmation for what they are experiencing.
Author: Mary Kalfoss Publisher: Cambridge Scholars Publishing ISBN: 1527520374 Category : Psychology Languages : en Pages : 227
Book Description
This book describes what it is like to embody chaos and liminality in living with a physical chronic illness and how these experiences are related to the loss and remaking of one’s sense of self. It also encourages readers to listen closely to the figurative language people use in trying to articulate the unspeakable. Focusing upon a wide array of narrative fragments gathered from first-person literary work and research, the author portrays how a conglomerate of sensations, feelings, and thoughts are embodied in the illness experience. The voices present in this text speak of vulnerability, suffering, and brokenness, yet also, endurance and fortitude. The ethics of philosopher Emmanuel Levinas provide the grounds for offering care lovingly. This book makes a significant contribution to helping students, practitioners and carers understand the chaos that is inherent, yet so often silenced, in the illness experience. This text could also be of interest to laypeople who are curious about how subjective illness is experienced, and to those who are ill who may be seeking affirmation for what they are experiencing.
Author: Kristen O'Neal Publisher: National Geographic Books ISBN: 1683693078 Category : Young Adult Fiction Languages : en Pages : 0
Book Description
“Emotional, thoughtful, and a true testament to the power of friendship”—Locus Magazine Teen Wolf meets Emergency Contact in this sharply observed, hilarious, and heartwarming debut young adult novel about friendship, chronic illness, and . . . werewolves. Priya worked hard to pursue her premed dreams at Stanford, but the fallout from undiagnosed Lyme disease sends her back to her childhood home in New Jersey during her sophomore year—and leaves her wondering if she’ll ever be able to return to the way things were. Thankfully she has her online pen pal, Brigid, and the rest of the members of “oof ouch my bones,” a virtual support group that meets on Discord to crack jokes and vent about their own chronic illnesses. When Brigid suddenly goes offline, Priya does something out of character: she steals the family car and drives to Pennsylvania to check on Brigid. Priya isn’t sure what to expect, but it isn’t the horrifying creature that's shut in the basement. With Brigid nowhere to be found, Priya begins to puzzle together an impossible but obvious truth: the creature might be a werewolf—and the werewolf might be Brigid. As Brigid's unique condition worsens, their friendship will be deepened and challenged in unexpected ways, forcing them to reckon with their own ideas of what it means to be normal.
Author: Marisa Zeppieri Publisher: Broadleaf Books ISBN: 1506464114 Category : Health & Fitness Languages : en Pages : 209
Book Description
When Marisa Zeppieri was 22-years-old she found herself face-to-face with a raven-haired elderly woman who had emerged from a crowd and gently taken her hands: God will use these hands to change people's lives.Years later Marisa's once-spirited demeanor was shrouded in anger and bitterness. Triggered first by a near-fatal car accident that sent her 100-lb body flying from a crosswalk and later by a painful Lupus diagnosis, she became stuck in a season of brokenness.But in the seasons that followed, an insatiable emotional, spiritual, and physical hunger took over: She learned how to nourish her broken body with the help of food, herbs, and a gastronomically-gifted Italian grandmother, while also nourishing her broken heart and crushed spirit through a deeper relationship with God.With Chronically Fabulous, Marisa fulfills the old woman's prophecy by offering pure nourishment to those of us living with chronic illness, helping us create wholeness and well-being through a love of food. Here, the founder of LupusChick, a nonprofit supporting those with autoimmune diseases, offers guiding principles, personal stories, and recipes that support whole-life thriving. With the depth, smarts, and spiritual advice beloved by her dedicated followers, Marisa shows us how faith, passion, and persistence can radically change our lives.
Author: Tessa Miller Publisher: Henry Holt and Company ISBN: 1250751462 Category : Biography & Autobiography Languages : en Pages : 240
Book Description
"Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.
Author: Peggy Munson Publisher: Routledge ISBN: 1135411743 Category : Medical Languages : en Pages : 297
Book Description
Develop a better understanding of what CFS/CFIDS sufferers are going through!In the 1980s, a strange emerging epidemic baffled doctors in Incline Village, Nevada. Dismissed by the media as “The Yuppie Flu,” Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) turned out to be neither a faddish disease of the wealthy nor a passing trend, but rather a growing worldwide epidemic of devastating proportions.In the voices of a South African journalist, a former marathon runner, a teenage girl, a public health activist living on the edge of race and gender, a cancer patient neglected by doctors because of disdain for her chronic illness, and a theologian relearning the art of spiritual empathy, the people who share their stories in Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome defy cultural stereotypes and explore the complex social and political dynamics of this hidden epidemic. Through their distinct points of view, we feel the grief and hope of those stricken with CFIDS and learn of the complex nature of this misunderstood disorder. These are compelling stories about a quiet and baffling epidemic. The first American anthology to contain stories from a diverse range of people with CFIDS, Stricken offers an intimate look at the political and social issues surrounding CFIDS, as told by those who are living through this ordeal. Stricken addresses several issues, such as: why some doctors still do not believe CFIDS is real how the disease is mocked in the media myths about this illness the personal fight for medical or public recognition the skepticism and hope that is felt by the ever-growing number of CFIDS sufferers Stricken confronts fascinating CFIDS issues such as the Kevorkian suicides, accusations of Munchausen Syndrome By Proxy, Gulf War Syndrome, the role of storytelling in a memory-impaired patient movement, and the feasibility of mass activism in a disabled population. With contributions from Pulitzer-prize nominated writer Susan Griffin, renowned health writer and radio host Gary Null, well-known feminist activist Joan Nestle, and award-winning poet and essayist Floyd Skloot, Stricken is an eloquent testament to the heroism, defiance, and diversity of the CFIDS community.
Author: Laurie Edwards Publisher: Bloomsbury Publishing USA ISBN: 0802779735 Category : Family & Relationships Languages : en Pages : 288
Book Description
Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.
Author: Sarah Ramey Publisher: Anchor ISBN: 030774194X Category : Biography & Autobiography Languages : en Pages : 434
Book Description
The darkly funny memoir of Sarah Ramey’s years-long battle with a mysterious illness that doctors thought was all in her head—but wasn’t. In her harrowing, darkly funny, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions—autoimmune illnesses, fibromyalgia and chronic fatigue syndrome, chronic Lyme disease, chronic pain, and many more. Ramey's pursuit of a diagnosis and cure for her own mysterious illness becomes a page-turning medical mystery that reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connections to the state of our microbiomes. Her book will open eyes, change lives, and, ultimately, change medicine. The Lady's Handbook for Her Mysterious Illness is a revelation and an inspiration for millions of women whose legitimate health complaints are ignored.
Author: Robbins, John Publisher: Conari Press ISBN: 1573246247 Category : Health & Fitness Languages : en Pages : 290
Book Description
Did you know that: More than 80% of the foods you eat in restaurants and buy at supermarkets contain genetically engineered ingredients, and that these ingredients have been linked to toxic and allergic reactions in people; sickness, sterility, and fatalities in livestock; and damage to virtually every organ studied in lab animals?If you don't count French fries, ketchup or pizza as vegetables, more than half of Americans eat no vegetables at all?Cows raised for meat are impacting our climate more than cars?It’s possible to be a positive food revolutionary without sounding like a self-righteous nag? Join John and Ocean Robbins for 21 intimate, game-changing conversations with some of the world’s leading “food revolutionaries”: scientists, doctors, teachers, farmers, economists, activists, and nutritionists working on food issues today. Introduced and with commentary by John Robbins and his son Ocean, the book features luminaries such as: Dean Ornish, MD, on his years-in-the-making breakthrough with Medicare (his program for healing heart disease is now covered)Kathy Freston on making incremental, manageable changes to how we eatT. Colin Campbell, PhD, (author of the famed China Study) with the latest research on animal protein and human healthJoel Fuhrman, MD (author of the bestselling Eat to Live), on achieving excellent health through dietCaldwell Esselstyn, MD, of the Cleveland Clinic on wiping out heart disease by changing what we eatVandana Shiva, PhD, on GMOs and Big AgRory Freedman on how to stop eating misery and start looking fabulousRaj Patel on building a saner global food policy Each contributor discusses his or her work in depth, but together they make one rallying cry: for a healthy, sustainable, humane, and delicious revolution in how we and the world are fed. Over twenty-five years ago John Robbins started a revolution. This book is proof of how far we’ve come, a fascinating look behind the scenes of the multi-faceted food movement, and a call to join in the work of ensuring our health and food future.
Author: Toni Bernhard Publisher: Simon and Schuster ISBN: 0861719263 Category : Self-Help Languages : en Pages : 217
Book Description
This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.
Author: Arthur W. Frank Publisher: University of Chicago Press ISBN: 022606736X Category : Literary Criticism Languages : en Pages : 280
Book Description
Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today
Author: Mary Kalfoss
Author: Mary Kalfoss
Author: Kristen O'Neal
Author: Marisa Zeppieri
Author: Tessa Miller
Author: Peggy Munson
Author: Laurie Edwards
Author: Sarah Ramey
Author: Robbins, John
Author: Toni Bernhard
Author: Arthur W. Frank