Support Group for Latino Parents of Youth Diagnosed with Autism Spectrum Disorder PDF Download

Author: Jennifer Rios
Publisher:
ISBN: 9781321682625
Category : Fund raising
Languages : en
Pages : 60

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Book Description
Abstract: Latino parents of youth with autism spectrum disorder (ASD) experience numerous challenges when seeking services for their children including lack of support from medical providers, lack of knowledge on autism services, and cultural barriers that impede them from appropriately advocating for them. The purpose of this project was to write a grant proposal to develop a support program for low-income Latino parents of youth with ASD in Inglewood, California. The goal of the program is to increase awareness of ASD and improve access to services through various educational workshops for these parents. Subsequently, Latino parents of youth with ASD will be equipped with the skills needed to be a more effective advocate for their adolescents. The actual submission of this grant program was not required for the completion of the project.

Author: Mayra Gallo
Publisher:
ISBN: 9781124609850
Category : Hispanic American parents
Languages : en
Pages : 106

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Book Description
Abstract: The purpose of this study was to explore Latino family experiences raising children with Autism Spectrum Disorder (ASD), including their knowledge of autism, their extended family members views of autism, their social support and relationships with physicians to identify the limitations and barriers of Latino parents. Thirteen Latino parents raising a child with autism were interviewed from a specific area of Los Angeles. The results found that Latino parents continue to struggle with physicians to obtain the appropriate treatment for their children with autism. Latino communities continue to lack education on mental health issues jeopardizing how parents cope and react to their children's distinct behavior and coping. Due to the sample being small and from a specific area of Los Angeles, more research needs to be conducted on different socio-economic areas of Los Angeles, as well as implementing new policies to better serve the Latino community.

Author:
Publisher:
ISBN:
Category : Autistic children
Languages : en
Pages : 248

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Book Description
Autism is a pervasive developmental disorder that appears within the first three years of childhood and involves major impairments in all aspects of development including communication, social relationships, behavior, and sensory perception (Rutter, 1978). Parents who raise autistic children face unique and often painful challenges to the parenting role and family life (Dominique, Cutler, & Tarnaghan, 2000). Although epidemiological studies have demonstrated that autism can be found all over the world, research has almost primarily focused on Western and European primarily Caucasian populations which ignores minority groups (Fombonne, 2003; Seo-Gyeong, 1992). Research has demonstrated that immigrant Latino populations living in the United States experience numerous barriers to the acquisition of health care (Flores, Abreu, Olivar, & Kastner, 1998). The purpose of this study was to gain self-reported information regarding the current needs of Latino parents who have children with autism and identify specific barriers they report having experienced to the acquisition of diagnostic and treatment services for their children.Thirty Latina mothers and one Latino father of a child with autism were recruited from parent support groups and completed telephone interviews. The telephone interviews consisted of a family needs survey (Bailey & Simmeonsson, 1988), a demographic questionnaire, and a series of questions in their primary language. Results indicated that the participants in this study reported facing informational, language, and financial barriers to obtaining diagnostic and treatment services for their children. Parents reported that their children were receiving an average of almost 1 hour 30 minutes of therapy per week. Considering that most intervention approaches recommend as much as 30 hours per week of services, this study provides evidence that this population is underserved. The Latino parents in this study reported their most pressing needs were information about autism. The parents also reported numerous concerns such as current problem behaviors, lack of speech, and the lack of training and services in the professional community for children with autism. Parents also reported worries about the future of their child. Clinical and research implications for these findings are explored.

Author: Crystal Maria Perez
Publisher:
ISBN: 9781369846447
Category : Electronic dissertations
Languages : en
Pages : 155

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Book Description
This study examined the experiences that Culturally and Linguistically Diverse (CLD) Latino parents of children with Autism have had in working with school systems. The sample consisted of 3 families with children in grades kindergarten through third grade. The parents interviewed in all families were mothers of male children with Autism. This case study used narrative research methods to examine the personal stories of Latino parents of elementary age students with ASD who are currently attending schools in urban communities predominantly composed of CLD families. Parents participated in two individual interviews and a platica, which were all composed of a structured series of questions. The data collected through these interviews and platica helped create a story for each participant. Additionally, educational documents acquired through the families were reviewed and analyzed. There were numerous factors found impacting the experiences of these Latina mothers. This study exposed that special education professionals need to improve the quality, consistency, and tactful approaches in collaboration with CLD Latino families. By investigating the perspectives and experiences these Latina mothers had, this aimed to describe specific occasions in which these parents felt marginalized and disengaged. Some of these factors included cultural differences, language barriers, available parent participation, lack of advocacy skills, and parent confidence level.

Author: Maite Izurieta (Graduate student)
Publisher:
ISBN: 9781303984822
Category : Autism spectrum disorders
Languages : en
Pages : 0

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Book Description
Abstract: The purpose of this project was to write a grant proposal to obtain funding for educational workshops. The workshops are about how to access community-based resources, navigate the service delivery systems and training on advocacy skills needed to access appropriate services. Targeted population will include 192 Latino parents and families of children with autism spectrum disorder or suspected developmental delays. The proposed program would be offered in the Family Resource Center at the Los Angeles Child Guidance Clinic. The educational workshops aim to increase the utilization of services of Latino parents who are economically disadvantaged and underserved, through the distribution of information of community resources available for the specific needs of their children. The actual submission and/or funding of this grant were not a requirement for the successful completion of this project.

Author: Fred R. Volkmar
Publisher: Springer Science & Business
ISBN: 1493905066
Category : Psychology
Languages : en
Pages : 346

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Book Description
The research on children with autism spectrum disorders (ASD) is extensive and growing. Although these conditions are recognized as affecting the entire lifespan, the literature on ASD after childhood is limited and has not been brought together in a single volume in over a decade. Adolescents and Adults with Autism Spectrum Disorders fills this knowledge gap by focusing on needs and difficulties unique to these stages of development. Expert contributors offer cogent reviews of complex issues, from education to employment, leisure activities to illegal behaviors, mental health issues to medical health concerns. The latest findings in key areas, such as psychosocial and residential treatments, social skills programs, epidemiology, the impact of ASD on families, are examined in detail. Throughout the volume, coverage focuses on areas requiring improved models of assessment, updated data, new interventions and increased support services. Featured topics include: Transition from high school to adulthood for adolescents and young adults with ASD. Innovative programming to support college students with ASD. Romantic relationships, sexuality and ASD. Treatment of mental health comorbidities. Assessment and treatment planning in adults with ASD. The range of outcomes and challenges in middle and later life. Adolescents and Adults with Autism Spectrum Disorders is a must-have reference for a wide range of clinicians and practitioners – as well as researchers and graduate students – in clinical child, school and developmental psychology; child and adolescent psychiatry; social work; rehabilitation medicine/therapy; education and general practice/family medicine. It will also serve as an important resource for parents and caregivers with its focus on translating the current state of knowledge relevant to understanding adolescents and adults with ASD into practical and relevant recommendations on how best to support them.

Author: Verenice Orozco Corona
Publisher:
ISBN: 9780355529456
Category : Autism spectrum disorders in children
Languages : en
Pages : 60

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Book Description
Abstract: This qualitative phenomenological interview study investigated the barriers faced by Latino Spanish speakers with limited English proficiency (LEP) when seeking to obtain a diagnosis and special education resources for their children. This minority population faces several barriers that may be linked to a later diagnosis of autism spectrum disorder (ASD) among Latino children; however, limited research has focused on the identification of these barriers and factors that contribute to a later ASD diagnosis in Latino families. Five Latina Spanish-speaking mothers with LEP were included in this study. Two 1-hour interviews were conducted per participant. The results showed barriers associated with the health care system, culture beliefs, cultural differences in the view of disability, limited health literacy, LEP, lack of ASD knowledge, and lack of competent interpreters.

Author: Adrea M. Hahn
Publisher:
ISBN:
Category : Psychology
Languages : en
Pages : 202

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Book Description
This study examined the lived experience of Mexican American fathers who have children with autism, including the father's role in the family and his involvement in the life of his child. This phenomenon was explored qualitatively through culturally-sensitive interviews of five first-generation Mexican American fathers selected from a support group from Spanish-speaking parents of children with autism. The findings of this study indicate significant strengths that Mexican American families may have in dealing with the challenges facing similar families. The results also highlight the families' considerable needs that available services are not providing for Spanish-speaking clients and individuals with autism. Important topics that are described include the role of the father in the family and his relationship with his child with autism. The investigation also relays the fathers' concerns and the challenges that they are faced with in their own family. In addition, the results demonstrate ways in which the fathers choose to deal with stressors and the sources of support which they tend to access. The discussion concludes with suggestions for professionals to overcome treatment barriers and directions for future research aimed at developing and implementing more effective and culturally sensitive treatment.

Author: Luis Daniel Mendez
Publisher:
ISBN:
Category : Autistic children
Languages : en
Pages : 134

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Book Description

Author: Lesley S. J. Farmer
Publisher: American Library Association
ISBN: 0838911811
Category : Language Arts & Disciplines
Languages : en
Pages : 266

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Book Description
Autism is now the second most commonly diagnosed serious developmental disability, and the number of children identified as autistic continues to grow. Introducing what autism spectrum disorders are, and identifying the great need to build and manage programs for different youth with these disorders, Farmer offers librarians in or outside a school environment all the information they need to build a library literacy program geared towards these children. Designed to both awaken sensitivities of library staff and address the questions of those who are already aware of the issue, this book Shows how children with this diagnosis are increasingly mainstreamed into traditional library and school programs and identifies the special needs and issues they face in a library setting Equips readers to meet the needs of young library users who are autistic with practical tools for training library staff, teachers, and volunteers Explains hyperlexia, the main barrier to the development of literacy among these children, and how programs using sensory experiences can strengthen both literacy skills and socialization Proposes strategies for using library design to ensure that materials and resources are accessible to all patrons Including a glossary of terms and bibliography of additional resources, Farmer’s book is an important tool for raising awareness and supporting literacy development for children with these disorders in the library setting.