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Author: Heather Michelle Babyar Publisher: ISBN: Category : Chronically ill children Languages : en Pages : 137
Book Description
The role of social media in the relationship between social support and adherence in children with cystic fibrosis Although person-to-person contact between CF patients is discouraged, the World Wide Web represents a relatively new source of health information and support available online. With this increased access to social networking sites, it is possible for young people with CF to seek out social support online as person-to-person contact is discouraged. The present study aims to examine the social network use of adolescent and young adults with CF regarding social support and explore how social network experiences/exposure affects health related behaviors. In order to describe how social support appears in the context of individuals' communications on CF social networking websites, we developed a detailed code sheet to capture relevant details of the message threads on a CF specific social networking group website. For remaining study hypotheses, we recruited 60 individuals with CF between the ages of 13-25 and parents (for those participants under the age of 18) for participation at Akron Children's Hospital CF clinic (30%) or through an online website link posted on CF specific social networking web pages (70%). Results of this study demonstrate that increased social support, especially from family members, contributes to IC adherence. These findings highlight the importance of providing interventions aimed at increasing family social support in order to improve adherence behaviors. Overall, this study is one of the first to investigate how individuals with CF make use of the social networking sites and how they incorporate information from these sites into their lives and complex medical and infection control adherence routines.
Author: Heather Michelle Babyar Publisher: ISBN: Category : Chronically ill children Languages : en Pages : 137
Book Description
The role of social media in the relationship between social support and adherence in children with cystic fibrosis Although person-to-person contact between CF patients is discouraged, the World Wide Web represents a relatively new source of health information and support available online. With this increased access to social networking sites, it is possible for young people with CF to seek out social support online as person-to-person contact is discouraged. The present study aims to examine the social network use of adolescent and young adults with CF regarding social support and explore how social network experiences/exposure affects health related behaviors. In order to describe how social support appears in the context of individuals' communications on CF social networking websites, we developed a detailed code sheet to capture relevant details of the message threads on a CF specific social networking group website. For remaining study hypotheses, we recruited 60 individuals with CF between the ages of 13-25 and parents (for those participants under the age of 18) for participation at Akron Children's Hospital CF clinic (30%) or through an online website link posted on CF specific social networking web pages (70%). Results of this study demonstrate that increased social support, especially from family members, contributes to IC adherence. These findings highlight the importance of providing interventions aimed at increasing family social support in order to improve adherence behaviors. Overall, this study is one of the first to investigate how individuals with CF make use of the social networking sites and how they incorporate information from these sites into their lives and complex medical and infection control adherence routines.
Author: Hayden B. Bosworth Publisher: Psychology Press ISBN: 1135616434 Category : Medical Languages : en Pages : 697
Book Description
This new book summarizes the adherence literature for a number of specific health behaviors and populations. It provides a comprehensive source on the conceptualization, interventions, and measurement of treatment adherence and a synthesis of the research across demographic and chronic diseases. The text presents problems associated with treatment adherence; theoretical models that have commonly been used to understand, predict, and/or improve adherence; adherence with specific behaviors including exercise, diet, rehabilitation, medication, and psychological therapies; and strategies in enhancing adherence. Because chronic diseases involve similar behaviors, the handbook is organized by specific behaviors and special populations, and not by disease. Every chapter is sub-organized by specific diseases to ensure easy access for the readers and features a discussion of adherence across demographic and chronic conditions, a review of previous interventions directed at the particular behavior or population, questions and scoring algorithms for widely used measures of treatment adherence, a discussion of the clinical research, and where appropriate, policy implications. Patient Treatment Adherence addresses: practical recommendations to improve adherence; the impact of non-adherence including costs and health-related quality of life; methodological issues such as assessing cost-effectiveness; and the use of technological advances to improve adherence. Intended for health service professionals, health, clinical, social, and cognitive psychologists, primary care physicians, pharmacists, and policy-makers, this text is also an excellent resource for graduate courses on health psychology and public health.
Author: Marcus A. Mall Publisher: European Respiratory Society ISBN: 1849840512 Category : Medical Languages : en Pages : 342
Book Description
Cystic fibrosis (CF) is one of the most common fatal hereditary diseases. The discovery of the cystic fibrosis transmembrane conductance regulator (CFTR) gene 25 years ago set the stage for unraveling the pathogenesis of CF lung disease, continuous refinement of symptomatic treatments and the development of mutation-specific therapies, which are now becoming available for a subgroup of patients. This ERS Monograph provides an update on all aspects of CF lung disease, from infancy to adulthood, including current concepts on disease process, improvements in early diagnosis and monitoring, therapeutic approaches, and patient care. The book highlights important recent developments and discusses the next steps that will be required for further improvement of the life expectancy and quality of life of CF patients. It will be an essential reference for basic and clinical scientists and all members of the CF team.
Author: Susan Michie Publisher: ISBN: 9781912141005 Category : Behavior modification Languages : en Pages : 329
Book Description
Designing Interventions' brings together theory-based tools developed in behavioural science to understand and change behaviour to form a step-by-step intervention design manual. This book is for anyone with an interest in changing behaviour regardless of whether they have a background in behavioural science.
Author: Andrew Bush Publisher: CRC Press ISBN: 1444180010 Category : Medical Languages : en Pages : 675
Book Description
Hodson and Geddes' Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This international and authoritative work brings together current knowledge and has become established in previous editions as a leading reference in the field. This fourth edition includes a wealth of new information, figures, useful videos, and a companion eBook. The basic science that underlies the disease and its progression is outlined in detail and put into a clinical context. Diagnostic and clinical aspects are covered in depth, as well as promising advances such as gene therapies and other novel molecular based treatments. Patient monitoring and the importance of multidisciplinary care are also emphasized. This edition: Features accessible sections reflecting the multidisciplinary nature of the cystic fibrosis care team Contains a chapter written by patients and families about their experiences with the disease Includes expanded coverage of clinical areas, including chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues Discusses management both in the hospital and at home Includes a new section on monitoring and discusses the use of databases to improve patient care Covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas Includes chapters devoted to nursing, physiotherapy, psychology, and palliative and spiritual care Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic science aspects of the subject and reflecting the multidisciplinary nature of the cystic fibrosis care team.
Author: Margaret Hodson Publisher: CRC Press ISBN: 0340907584 Category : Medical Languages : en Pages : 524
Book Description
This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000. Cystic Fibrosis evaluates in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multi-disciplinary care, reflected in the sections into which the new edition has been sub-divided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care. Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosiswill continue to find a broad readership among respiratory physicians, paediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.
Author: Leslie R. Martin Publisher: Oxford University Press ISBN: 0199795835 Category : Health & Fitness Languages : en Pages : 536
Book Description
This edited volume brings together top-notch scientists and practitioners to illustrate intersections between health communication, behavior change, and treatment adherence.
Author: Craig A. Williams Publisher: Routledge ISBN: 1000448770 Category : Health & Fitness Languages : en Pages : 235
Book Description
It is commonly accepted that "exercise is good for children" but, considering the number of children worldwide exercising, we know comparatively little, compared to adults, about how specific mechanisms influence health and sports performance. There are considerable obstacles that challenge the progress of paediatric research, not least in relation to ethical and methodological considerations. Therefore, advances in the science and clinical application of paediatric exercise physiology, psychology and biomechanics have not reached their potential. Paediatric clinical exercise physiology has application to the role of exercise in the assessment and treatment of paediatric chronic diseases, the utilization of physical activity in preventing illness and enhancing wellbeing and can enhance our understanding of how sports can be made safer and more enjoyable for our young athletes. Exercise and Respiratory Diseases in Paediatrics highlights research by various methodologies, including literature reviews, experimental research and innovations, applied to children and adolescents with respiratory diseases. Chronic conditions such as asthma, bronchiectasis (e.g., cystic fibrosis), and those associated with prematurity and medical complexity are worldwide health problems for young people and although management includes pharmaceutical medications, physiotherapy, nutritional and psychological support, exercise has a role in optimising multidisciplinary care. There has been unprecedented acceleration in new technologies and methodologies that promise to facilitate paediatric research and these are explained and discussed as future research directions. This is reading for post graduate students, researchers, academics and policy makers within the field of paediatric healthcare, physical activity, physiology and the related disciplines.
Author: Thomas P. Gullotta Publisher: Springer Science & Business Media ISBN: 9780306472961 Category : Medical Languages : en Pages : 1204
Book Description
Foundational topics such as history, ethics, and principles of primary prevention, as well as specific issues such as consultation, political issues, and financing. The second section addresses such topics as abuse, depression, eating disorders, HIV/AIDS, injuries, and religion and spirituality often dividing such topics into separate entries addressing childhood, adolescence, and adulthood.
Author: Heather Michelle Babyar
Author: Heather Michelle Babyar
Author: Hayden B. Bosworth
Author: Marcus A. Mall
Author: Susan Michie
Author: Andrew Bush
Author: Margaret Hodson
Author: Leslie R. Martin
Author: Malek Bajbouj
Author: Craig A. Williams
Author: Thomas P. Gullotta