Living with Learning Disabilities, Dying with Cancer PDF Download

Author: Irene Tuffrey-Wijne
Publisher: Jessica Kingsley Publishers
ISBN: 1849050279
Category : Family & Relationships
Languages : en
Pages : 274

View

Book Description
Cancer.

Author: Gordon Grant
Publisher: McGraw-Hill Education (UK)
ISBN: 0335238440
Category : Health & Fitness
Languages : en
Pages : 784

View

Book Description
"The editors have brought together a range of eminent contributors who present a range of issues throughout the life cycle. The book asserts that it hopes to 'assist readers to anticipate change and discontinuity in people's lives and think about strategies to support them' through the many challenges that they may face in their lives. In my view this book certainly does that and the editors and contributors are to be congratulated on the production of a relevant and contemporary text that I have no hesitation in both endorsing and recommending to all involved in supporting and or caring for people with learning disabilities." Professor Bob Gates, Project Leader - Learning Disabilities Workforce Development, NHS Education South Central, UK "The editors have gathered an authoritative faculty to present and discuss a range of contemporary issues; both practical and ethical. The text is well grounded in the lived experience of people with disability and draws on the evidence-base of contemporary science. Each chapter includes thought provoking exercises. This is a seminal text for students and practitioners, researchers and policy makers." Associate Professor Keith R. McVilly, Deakin University, Australia "I currently own a copy of the first edition and it has proved an invaluable resource time and time again. There is not an essay I complete that does not make reference to the book and I can consistently use it to reflect back on my practice as a student nurse and social worker. Having read several extracts from the new edition it does appear to include very high quality content covering learning disabilities over the lifespan ... if I were to personally recommend any book for budding or current learning disability professionals then this would be it." James Grainger, Student Nurse/Social Worker, Sheffield Hallam University, UK "I like the way it has primary and secondary information from a range of sources. The exercises in the book also get you to think about the situation in question which helps us think about our values and anti-oppressive practice ... This book really does start with the basics and having a learning disability from birth and the effects, to in depth knowledge and literature ... This book would be very helpful to me as it brings in literature policies and models from both a health and social side, which is important for my course and collaborative working." Laura Jean Lowe, Student Nurse, Sheffield Hallam University, UK "It is written with a clearly conveyed in-depth knowledge and in a way that has professional lived experience within the context of the work. The authors have taken into account the emotional, client-centred approach to the modern practitioner's practice ... The book gives a true wealth of good practice scenarios that can only help practitioners be good at what they do and aspire to be." Lee Marshall, Student Nurse, Sheffield Hallam University, UK With its spread of chapters covering key issues across the life cycle this text has established itself as the foundational primer for those studying the lived experiences of people with learning disabilities and their families, and outcomes achieved through services and support systems. Recognising learning disability as a lifelong disability, this accessible book is structured around the life cycle. The second edition is refreshed and expanded to include seven new chapters, covering: Aetiology Breaking news (about disability) and early intervention Transition to adulthood The sexual lives of women Employment Personalisation People with hidden identities With contributions from respected figures from a range of disciplines, the book draws heavily upon multidisciplinary perspectives and is based on the latest research and evidence for practice. The text is informed by medical, social and legal models of learning disability, exploring how "learning disability" is produced, reproduced and understood. Extensive use is made of real-life case studies, designed to bring theory, values, policy and practice to life. Narrative chapters describe, in the words of people with learning disabilities themselves, their lives and aspirations. They helpfully show readers the kinds of roles played by families, advocates and services in supporting people with learning disabilities. New exercises and questions have been added to encourage discussion and reflection on practice. Learning Disability is core reading for students entering health and social care professions to work with people with learning disabilities. It is a compelling reference text for practitioners as it squarely addresses the challenges facing people with learning disability, their loved ones and the people supporting them. Contributors Dawn Adams, Kathryn Almack, Dorothy Atkinson, Nigel Beail, Christine Bigby, Alison Brammer, Jacqui Brewster, Hilary Brown, Jennifer Clegg, Lesley Cogher, Helen Combes, Clare Connors, Bronach Crawley, Eric Emerson, Margaret Flynn, Linda Gething, Dan Goodley, Peter Goward, Gordon Grant, Chris Hatton, Sheila Hollins, Jane Hubert, Kelley Johnson, Gwynnyth Llewellyn, Heather McAlister, Michelle McCarthy, Alex McClimens, Roy McConkey, David McConnell, Keith McKinstrie, Fiona Mackenzie, Ghazala Mir, Ada Montgomery, Lesley Montisci, Elizabeth Murphy, Chris Oliver, Richard Parrott, Paul Ramcharan, Malcolm Richardson, Bronwyn Roberts, Philippa Russell, Kirsten Stalker, Martin Stevens, John Taylor, Irene Tuffrey-Wijne, Sally Twist, Jan Walmsley, Kate Woodcock

Author: David Oliviere
Publisher: Oxford University Press
ISBN: 0199599297
Category : Medical
Languages : en
Pages : 237

View

Book Description
This book examines access to specialist palliative care among different groups in society, and the ways of working with difference within such services.

Author: Joachim Cohen
Publisher: Oxford University Press
ISBN: 0191628581
Category : Medical
Languages : en
Pages :

View

Book Description
Worldwide, more than 50 million people die each year and it is estimated on the basis of the conditions leading to death that up to 60% of them could benefit from some form of palliative care. It is a public health challenge to ensure that these people can access good palliative or end-of-life care. Pursuing good population health essentially also implies striving for a 'good enough death' and a good quality of care at the end of life. Safeguarding a good quality of the end of life for patient populations for whom it is appropriate requires a public health approach. In most developed countries ageing populations that increasingly die from chronic diseases after a prolonged -often degenerative- dying trajectory make up the public health challenges for palliative care. The very large baby boom generation will soon reach old age and can be expected to pose strong demands regarding the circumstances and care at their end of life. Only by applying a public health approach to palliative care (instead of individual patient perspectives), can societies successfully help to organize and plan end-of-life care in accordance with these aspirations. A Public Health Perspective on End of Life Care presents a synthesis and overview of relevant research and empirical data on the end of life that can bear a basis for a more systematic 'public health of the end of life'. The book focuses on population health, rather than clinical interventions or other aspects of individual health, and discusses studies using different methodologies (not only epidemiological research). The focus is on the quality of the end-of-life of populations, in particular from social sciences, environmental sciences, and humanities perspectives.

Author: Veronica Donaghey
Publisher: Books Beyond Words
ISBN: 1874439664
Category : Performing Arts
Languages : en
Pages : 87

View

Book Description
This book is designed to support people like Veronica, who become unwell and are diagnosed as having cancer. In this story, Veronica visits her GP, who refers her to a hospital consultant. She has a chest X-ray and then is admitted to hospital for an operation. After the operation, the consultant tells Veronica that she has cancer, but that "it's not all bad news", some cancers can be cured. She goes on to receive radiotherapy and then chemotherpay sessions. After the chemotherapy has finished, Veronica feels better. She is glad the treatment is finished. She hopes the cancer is cured. The story is divided into different sections highlighting the different experiences that cancer patients may have.

Author: Christine Elizabeth Kiesinger
Publisher: Rowman & Littlefield
ISBN: 149858411X
Category : Social Science
Languages : en
Pages : 240

View

Book Description
Narrating Midlife: Crisis, Transition, and Transformation is rooted in a discussion about why it is important to address the midlife years in ways that challenge and interrogate the myths that surround this phase of life. Although readers are free to construct their own meaning after reading each narrative, they are encouraged to attend to the ways in which each narrative reveals how the author grapples with their particular issues communicatively. More important, readers are invited to see the power of narrative re-framing as authors seek to understand, interpret and “live” midlife change(s) in ways that are empowering and life affirming. In this book, contributors spin compelling and meaningful narratives about change at midlife. The empty nest, the surprise discovery of cancer, re-defining one's life at midlife and re-imagining long term commitment after divorce are just some of the topics explored in this book. Auto-ethnographically crafted, the narratives presented throughout the book aim to show how managing and living through change at midlife is very much a communicative endeavor.

Author: Bob Gates
Publisher: Elsevier Health Sciences
ISBN: 0443101981
Category : Medical
Languages : en
Pages : 746

View

Book Description
This title is directed primarily towards health care professionals outside of the United States. It is the authoritative textbook for students of learning disabilities covering a wide variety of topics. It is relevant not only for nursing courses, but also for care workers, OTs, and other professional and non-professional carers. The new edition has been completely updated and includes the latest evidence for practice. There are new chapters which means the book provides comprehensive coverage of learning disablities throughout a person's life. There are also new contributors, including people with learning disabilities. Each chapter is supported by information on further reading and other resources.

Author: Helen Atherton
Publisher: Elsevier Health Sciences
ISBN: 0702047015
Category : Medical
Languages : en
Pages : 582

View

Book Description
Learning Disabilities: Toward Inclusion (formerly edited by Bob Gates) is one of the leading textbooks in this field. It offers real ways to improve quality of experience for people with learning disabilities in all areas of life. This new edition brings together a comprehensive and coherent collection of material from eminent authors with a wealth of professional backgrounds and roles. Its contemporary focus reflects practice developments including the impact of changing policy and legislation on the nature and configuration of services. The leading textbook for carers of people with learning disabilities A comprehensive overview of the field of learning disabilities care Well-written accessible content Activities, case studies, diagrams and further resources including useful web links the embedding of key themes across chapters to draw diverse material into an integrated whole. These are: person-centredness, values, the reality of practice, the range of ability, the range of services and national and international perspectives. chapters on advocacy, personal narratives and life story, inclusive research, risk, safeguarding, sensory awareness, epilepsy and end-of-life care online case studies and activities with critical-thinking questions and ‘hot links’ to web resources to extend knowledge and understanding thereby facilitating learning a fully searchable, customisable electronic version of the text to enable easy access and quick reference

Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309303133
Category : Medical
Languages : en
Pages : 470

View

Book Description
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Author: Chris Barber
Publisher: Scion Publishing Ltd
ISBN: 1908625295
Category : Medical
Languages : en
Pages : 176

View

Book Description
From the Foreword by Cecilia Anim, OBE (RCN President, 2015-2018): “...an enjoyable, touching and inspirational read for all those involved in the lives of people with learning disabilities” Caring for People with Learning Disabilities is a concise introduction to the subject which covers all aspects of the care and support of the learning disabilities patient, for the non-specialist. All people with learning disabilities are entitled to the same high standard of care as people who do not have a learning disability and to have their health and care needs met in full. The vast majority of student nurses, practising nurses and healthcare professionals are not learning disability specialists, but they still need to provide care for patients with learning disabilities, often for health needs that are not related to the person’s disability. The book covers a wide range of issues and aims to: Improve knowledge and understanding of what learning disability is and what it means to live with a learning disability. Provide practical advice and suggestions to improve the quality of care provided to people with learning disabilities. Written in a jargon-free style, the book has numerous practical examples and case studies to help the reader frame the special requirements of the learning disabilities patient in the healthcare setting. This book will help nurses and carers improve their understanding of learning disability and provide the high quality care to which people with learning disabilities are entitled.