National Hansen's Disease Center PDF Download

Author: Pam Fessler
Publisher: Liveright Publishing
ISBN: 1631495046
Category : History
Languages : en
Pages : 317

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Book Description
The unknown story of the only leprosy colony in the continental United States, and the thousands of Americans who were exiled—hidden away with their “shameful” disease. The Mississippi River between Baton Rouge and New Orleans curls around an old sugar plantation that long housed one of America’s most painful secrets. Locals knew it as Carville, the site of the only leprosy colony in the continental United States, where generations of afflicted Americans were isolated—often against their will and until their deaths. Following the trail of an unexpected family connection, acclaimed journalist Pam Fessler has unearthed the lost world of the patients, nurses, doctors, and researchers at Carville who struggled for over a century to eradicate Hansen’s disease, the modern name for leprosy. Amid widespread public anxiety about foreign contamination and contagion, patients were deprived of basic rights—denied the right to vote, restricted from leaving Carville, and often forbidden from contact with their own parents or children. Neighbors fretted over their presence and newspapers warned of their dangerous condition, which was seen as a biblical “curse” rather than a medical diagnosis. Though shunned by their fellow Americans, patients surprisingly made Carville more a refuge than a prison. Many carved out meaningful lives, building a vibrant community and finding solace, brotherhood, and even love behind the barbed-wire fence that surrounded them. Among the memorable figures we meet in Fessler’s masterful narrative are John Early, a pioneering crusader for patients’ rights, and the unlucky Landry siblings—all five of whom eventually called Carville home—as well as a butcher from New York, a 19-year-old debutante from New Orleans, and a pharmacist from Texas who became the voice of Carville around the world. Though Jim Crow reigned in the South and racial animus prevailed elsewhere, Carville took in people of all faiths, colors, and backgrounds. Aided by their heroic caretakers, patients rallied to find a cure for Hansen’s disease and to fight the insidious stigma that surrounded it. Weaving together a wealth of archival material with original interviews as well as firsthand accounts from her own family, Fessler has created an enthralling account of a lost American history. In our new age of infectious disease, Carville’s Cure demonstrates the necessity of combating misinformation and stigma if we hope to control the spread of illness without demonizing victims and needlessly destroying lives.

Author: Marcia G. Gaudet
Publisher: Univ. Press of Mississippi
ISBN: 1604736038
Category : Biography & Autobiography
Languages : en
Pages : 239

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Book Description
Personal accounts of life in America's last colony for sufferers of Hansen's disease

Author: Neil White
Publisher: William Morrow
ISBN: 9780062158314
Category : Biography & Autobiography
Languages : en
Pages : 0

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Book Description
Following conviction for bank fraud, White spent a year in a minimum-security prison in Carville, Louisiana, housed in the last leper colony in mainland America. His fascinating memoir reflects on the sizable group of lepers living alongside the prisoners.--"Publishers Weekly."

Author: Zachary Gussow
Publisher: Routledge
ISBN: 0429718543
Category : Social Science
Languages : en
Pages : 271

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Book Description
This volume focuses on leprosy in a country with which this 'tropical' disease is rarely associated in the professional or public mind; the United States. An important scholarly contribution where Gussow argues that academic neglect and absence of comparative studies of lepraphobia have been fuelled by default the myth that aversion to leprosy is and has been universal.

Author: United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health and the Environment
Publisher:
ISBN:
Category : Government publications
Languages : en
Pages : 32

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Book Description

Author: Henry William Blanc
Publisher:
ISBN:
Category : Leprosy
Languages : en
Pages : 65

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Book Description
A part of the Duke Medical Center Library History of Medicine Ephemera Collection.

Author: King K. Holmes
Publisher: World Bank Publications
ISBN: 1464805253
Category : Medical
Languages : en
Pages : 1027

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Book Description
Infectious diseases are the leading cause of death globally, particularly among children and young adults. The spread of new pathogens and the threat of antimicrobial resistance pose particular challenges in combating these diseases. Major Infectious Diseases identifies feasible, cost-effective packages of interventions and strategies across delivery platforms to prevent and treat HIV/AIDS, other sexually transmitted infections, tuberculosis, malaria, adult febrile illness, viral hepatitis, and neglected tropical diseases. The volume emphasizes the need to effectively address emerging antimicrobial resistance, strengthen health systems, and increase access to care. The attainable goals are to reduce incidence, develop innovative approaches, and optimize existing tools in resource-constrained settings.

Author: Claire Manes
Publisher: Univ. Press of Mississippi
ISBN: 1617037761
Category : Biography & Autobiography
Languages : en
Pages : 229

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Book Description
In 1924 when thirty-two-year-old Edmond Landry kissed his family good-bye and left for the leprosarium in Carville, Louisiana, leprosy, now referred to as Hansen's Disease, stigmatized and disfigured but did not kill. Those with leprosy were incarcerated in the federal hospital and isolated from family and community. Phones were unavailable, transportation was precarious, and fear was rampant. Edmond entered the hospital (as did his four other siblings), but he did not surrender to his fate. He fought with his pen and his limited energy to stay connected to his family and to improve living conditions for himself and other patients. Claire Manes, Edmond's granddaughter, lived much of her life gripped by the silence surrounding her grandfather. When his letters were discovered, she became inspired to tell his story through her scholarship and his writing. Out of the Shadow of Leprosy: The Carville Letters and Stories of the Landry Family presents her grandfather's letters and her own studies of narrative and Carville during much of the twentieth century. The book becomes a testament to Edmond's determination to maintain autonomy and dignity in the land of the living dead. Letters and stories of the other four siblings further enhance the picture of life in Carville from 1919 to 1977.

Author: Leo van Bergen
Publisher: NUS Press
ISBN: 9814722839
Category : Medical
Languages : en
Pages : 304

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Book Description
The story of leprosy in the Dutch East Indies from the beginning of the 19th century to the middle of the 20th reveals important themes in the colonial enterprise across the territory that is today’s Indonesia. Operating in a territory with only a few hundred Western-trained doctors and a population in the tens of millions, Dutch colonial officials approached leprosy with uncertainty and anxiety. In the early 19th century, the Dutch administration simply removed sufferers from public view: campaigns targetted anyone “looking ugly”. Towards the end of the century, colonial science considered leprosy a hereditary disease of tropical subjects, and therefore undeserving of the colonial government’s limited resources. The leprosariums were emptied. At the start of the 20th century, a growing understanding that leprosy was spread by a bacillus caused a panic that leprosy might spread from the tropics to the colonial metropole. The mixed emotions of pity, fear and revulsion associated with management of the disease intensified, and fed into broader debates on colonial policy. The experts were unsure, and resources were never forthcoming, and despite a view that “bacteria are the same everywhere”, Dutch leprosy treatment in the East Indies mobilized traditional healing practices and relied on home care. Leo van Bergen’s detailed, attentive study to changing policies for treatment and prevention of leprosy (now often called Hansen’s disease) is fascinating medical history, and provides a useful lens for understanding colonialism in Indonesia.

Author: United States. Health Resources and Services Administration
Publisher:
ISBN:
Category :
Languages : en
Pages : 20

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Book Description