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Author: Diana Marinello Publisher: OAE Publishing Inc. ISBN: Category : Medical Languages : en Pages : 11
Book Description
Aim: The European Reference Networks (ERNs) provide clinicians and patients the opportunity to collaborate at EU level to improve diagnosis, care and treatment for people living with rare and complex conditions. However, building a partnership culture to systematically involve patients in ERN activities and decision-making structures is challenging, partly because the role of patient representatives and the value of this collaboration are not always understood. The objective of this project was to develop an evaluation framework to assess the impact of patient engagement in the ERNs and to provide evidence on the value of patient-clinician partnership. Methods: The evaluation was developed by EURORDIS and patient representatives involved in the ERNs (ePAG advocates) through a participatory and iterative process. The work was organised in three different phases: (1) clarify roles and identify common goals for ePAG advocates’ engagement in the ERNs; (2) define a set of measures; and (3) test the measures in three different ePAGs (European Patient Advocacy Groups). Results: The project allowed developing a common understanding among ePAG advocates of their role and goals in the ERNs and defining a patient-driven evaluation framework to assess their level of engagement in the ERNs’ activities and how effectively they were working to fulfil their role. Conclusion: Engaging with ERN clinicians to refine the framework would probably render it more relevant to the reality and priorities of the specific ERNs and more valuable as a tool to build a strong partnership culture. Such an evaluation framework could be integrated into the ERNs’ quality improvement system to ensure that the networks’ activities are driven by and remain responsive to patients’ needs.
Author: Diana Marinello Publisher: OAE Publishing Inc. ISBN: Category : Medical Languages : en Pages : 11
Book Description
Aim: The European Reference Networks (ERNs) provide clinicians and patients the opportunity to collaborate at EU level to improve diagnosis, care and treatment for people living with rare and complex conditions. However, building a partnership culture to systematically involve patients in ERN activities and decision-making structures is challenging, partly because the role of patient representatives and the value of this collaboration are not always understood. The objective of this project was to develop an evaluation framework to assess the impact of patient engagement in the ERNs and to provide evidence on the value of patient-clinician partnership. Methods: The evaluation was developed by EURORDIS and patient representatives involved in the ERNs (ePAG advocates) through a participatory and iterative process. The work was organised in three different phases: (1) clarify roles and identify common goals for ePAG advocates’ engagement in the ERNs; (2) define a set of measures; and (3) test the measures in three different ePAGs (European Patient Advocacy Groups). Results: The project allowed developing a common understanding among ePAG advocates of their role and goals in the ERNs and defining a patient-driven evaluation framework to assess their level of engagement in the ERNs’ activities and how effectively they were working to fulfil their role. Conclusion: Engaging with ERN clinicians to refine the framework would probably render it more relevant to the reality and priorities of the specific ERNs and more valuable as a tool to build a strong partnership culture. Such an evaluation framework could be integrated into the ERNs’ quality improvement system to ensure that the networks’ activities are driven by and remain responsive to patients’ needs.
Author: Guendalina Graffigna Publisher: Frontiers Media SA ISBN: 2889453707 Category : Patient-centered health care Languages : en Pages : 127
Book Description
At present citizens are more aware of their health and care rights and more literate about their disease. Furthermore the continuous development of technological and bio-medical solutions are alimenting the expectation for longer and better life expectancy, even despite the diagnosis. Patients require to be higher involved in the decision making about their care and are willing to deeply entangle all the possible treatment options, their advantages, and their risks. In other terms, citizens today want to be treated not only as “client” but mainly as partners of the medical action and as co-authors of the success of their healthcare pathway. Due to this socio-psychological change in patients’ attitude, healthcare systems today are claimed to a deep revision of their practices and organizational models in order to become better responsive to patients’ expectation and more sustainable and effective in the management of their services. Patient participation and engagement in healthcare management, indeed, is today acknowledged by policy makers and healthcare experts as a valuable option to orient changes and actions of the healthcare systems. Several empirical studies have demonstrated the positive outcomes of a participatory care approach at the clinical, psychosocial, and economic levels. Patient Engagement, thus, appears today not only an ethical but also a pragmatic imperative for the innovation and the improvement of healthcare system. Moving from these premises, this e-book collect first research experiences, conceptual contribution and review of good practices in the area of Patient Engagement promotion. The e-book also discuss the relevance and the theoretical linkages between the concept of Patient Engagement and that one of Patient Centered Medicine.
Author: Guendalina Graffigna Publisher: Walter de Gruyter GmbH & Co KG ISBN: 3110452448 Category : Psychology Languages : en Pages : 154
Book Description
Patient engagement should be envisaged as a key priority today to innovate healthcare services delivery and to make it more effective and sustainable. The experience of engagement is a key qualifier of the exchange between the demand (i.e. citizens/patients) and the supply process of healthcare services. To understand and detect the strategic levers that sustain a good quality of patients’ engagement may thus allow not only to improve clinical outcomes, but also to increase patients’ satisfaction and to reduce the organizational costs of the delivery of services. By assuming a relational marketing perspective, the book offers practical insights about the developmental process of patients’ engagement, by suggesting concrete tools for assessing the levels of patients’ engagement and strategies to sustain it. Crucial resources to implement these strategies are also the new technologies that should be (1) implemented according to precise guidelines and (2) designed according to a user-centered design process. Furthermore, the book describes possible fields of patients’ engagement application by describing the best practices and experiences matured in different fields
Author: Letizia Affinito Publisher: Routledge ISBN: 1317053206 Category : Business & Economics Languages : en Pages : 253
Book Description
Socialize Your Patient Engagement Strategy makes the case for a fundamentally new approach to healthcare communication; one that mobilizes patients, healthcare professionals and uses new media to enable gathering, sharing and communication of information to achieve patient-centricity and provide better value for both organizations (in terms of profit) and patients (in terms of better service and improved health). Letizia Affinito and John Mack focus on three priority areas for actions: Improving Health Literacy (e.g. web sites; targeted mass digital campaigns), Improving Self-care (e.g. self-management education; self-monitoring; self-treatment), Improving Patient Safety (e.g. adherence to treatment regimens; equipping patients for safer selfcare). The authors explain the healthcare context to the digital communications revolution; the emerging digital marketing and communications techniques that enable this revolution and the core elements behind a patient-driven digital strategy. Drawing on the authors’ research and consulting practices, as well as on the practical experience of managers in medium-large companies worldwide, the book provides a proven framework for improving the development and implementation of patient-centered digital communication programs in healthcare organizations. It is an engaging how-to/how-not-to book which includes tips, advice, and critical reviews that every stakeholder dealing with the healthcare system must have in order to participate in the evolving healthcare system and be more active in making strategic patient-centered choices. Socialize Your Patient Engagement Strategy includes interviews with experts and leading case histories of successful digital communication programs in the healthcare arena. While there are books that focus on specific healthcare communicators within different types of organizations, in their book the authors recognize that effective patient-centric communication crosses all organizational boundar
Author: Graffigna, Guendalina Publisher: IGI Global ISBN: 1466699930 Category : Medical Languages : en Pages : 382
Book Description
Industry professionals, government officials, and the general public often agree that the modern healthcare system is in need of an overhaul. With organizations concerned with the long-term care of patients, new strategies, practices, and organizational tools must be developed to optimize the current healthcare system. Recent literature suggests that patient participation may be the ideal solution, as patients and caregivers who are more actively involved in their healthcare experience better outcomes. Promoting Patient Engagement and Participation for Effective Healthcare Reform outlines models that can be used to harness the power of patient involvement as a way to instill change in the healthcare industry. This book features a convergence of healthcare professionals and scholars providing insights into the best practices of interventions and reform as well as practical applications to foster patient engagement and participation. It is a useful reference source for healthcare providers, students and professionals in the fields of nursing, therapy, and public health, as well as managers and policy makers.
Author: Angela Coulter Publisher: McGraw-Hill Education (UK) ISBN: 0335242723 Category : Medical Languages : en Pages : 227
Book Description
This evidence-based guide provides the first comprehensive overview of patient engagement and participation in healthcare. It has been written for all those who want to understand the various ways in which patient and public engagement can contribute to better health outcomes. Angela Coulter explains the theories, models and policies at the heart of patient involvement as well as giving extensive practical examples to demonstrate the reality of involving patients. The book includes an examination of patients’ roles in respect of: Improving care processes Building health literacy Selecting treatments Strengthening self-care Ensuring safer care Participating in research Training professionals Shaping services Clearly written by a leading author in the field and well illustrated with data, examples and evidence, the book includes practical descriptions of real patient engagement, together with critical review and suggestions to guide future developments. This guide also brings together an extensive body of international evidence, making it the most current and original text on the market. Engaging Patients in Healthcare is essential reading for students and professionals working and studying in public health, health care management, health services and beyond. "This book is the roadmap we need to guide the creation of the healthcare system we’ve all dreamed about – one that truly taps the power of patient and professional wisdom." Susan Edgman-Levitan, PA, Executive Director, Stoeckle Center for Primary Care Innovation, Massachusetts General Hospital, USA "This book provides the building blocks from which healthcare professionals can try to engage people more, from consultation based practices, such as shared decision making and improved self management, to deeper changes in shaping services and training professionals." British Medical Journal, 2011 "Policy makers and practitioners will benefit from Angela Coulter's analysis of the challenges of securing effective engagement and the ideas she puts forward for overcoming these challenges." Chris Ham, Chief Executive of The King's Fund, London, UK "Angela Coulter has managed to de-mystify the concepts of patient engagement in health care in a readable, balanced, thought-provoking primer. A "must read" for students, educators, practitioners, managers, and policy makers needing a primer or update." Annette O’Connor, Emeritus Professor University of Ottawa, Canada "Committed doyenne, Coulter writes superbly about patients as the greatest untapped resource in healthcare. At a time when health services face so many challenges across the globe, there are solutions here that need urgent attention." Professor Glyn Elwyn BA MB BCh MSc FRCGP PhDDirector of Research, Department of Primary Care and Public Health, Clinical Epidemiology IRG, Cardiff University, UK "While politicians pay increasing obeisance to the notion of 'patient-centred care' patients often experience a service built around the needs of healthcare organisations and professionals. The challenge is to translate the often woolly rhetoric of “no decision about me without me” into practical steps that improve the quality of care, and keep it affordable as cost pressures mushroom. Those who are serious about taking on this challenge could do no better than study Dr Coulter’s crisp and cogent overview of the theory, evidence and practice of patient engagement. " Jeremy Taylor, Chief Executive, National Voices
Author: Wout Feitz Publisher: Elsevier ISBN: 0323999352 Category : Science Languages : en Pages : 354
Book Description
Rare and Complex Urology combines information on clinical aspects, network developments and patient journeys in specific rare and complex urological diseases within the ERN (European Reference Network) template structure, allowing for better diagnosis, treatment and patient outcome. Each chapter contains an introduction on specific diseases with representative clinical images followed by a clinical view on treatment options (non-surgical and surgical) with clear schema and drawings; nurse specialist views on current care, patient views on the lifelong journey and expected development and research innovations for the future. Diseases covered include those of the bladder, stone and kidney diseases, malformations, pelvic floor disorders, the female urethra, reconstruction, surgery, cancers and rare tumors. This is a must have reference for basic scientists interested in engaging in translational urology and surgery and well as urologists seeking guidance on how to implement novel research. Provides a foundation for many rare urogenital diseases and complex conditions with contributions from high-volume centres monitored by ERN eUROGEN Combines in-depth research findings with clinical information to supply state-of-the-art care solutions for rare and complex aspects of urology Removes the uncertainty of managing rare and complex urogenital cases and variations in practice
Author: Lorren Pettit Publisher: CRC Press ISBN: 042968018X Category : Medical Languages : en Pages : 134
Book Description
Cultivating a Digital Culture for Effective Patient Engagement offers a strategic framework for healthcare provider websites in order to support patient engagement and connected health initiatives. Referred to as the Health Empowerment Web Strategy Index (HEWSi), the proposed framework is complemented by a detailed "check list" of health empowerment items organizations should incorporate into their website design. A healthcare provider’s website should be an effective resource for empowering the health of patients no matter where patients are in their digital culture evolution. The challenge for many organizations is that patient engagement/connected health initiatives are frequently developed and managed separately from the organization’s digital marketing efforts. This book recognizes this disconnect and advocates for a reimaging of healthcare provider websites based on the four domains of the HEWSi strategic framework: (1) orienting; (2) enlightening; (3) aligning; and (4) personalizing. As a framework and toolkit, HEWSi helps breakdown patient engagement silos within healthcare organizations by allowing varied functional teams (marketing; web developers; patient experience staff; clinical leaders; HIM/HIS personnel; etc.) to congregate around a shared pathway for conversing, strategizing, planning, and developing an effective patient empowerment website.
Author: Karen M. Facey Publisher: Springer ISBN: 9811040680 Category : Medical Languages : en Pages : 431
Book Description
This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences. Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach. With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA. "If you’re not involving patients, you're not doing HTA!" - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA
Author: Diana Marinello
Author: Diana Marinello
Author: Guendalina Graffigna
Author: Guendalina Graffigna
Author: Letizia Affinito
Author: Graffigna, Guendalina
Author: Angela Coulter
Author: Wout Feitz
Author: Lorren Pettit
Author: G. Ross Baker
Author: Karen M. Facey