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Author: Myra Bluebond-Langner Publisher: Princeton University Press ISBN: 0691213089 Category : Social Science Languages : en Pages : 298
Book Description
Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Author: Myra Bluebond-Langner Publisher: Princeton University Press ISBN: 0691213089 Category : Social Science Languages : en Pages : 298
Book Description
Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Author: Judith Bertoia Publisher: Routledge ISBN: 1317649982 Category : Psychology Languages : en Pages : 161
Book Description
Does a dying child understand death? How can we help children who are dying? Originally published in 1993, this book concerns a young girl, Rachel, terminally ill with leukaemia. The book describes a series of drawings she made and shows how they reveal her inner experience, how she became fully aware that she was dying and even came to accept death. The result is a moving and informative story that will be invaluable to caregivers and families with a dying child. It provides new understanding of the experience of a dying child and suggests practical strategies for coping.
Author: Cynthia Comacchio Publisher: McGill-Queen's Press - MQUP ISBN: 077357767X Category : Medical Languages : en Pages : 546
Book Description
Essays range from historical overviews and historiographic surveys of children's health in various regions of the world, to disability and affliction narratives - from polio in North American to AIDS orphans in post-Apartheid South Africa - to interpretations of artistic renderings of sick children that tell us much about medicine, family, and society at specific times in history.
Author: Justin Amery Publisher: ISBN: 0199567964 Category : Family & Relationships Languages : en Pages : 448
Book Description
Childen's palliative care has developed rapidly as a discipline, as health care professionals recognize that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, where the scale of the problem is overwhelming, and the figures so enormous that they are barely comprehensible: over 400,000 children in Africa died from AIDS in 2003, and out of the 166,000 children a year diagnosed with cancer, 85% of these are in the developing world. Despite the enormous need, provision of children's palliative care in Africa is almost non-existent, with very few health workers trained and confident to provide care for dying children. The challenges of providing palliative care in this setting are different to those in more developed countries, contending with the shortage of physical and human resources in addition to the vast scope of the care needed. Written by a group with wide experience of caring for dying children in Africa, this book provides practical, realistic guidance by improving access to, and delivery of, palliative care in this demanding setting. It looks at the themes common to palliative care--including communication, assessment, symptom management, psychosocial issues, ethical dilemmas, end of life care, and tips for the professional on compassion and conservation of energy--but always retains the focus on the particular needs of the health care professional in Africa. While containing some theory, the emphasis is on practical action throughout the book. Children's Palliative Care in Africa provides health care professionals working in Africa, and other resource-poor settings, with the confidence, knowledge, and capacity to improve care for the terminally ill child in constrained and demanding environments.
Author: Alison M. Rodriguez Publisher: Taylor & Francis ISBN: 1000865657 Category : Health & Fitness Languages : en Pages : 215
Book Description
Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the ‘good death’ or ‘dying well’, grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences. The book will be beneficial to the students of, and individuals interested in, psychology and nursing along with other health and social care courses. It will further be of interest to individuals interested in gaining more understanding of the experiential aspects of death, dying and palliative care in children and young people from health psychology perspectives.
Author: John Swinton Publisher: Wm. B. Eerdmans Publishing ISBN: 1467441341 Category : Religion Languages : en Pages : 313
Book Description
Living Well and Dying Faithfully explores how Christian practices — love, prayer, lament, compassion, and so on — can contribute to the process of dying well. Working on the premise that one dies the way one lives, the book is unique in its constructive dialogue between theology and medicine as offering two complementary modes of care.
Author: Dietrich Niethammer Publisher: JHU Press ISBN: 1421404567 Category : Medical Languages : en Pages : 236
Book Description
Niethammer, a prominent paediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease. The question at the heart of this book is how children and adolescents feel and think about death and dying.
Author: Richard Hain Publisher: Oxford University Press ISBN: 0192554549 Category : Medical Languages : en Pages : 1269
Book Description
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Author: Michael Morpurgo Publisher: Bloomsbury Publishing ISBN: 1849435715 Category : Drama Languages : en Pages : 61
Book Description
Private Peaceful relives the life of Private Tommo Peaceful, a young First World War soldier awaiting the firing squad at dawn. During the night he looks back at his short but joyful past growing up in rural Devon: his exciting first days at school; the accident in the forest that killed his father; his adventures with Molly, the love of his life; and the battles and injustices of war that brought him to the front line. Winner of the Blue Peter Book of the Year, Private Peaceful is by the third Children's Laureate, Michael Morpurgo, award-winning author of War Horse. His inspiration came from a visit to Ypres where he was shocked to discover how many young soldiers were court-martialled and shot for cowardice during the First World War. This edition also includes introductory essays by Michael Morpurgo, Associate Director of Private Peaceful production Mark Leipacher, as well as an essay from Simon Reade, adaptor & director of this stage adaptation of Private Peaceful.
Author: Robyn Boeré Publisher: Augsburg Fortress Publishers ISBN: 1506481833 Category : Children and death Languages : en Pages : 244
Book Description
Befriending the North Wind is about the moral lives of children and their agency in decisions about death. It examines the dimensions of human meaning children reveal and the new horizons they open to us. It asserts that children can die a good death and that they can and should have a voice in their end-of-life care.
Author: Myra Bluebond-Langner
Author: Myra Bluebond-Langner
Author: Judith Bertoia
Author: Cynthia Comacchio
Author: Justin Amery
Author: Alison M. Rodriguez
Author: John Swinton
Author: Dietrich Niethammer
Author: Richard Hain
Author: Michael Morpurgo
Author: Robyn Boeré