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Author: Kent Heckenlively Publisher: Simon and Schuster ISBN: 1510726357 Category : Science Languages : en Pages : 604
Book Description
On July 22, 2009, a special meeting was held with twenty-four leading scientists at the National Institutes of Health to discuss early findings that a newly discovered retrovirus was linked to chronic fatigue syndrome (CFS), prostate cancer, lymphoma, and eventually neurodevelopmental disorders in children. When Dr. Judy Mikovits finished her presentation the room was silent for a moment, then one of the scientists said, “Oh my God!” The resulting investigation would be like no other in science. For Dr. Mikovits, a twenty-year veteran of the National Cancer Institute, this was the midpoint of a five-year journey that would start with the founding of the Whittemore-Peterson Institute for Neuro-Immune Disease at the University of Nevada, Reno, and end with her as a witness for the federal government against her former employer, Harvey Whittemore, for illegal campaign contributions to Senate Majority Leader Harry Reid. On this journey Dr. Mikovits would face the scientific prejudices against CFS, wander into the minefield that is autism, and through it all struggle to maintain her faith in God and the profession to which she had dedicated her life. This is a story for anybody interested in the peril and promise of science at the very highest levels in our country.
Author: Kent Heckenlively Publisher: Simon and Schuster ISBN: 1510726357 Category : Science Languages : en Pages : 604
Book Description
On July 22, 2009, a special meeting was held with twenty-four leading scientists at the National Institutes of Health to discuss early findings that a newly discovered retrovirus was linked to chronic fatigue syndrome (CFS), prostate cancer, lymphoma, and eventually neurodevelopmental disorders in children. When Dr. Judy Mikovits finished her presentation the room was silent for a moment, then one of the scientists said, “Oh my God!” The resulting investigation would be like no other in science. For Dr. Mikovits, a twenty-year veteran of the National Cancer Institute, this was the midpoint of a five-year journey that would start with the founding of the Whittemore-Peterson Institute for Neuro-Immune Disease at the University of Nevada, Reno, and end with her as a witness for the federal government against her former employer, Harvey Whittemore, for illegal campaign contributions to Senate Majority Leader Harry Reid. On this journey Dr. Mikovits would face the scientific prejudices against CFS, wander into the minefield that is autism, and through it all struggle to maintain her faith in God and the profession to which she had dedicated her life. This is a story for anybody interested in the peril and promise of science at the very highest levels in our country.
Author: Melinda Malott Publisher: Xlibris Corporation ISBN: 1499094442 Category : Juvenile Fiction Languages : en Pages : 32
Book Description
This is the book weve been waiting fora story for children of parents with Fibromyalgia or Chronic Fatigue Syndrome. In fact, I plan to buy a copy for all my loved ones, so theyll better understand what my life is like. It all depends on how many marbles are in my jar each daythe perfect metaphor for explaining the unpredictability and the ups and downs of Fibromyalgia and CFS. At the end of the book, Malott writes, a heart full of love is better than a jar full of marbles any day. Not only is this book informative and insightful, its a heart full of love in itself. Toni Bernhard, author of How to Be Sick A mom uses a brilliant jar-and-marble analogy to teach her son about her limitations related to chronic fatigue syndrome (CFS) and fibromyalgia. The book uses marbles, a toy all children are familiar with, as a measure of the mothers limited energy. Using a jar and some marbles, the author conveys difficult concepts in terms that children can understand. These concepts include taking preemptive rests to have more energy later, finding alternate ways to perform tasks that use less energy, and postexertional malaise. The concepts in the book are relevant to someone with one or both illnesses, and it can be applied to other physically limiting conditions as well. The book reminds the reader that although illness may limit a mothers activities, it never diminishes a mothers love for her children. The book is fun and yet realistic and will capture your childs heart.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309316928 Category : Medical Languages : en Pages : 251
Book Description
Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
Author: Charles Ortleb Publisher: Createspace Independent Publishing Platform ISBN: 9781984115256 Category : Chronic fatigue syndrome Languages : en Pages : 0
Book Description
This is a must-read book for anyone who wants to know the disturbing history of the Chronic Fatigue Syndrome epidemic. Why have the CDC and NIH pretended that Chronic Fatigue Syndrome is a mystery for over three decades? By the end of this book of inconvenient truths the answer is crystal clear. The shocking news and bold analysis in this page-turner could lead to a revolution in the science and politics of Chronic Fatigue Syndrome, fibromyalgia, AIDS, autism, and many other illnesses. As the publisher and editor-in-chief of a small newspaper in New York, Charles Ortleb was the first journalist to devote a publication to uncovering the truth about Chronic Fatigue Syndrome. He assigned Neenyah Ostrom the duty of following every twist and turn of the Chronic Fatigue Syndrome story. No newspaper in the world did more to warn the world about the virus called HHV-6 which seems to be triggering Chronic Fatigue Syndrome and many other immunological disorders. This provocative book will end the injustice of the silent treatment Neenyah Ostrom's reporting has been getting from the media and The Chronic Fatigue Syndrome community. Ostrom blew the lid off one of the biggest medical secrets of our time: the link between the Chronic Fatigue Syndrome epidemic and AIDS. Ostrom interviewed most of the major researchers in the field, as well as countless patients and government scientists. She uncovered so many similarities between Chronic Fatigue Syndrome and AIDS that she came to the conclusion that they are part of the same epidemic, and she argued that until their connection is admitted by top government researchers, there is little hope of making real progress in the fight against Chronic Fatigue Syndrome. Charles Ortleb's book captures all the challenges and excitement of running a small newspaper that was publishing a brilliant journalist who essentially was the Woodward and Bernstein of the Chronic Fatigue Syndrome epidemic. In Rolling Stone, David Black said Ortleb's newspaper deserved a Pulitzer Prize. This book was originally published with the title "Truth to Power" in 2016. Hillary Johnson, the author of Osler's Web, called it "A rollicking, fascinating and important memoir."
Author: Julie Rehmeyer Publisher: Rodale Books ISBN: 1623367662 Category : Health & Fitness Languages : en Pages : 338
Book Description
Julie Rehmeyer felt like she was going to the desert to die. Julie fully expected to be breathing at the end of the trip—but driving into Death Valley felt like giving up, surrendering. She’d spent years battling a mysterious illness so extreme that she often couldn’t turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill. Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training as a science journalist and mathematician, she followed the advice of strangers she’d met on the Internet. Their theory—that mold in her home and possessions was making her sick—struck her as wacky pseudoscience. But they had recovered from chronic fatigue syndrome as severe as hers. To test the theory that toxic mold was making her sick, Julie drove into the desert alone, leaving behind everything she owned. She wasn’t even certain she was well enough to take care of herself once she was there. She felt stripped not only of the life she’d known, but any future she could imagine. With only her scientific savvy, investigative journalism skills, and dog, Frances, to rely on, Julie carved out her own path to wellness—and uncovered how shocking scientific neglect and misconduct had forced her and millions of others to go it alone. In stunning prose, she describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands brings scientific authority to a misunderstood disease and spins an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.
Author: Frankie Campling Publisher: ISBN: 0199233160 Category : Health & Fitness Languages : en Pages : 212
Book Description
Chronic fatigue syndrome (CFS) remains one of the most controversial illnesses, both in terms of its causes, and the best ways to treat the illness. For years, sufferers have had to deal with scepticism from their families, employers, and even health care professionals. The vast amount of conflicting advice that has been published up to now has served only to confuse sufferers (and the professionals) even more. Chronic Fatigue Syndrome: The Facts presents a compassionate guide to this illness, providing sufferers and their families, with practical advice, based solely on scientific evidence . It is unique in being written by both a sufferer and a physician, both of whom have had extensive experience, talking to, and helping patients. Included in the book is a detailed guide to self-help, written from a patient's perspective, but evidence-based. The book also deals with a number of special issues, advising on how to choose therapies and therapists, and how to deal with CFS in children. The book additionally includes an overview of the history of the illness, looking at the nature and causes of CFS, and the opportunities for the future. The book will be invaluable for sufferers from CFS, their friends and families, and the numerous health professionals who come into contact with sufferers from this illness.
Author: Susan R. Lisman, M.D. Publisher: John Wiley & Sons ISBN: 1118068238 Category : Health & Fitness Languages : en Pages : 386
Book Description
You’ve been repeatedly poked, prodded, tested and scanned, yet, despite how awful you feel, your doctor, like many of your friends, co-workers, and family members have begun dropping subtle (and some not-so-subtle) hints that they think it’s “all in your head.” Maybe you’re one of the lucky few CFS sufferers who’ve received an accurate diagnosis but nothing your health care provider does seems to help. Well, you’re not alone. According to recent estimates, of the approximately 800,000 Americans with CFS, more than 90% have been misdiagnosed, dismissed, or are not receiving proper treatment. Don’t despair, help has arrived. Written by a national expert who has successfully treated scores of CFS patients in her own practice, Chronic Fatigue Syndrome for Dummies gives you the knowledge and tools you need to beat CFS and get back to living a normal life. In plain English Doctor Susan Lisman fills you in on: What CFS is, how you get it, and how it effects your body Its major symptoms and warning signs Getting an accurate diagnosis Avoiding situations that might be making you sicker Teaming up with the right doctor and crafting a treatment plan The most effective drugs, therapies and alternative approaches Coping with CFS in your personal and professional lives Packed with checklists, self-tests, questionnaires, and other powerful tools, and featuring many inspiring real-life stories of patients who’ve licked CFS, Chronic Fatigue Syndrome for Dummies puts you on the road to recovery.
Author: Kent Heckenlively
Author: Kent Heckenlively
Author: Melinda Malott
Author: Institute of Medicine
Author: Charles Ortleb
Author: Julie Rehmeyer
Author: Frankie Campling
Author: Associated College Libraries of Central Pennsylvania
Author: Susan R. Lisman, M.D.
Author: 
Author: Skidmore, Owings & Merrill