Supporting Families who Care for Severely Disabled Children at Home PDF Download

Author: Susan Cina
Publisher:
ISBN:
Category : Family & Relationships
Languages : en
Pages : 176

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Book Description

Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309388570
Category : Social Science
Languages : en
Pages : 525

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Book Description
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Author: Rosemary Tozer
Publisher: Jessica Kingsley Publishers
ISBN: 190796956X
Category : Social Science
Languages : en
Pages : 76

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Book Description
This book is based on the findings of a qualitative study of 24 families who each had two or more severely disabled children. Family life was explored, and particular difficulties, needs and strategies for managing day-to-day care were identified. With 'practice points' at the end of each chapter, this book will make informative reading for social services and health professionals, teachers and others working with disabled children and their families, as well as for those planning services and making policies which impact on them.

Author:
Publisher:
ISBN:
Category : Developmentally disabled
Languages : en
Pages : 16

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Book Description

Author: Bryony Beresford
Publisher:
ISBN: 9780117018372
Category : Children with disabilities
Languages : en
Pages : 125

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Book Description
How do parents cope with the daily hassles and long-term strains of caring for a disabled child? How important are support networks for these parents? Do services help or hinder the coping process? These are some of the questions being voiced by practitioners, researchers, lay people and even parents themselves about families who are caring for and bringing up a disabled child.

Author: Ronda Hughes
Publisher: Department of Health and Human Services
ISBN:
Category : Medical
Languages : en
Pages : 592

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Book Description
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Author: Mian Wang
Publisher: Oxford University Press
ISBN: 019974307X
Category : Medical
Languages : en
Pages : 377

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Book Description
This book reviews the intervention literature on practices for supporting families of children with intellectual disabilities or autism and evaluates their status as evidence-based. It meta-analyses group comparison design studies and reports on single subject design studies of major psycho-social programs to support families.

Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309472245
Category : Medical
Languages : en
Pages : 351

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Book Description
Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

Author: Leighton E. Cluff
Publisher: JHU Press
ISBN: 9780801865916
Category : Medical
Languages : en
Pages : 296

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Book Description
In The Lost Art of Caring, Leighton E. Cluff, M.D., and Robert H. Binstock, Ph.D., bring together experts to address the importance of caring, the reasons why it has eroded, and measures that can strengthen caring as provided by health professionals, families, communities, and society.

Author: Charles R. Callanan
Publisher: Johns Hopkins University Press
ISBN: 9780801839641
Category : Health & Fitness
Languages : en
Pages : 488

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Book Description
Discusses the causes of birth defects, describes genetic counseling, and covers the diagnosis, health care, education, legal rights, and adult life of handicapped children