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Navigating Life with Amyotrophic Lateral Sclerosis

Navigating Life with Amyotrophic Lateral Sclerosis PDF Author: Mark B. Bromberg
Publisher: Oxford University Press
ISBN: 0190241640
Category : Medical
Languages : en
Pages : 281

Book Description
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

Navigating Life with Amyotrophic Lateral Sclerosis

Navigating Life with Amyotrophic Lateral Sclerosis PDF Author: Mark B. Bromberg
Publisher: Oxford University Press
ISBN: 0190241640
Category : Medical
Languages : en
Pages : 281

Book Description
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

Navigating Life with Multiple Sclerosis

Navigating Life with Multiple Sclerosis PDF Author: Kathleen Costello
Publisher: Oxford University Press, USA
ISBN: 0199381739
Category : Health & Fitness
Languages : en
Pages : 209

Book Description
Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide.

Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And

Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And PDF Author: Robert Rymore
Publisher: Imb Publishing
ISBN: 9781909151604
Category : Amyotrophic lateral sclerosis
Languages : en
Pages : 154

Book Description
The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers.

Amyotrophic Lateral Sclerosis

Amyotrophic Lateral Sclerosis PDF Author: Hiroshi Mitsumoto
Publisher: F. A. Davis Company
ISBN:
Category : Medical
Languages : en
Pages : 520

Book Description
This volume provides comprehensive background for understanding amyotrophic lateral sclerosis (ALS) and a critical review of research. It points out the distinguishing characteristics of the disease and testing procedures for reliable diagnosis.

Navigating Life with Dementia

Navigating Life with Dementia PDF Author: James M. Noble
Publisher: Oxford University Press
ISBN: 0190495685
Category : Medical
Languages : en
Pages : 305

Book Description
"Since you have opened this book, you or a close friend or family member have likely been impacted by the upsetting and frightening diagnosis of dementia. You may have been told about this diagnosis in a number of different ways. Either the term dementia was used, or other words associated with or more specific than dementia, such as Alzheimer's disease, vascular dementia, Lewy Body disease, frontotemporal dementia, or Pick's disease, were used. You may even have been misinformed at first and told that you were simply facing the normal changes of aging, such as forgetfulness or mild depression. Sometimes these terms are relatable based on others we know who have been affected by them. But they can be shocking to hear and hard to understand when talking about yourself or a loved one. Even more difficult is that none of the most common forms of dementia currently have treatments that can cure or slow the disease"--

ALS

ALS PDF Author: Eliot H. Dunsky
Publisher: Createspace Independent Publishing Platform
ISBN: 9781534988668
Category : Amyotrophic lateral sclerosis
Languages : en
Pages : 0

Book Description
Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig's disease. Determined to maintain the best quality of life possible-for as long as possible-he extensively researched the condition and its management. As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left. The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it. Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.

Amyotrophic Lateral Sclerosis

Amyotrophic Lateral Sclerosis PDF Author: Hiroshi Mitsumoto, MD
Publisher: Demos Medical Publishing
ISBN: 1935281194
Category : Health & Fitness
Languages : en
Pages : 499

Book Description
ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.

Palliative Care in Amyotrophic Lateral Sclerosis

Palliative Care in Amyotrophic Lateral Sclerosis PDF Author: David Oliver
Publisher: OUP Oxford
ISBN: 0191509507
Category : Medical
Languages : en
Pages : 353

Book Description
Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.

Amyotrophic Lateral Sclerosis

Amyotrophic Lateral Sclerosis PDF Author: Hiroshi Mitsumoto
Publisher: ReadHowYouWant.com
ISBN: 1458753573
Category : Family & Relationships
Languages : en
Pages : 458

Book Description
ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.

ALS Awareness For Men: Navigating Life With Courage

ALS Awareness For Men: Navigating Life With Courage PDF Author: Laurence Donelson lll
Publisher: Laurence Donelson lll
ISBN:
Category : Self-Help
Languages : en
Pages : 39

Book Description