Author: Cynthia S. HenryPublisher: Jayjo Books
ISBN: 9781891383090
Category : Cystic fibrosis in children
Languages : en
Pages : 0
Book Description
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Taking Cystic Fibrosis to School
Author: Cynthia S. HenryPublisher: Jayjo Books
ISBN: 9781891383090
Category : Cystic fibrosis in children
Languages : en
Pages : 0
Book Description
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Cystic Fibrosis
Author: David M. OrensteinPublisher: Lippincott Williams & Wilkins
ISBN: 1451154380
Category : Medical
Languages : en
Pages : 788
Book Description
This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Cystic Fibrosis and School
Author: Jane PriceSchool Problems of Children with Cystic Fibrosis
Author: Esther E. SimpsonSalt in My Soul
Author: Mallory SmithPublisher: Random House
ISBN: 1984855433
Category : Biography & Autobiography
Languages : en
Pages : 336
Book Description
The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Mallory's 65 Roses
Author: Diane Shader SmithPublisher:
ISBN: 9780970035301
Category : Cystic fibrosis
Languages : en
Pages : 24
Book Description
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Your Cystic Fibrosis Child at School
Author: Heather HarstonSchool Problems of Children with Cystic Fibrosis
Author: Esther Eleanor SimpsonPublisher:
ISBN:
Category : Cystic fibrosis
Languages : en
Pages : 2
Book Description
Defining and Managing Cystic Fibrosis
Author: Denise Marie Bleuher AngstPublisher:
ISBN:
Category :
Languages : en
Pages : 414
Book Description
Cystic Fibrosis
Author: Stephanie Duggins DavisPublisher: Springer Nature
ISBN: 3030423824
Category : Medical
Languages : en
Pages : 525
Book Description
This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.