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Author: Diane Shader Smith Publisher: ISBN: 9780970035301 Category : Cystic fibrosis Languages : en Pages : 24
Book Description
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author: Diane Shader Smith Publisher: ISBN: 9780970035301 Category : Cystic fibrosis Languages : en Pages : 24
Book Description
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author: Mallory Smith Publisher: Random House ISBN: 1984855433 Category : Biography & Autobiography Languages : en Pages : 336
Book Description
The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Author: Bijal P. Trivedi Publisher: BenBella Books ISBN: 1948836629 Category : Medical Languages : en Pages : 744
Book Description
Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
Author: Wade Davis Publisher: Vintage ISBN: 0307700569 Category : Biography & Autobiography Languages : en Pages : 596
Book Description
The definitive story of the British adventurers who survived the trenches of World War I and went on to risk their lives climbing Mount Everest. On June 6, 1924, two men set out from a camp perched at 23,000 feet on an ice ledge just below the lip of Everest’s North Col. George Mallory, thirty-seven, was Britain’s finest climber. Sandy Irvine was a twenty-two-year-old Oxford scholar with little previous mountaineering experience. Neither of them returned. Drawing on more than a decade of prodigious research, bestselling author and explorer Wade Davis vividly re-creates the heroic efforts of Mallory and his fellow climbers, setting their significant achievements in sweeping historical context: from Britain’s nineteen-century imperial ambitions to the war that shaped Mallory’s generation. Theirs was a country broken, and the Everest expeditions emerged as a powerful symbol of national redemption and hope. In Davis’s rich exploration, he creates a timeless portrait of these remarkable men and their extraordinary times.
Author: Laurie Friedman Publisher: Darby Creek ™ ISBN: 1467727407 Category : Juvenile Fiction Languages : en Pages : 119
Book Description
Mallory is turning 10, and she's planning a super sleepover! To celebrate her tenth birthday, Mallory wants to have the most super sleepover celebration ever! Mallory plans out everything to the last detail. As long as she promises not to let the fun get out of control, her parents agree to letting her friends sleep over. But Mallory’s best friend, Mary Ann, has her own ideas about what a super sleepover party should include. Before Mallory can put a stop to things, uninvited guests show up, a water balloon fight gets out of hand, and a good friend has her feelings hurt. How did a super sleepover turn into such a super mess?
Author: Katherine Paterson Publisher: HarperCollins ISBN: 0547488750 Category : Juvenile Fiction Languages : en Pages : 289
Book Description
2013 Laura Ingalls Wilder Award Rosa’s mother is singing again, for the first time since Papa died in an accident in the mills. But instead of filling their cramped tenement apartment with Italian lullabies, Mamma is out on the streets singing union songs, and Rosa is terrified that her mother and older sister, Anna, are endangering their lives by marching against the corrupt mill owners. After all, didn’t Miss Finch tell the class that the strikers are nothing but rabble-rousers—an uneducated, violent mob? Suppose Mamma and Anna are jailed or, worse, killed? What will happen to Rosa and little Ricci? When Rosa is sent to Vermont with other children to live with strangers until the strike is over, she fears she will never see her family again. Then, on the train, a boy begs her to pretend that he is her brother. Alone and far from home, she agrees to protect him . . . even though she suspects that he is hiding some terrible secret. From a beloved, award-winning author, here is a moving story based on real events surrounding an infamous 1912 strike.
Author: F. R. R. Mallory Publisher: ISBN: 9781893006485 Category : Leather lifestyle Languages : en Pages : 0
Book Description
The essential handbook for singles and couples who want to explore domination and submission as a relationship style or fetish in ways that are emotionally sustainable. For anyone who has ever fantasized about consensual kink, S/m, love, kinky sex, and powerful intimate connections beyond the limits of traditional relationships, this groundbreaking handbook explores the unusual potentials that are unique to kink. Experienced kink participant F.R.R. Mallory dispels myths and covers all the complex contradictions integral to maintaining a successful and responsible kink-centric relationship--from honest communication to self-awareness and more. Individuals and their partners will learn how to establish limits, explore psychological edges, and how to define their relationships on their own terms.
Author: Tim Sweeney Publisher: Independently Published ISBN: Category : Languages : en Pages : 225
Book Description
Are you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.
Author: Diane Shader Smith
Author: Diane Shader Smith
Author: Mallory Smith
Author: Cynthia S. Henry
Author: Bijal P. Trivedi
Author: Wade Davis
Author: Laurie Friedman
Author: Katherine Paterson
Author: Diane Shader Smith
Author: F. R. R. Mallory
Author: Tim Sweeney