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Author: Pam Fessler Publisher: Liveright Publishing ISBN: 1631495046 Category : History Languages : en Pages : 317
Book Description
The unknown story of the only leprosy colony in the continental United States, and the thousands of Americans who were exiled—hidden away with their “shameful” disease. The Mississippi River between Baton Rouge and New Orleans curls around an old sugar plantation that long housed one of America’s most painful secrets. Locals knew it as Carville, the site of the only leprosy colony in the continental United States, where generations of afflicted Americans were isolated—often against their will and until their deaths. Following the trail of an unexpected family connection, acclaimed journalist Pam Fessler has unearthed the lost world of the patients, nurses, doctors, and researchers at Carville who struggled for over a century to eradicate Hansen’s disease, the modern name for leprosy. Amid widespread public anxiety about foreign contamination and contagion, patients were deprived of basic rights—denied the right to vote, restricted from leaving Carville, and often forbidden from contact with their own parents or children. Neighbors fretted over their presence and newspapers warned of their dangerous condition, which was seen as a biblical “curse” rather than a medical diagnosis. Though shunned by their fellow Americans, patients surprisingly made Carville more a refuge than a prison. Many carved out meaningful lives, building a vibrant community and finding solace, brotherhood, and even love behind the barbed-wire fence that surrounded them. Among the memorable figures we meet in Fessler’s masterful narrative are John Early, a pioneering crusader for patients’ rights, and the unlucky Landry siblings—all five of whom eventually called Carville home—as well as a butcher from New York, a 19-year-old debutante from New Orleans, and a pharmacist from Texas who became the voice of Carville around the world. Though Jim Crow reigned in the South and racial animus prevailed elsewhere, Carville took in people of all faiths, colors, and backgrounds. Aided by their heroic caretakers, patients rallied to find a cure for Hansen’s disease and to fight the insidious stigma that surrounded it. Weaving together a wealth of archival material with original interviews as well as firsthand accounts from her own family, Fessler has created an enthralling account of a lost American history. In our new age of infectious disease, Carville’s Cure demonstrates the necessity of combating misinformation and stigma if we hope to control the spread of illness without demonizing victims and needlessly destroying lives.
Author: Pam Fessler Publisher: Liveright Publishing ISBN: 1631495046 Category : History Languages : en Pages : 317
Book Description
The unknown story of the only leprosy colony in the continental United States, and the thousands of Americans who were exiled—hidden away with their “shameful” disease. The Mississippi River between Baton Rouge and New Orleans curls around an old sugar plantation that long housed one of America’s most painful secrets. Locals knew it as Carville, the site of the only leprosy colony in the continental United States, where generations of afflicted Americans were isolated—often against their will and until their deaths. Following the trail of an unexpected family connection, acclaimed journalist Pam Fessler has unearthed the lost world of the patients, nurses, doctors, and researchers at Carville who struggled for over a century to eradicate Hansen’s disease, the modern name for leprosy. Amid widespread public anxiety about foreign contamination and contagion, patients were deprived of basic rights—denied the right to vote, restricted from leaving Carville, and often forbidden from contact with their own parents or children. Neighbors fretted over their presence and newspapers warned of their dangerous condition, which was seen as a biblical “curse” rather than a medical diagnosis. Though shunned by their fellow Americans, patients surprisingly made Carville more a refuge than a prison. Many carved out meaningful lives, building a vibrant community and finding solace, brotherhood, and even love behind the barbed-wire fence that surrounded them. Among the memorable figures we meet in Fessler’s masterful narrative are John Early, a pioneering crusader for patients’ rights, and the unlucky Landry siblings—all five of whom eventually called Carville home—as well as a butcher from New York, a 19-year-old debutante from New Orleans, and a pharmacist from Texas who became the voice of Carville around the world. Though Jim Crow reigned in the South and racial animus prevailed elsewhere, Carville took in people of all faiths, colors, and backgrounds. Aided by their heroic caretakers, patients rallied to find a cure for Hansen’s disease and to fight the insidious stigma that surrounded it. Weaving together a wealth of archival material with original interviews as well as firsthand accounts from her own family, Fessler has created an enthralling account of a lost American history. In our new age of infectious disease, Carville’s Cure demonstrates the necessity of combating misinformation and stigma if we hope to control the spread of illness without demonizing victims and needlessly destroying lives.
Author: Amanda Skenandore Publisher: Kensington Books ISBN: 1496726529 Category : Fiction Languages : en Pages : 474
Book Description
The glamorous world of a silent film star’s wife abruptly crumbles when she’s forcibly quarantined at the Carville Lepers Home in this page-turning story of courage, resilience, and reinvention set in 1920s Louisiana and Los Angeles. Based on little-known history, this timely book will strike a chord with readers of Fiona Davis, Tracey Lange, and Marie Benedict. Based on the true story of America’s only leper colony, The Second Life of Mirielle West brings vividly to life the Louisiana institution known as Carville, where thousands of people were stripped of their civil rights, branded as lepers, and forcibly quarantined throughout the entire 20th century. For Mirielle West, a 1920’s socialite married to a silent film star, the isolation and powerlessness of the Louisiana Leper Home is an unimaginable fall from her intoxicatingly chic life of bootlegged champagne and the star-studded parties of Hollywood’s Golden Age. When a doctor notices a pale patch of skin on her hand, she’s immediately branded a leper and carted hundreds of miles from home to Carville, taking a new name to spare her family and famous husband the shame that accompanies the disease. At first she hopes her exile will be brief, but those sent to Carville are more prisoners than patients and their disease has no cure. Instead she must find community and purpose within its walls, struggling to redefine her self-worth while fighting an unchosen fate. As a registered nurse, Amanda Skenandore’s medical background adds layers of detail and authenticity to the experiences of patients and medical professionals at Carville – the isolation, stigma, experimental treatments, and disparate community. A tale of repulsion, resilience, and the Roaring ‘20s, The Second Life of Mirielle West is also the story of a health crisis in America’s past, made all the more poignant by the author’s experiences during another, all-too-recent crisis. PRAISE FOR AMANDA SKENANDORE’S BETWEEN EARTH AND SKY “Intensely emotional…Skenandore’s deeply introspective and moving novel will appeal to readers of American history.” —Publishers Weekly
Author: Neil White Publisher: William Morrow ISBN: 9780062158314 Category : Biography & Autobiography Languages : en Pages : 0
Book Description
Following conviction for bank fraud, White spent a year in a minimum-security prison in Carville, Louisiana, housed in the last leper colony in mainland America. His fascinating memoir reflects on the sizable group of lepers living alongside the prisoners.--"Publishers Weekly."
Author: Zachary Gussow Publisher: Routledge ISBN: 0429718543 Category : Social Science Languages : en Pages : 271
Book Description
This volume focuses on leprosy in a country with which this 'tropical' disease is rarely associated in the professional or public mind; the United States. An important scholarly contribution where Gussow argues that academic neglect and absence of comparative studies of lepraphobia have been fuelled by default the myth that aversion to leprosy is and has been universal.
Author: Domenico Bonamonte Publisher: Springer ISBN: 3319485385 Category : Medical Languages : en Pages : 404
Book Description
This well-illustrated book is a comprehensive guide to the cutaneous clinical presentations of mycobacterial infections. The Mycobacterium genus includes over 170 species, nontuberculous mycobacteria (NTM) having been added to the obligate human pathogens such as M. tuberculosis and M. leprae. NTM are widely distributed in the environment with high isolation rates worldwide; the skin is a major target with variable clinical manifestations. A current resurgence in tuberculosis is aggravated by the synergy with human immunodeficiency virus, the breakdown of health care systems, and the rise in multidrug-resistant disease, as the incidence of leprosy remains stable, at around 250,000 new cases annually, regardless of effective antibiotic therapy. Presentations of various cutaneous infections caused by mycobacteria may be overlooked by clinicians owing the lack of familiarity with tuberculosis, leprosy, and the related NTM clinical features. This handy guide will help the dermatologist to spot the different clinical manifestations, make a prompt diagnosis, and apply effective treatment.
Author: United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health and the Environment Publisher: ISBN: Category : Government publications Languages : en Pages : 32
Author: Claire Manes Publisher: Univ. Press of Mississippi ISBN: 1617037761 Category : Biography & Autobiography Languages : en Pages : 229
Book Description
In 1924 when thirty-two-year-old Edmond Landry kissed his family good-bye and left for the leprosarium in Carville, Louisiana, leprosy, now referred to as Hansen's Disease, stigmatized and disfigured but did not kill. Those with leprosy were incarcerated in the federal hospital and isolated from family and community. Phones were unavailable, transportation was precarious, and fear was rampant. Edmond entered the hospital (as did his four other siblings), but he did not surrender to his fate. He fought with his pen and his limited energy to stay connected to his family and to improve living conditions for himself and other patients. Claire Manes, Edmond's granddaughter, lived much of her life gripped by the silence surrounding her grandfather. When his letters were discovered, she became inspired to tell his story through her scholarship and his writing. Out of the Shadow of Leprosy: The Carville Letters and Stories of the Landry Family presents her grandfather's letters and her own studies of narrative and Carville during much of the twentieth century. The book becomes a testament to Edmond's determination to maintain autonomy and dignity in the land of the living dead. Letters and stories of the other four siblings further enhance the picture of life in Carville from 1919 to 1977.
Author: Ben Montgomery Publisher: Chicago Review Press ISBN: 1613734336 Category : Biography & Autobiography Languages : en Pages : 286
Book Description
The GIs called her Joey. Hundreds owed their lives to the tiny Filipina who stashed explosives in spare tires, tracked Japanese troop movements, and smuggled maps of fortifications across enemy lines. As the Battle of Manila raged, Josefina Guerrero walked through gunfire to bandage wounds and close the eyes of the dead. Her valor earned her the Medal of Freedom, but what made her a good spy was also destroying her: leprosy, which so horrified the Japanese they refused to search her. After the war, army chaplains found her in a nightmarish leper colony and fought for the US government to do something it had never done: welcome a foreigner with leprosy. This brought her celebrity, which she used to publicly speak for other sufferers. However, the notoriety haunted her and she sought a way to disappear. Ben Montgomery now brings Guerrero's heroic accomplishments to light.
Author: Amanda Skenandore Publisher: Kensington Books ISBN: 1496726545 Category : Fiction Languages : en Pages : 404
Book Description
The unflinching, spellbinding new book from the acclaimed author of The Second Life of Mirielle West. Based on the little-known story of America’s first nursing school, a young female grifter in 1880s New York evades the police by conning her way into Bellevue Hospital’s training school for nurses, while a spate of murders continues to follow her as she tries to leave the gritty streets of the city behind… “A spellbinding story, a vividly drawn setting, and characters that leap off the pages. This is historical fiction at its finest!” —Sara Ackerman, USA Today bestselling author of The Codebreaker’s Secret Based on Florence Nightingale’s nursing principles, Bellevue is the first school of its kind in the country. Where once nurses were assumed to be ignorant and unskilled, Bellevue prizes discipline, intellect, and moral character, and only young women of good breeding need apply. At first, Una balks at her prim classmates and the doctors’ endless commands. Yet life on the streets has prepared her for the horrors of injury and disease found on the wards, and she slowly gains friendship and self-respect. Just as she finds her footing, Una’s suspicions about a patient’s death put her at risk of exposure, and will force her to choose between her instinct for self-preservation, and exposing her identity in order to save others. Amanda Skenandore brings her medical expertise to a page-turning story that explores the evolution of modern nursing—including the grisly realities of nineteenth-century medicine—as seen through the eyes of an intriguing and dynamic heroine. PRAISE FOR AMANDA SKENANDORE’S THE SECOND LIFE OF MIRIELLE WEST “In this superior historical, the author’s diligent research, as well as her empathetic depiction of those subjected to forced medical isolation, make this a winner.” —Publishers Weekly
Author: Pam Fessler
Author: Pam Fessler
Author: Amanda Skenandore
Author: Neil White
Author: Marcia G. Gaudet
Author: Zachary Gussow
Author: Domenico Bonamonte
Author: United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health and the Environment
Author: Claire Manes
Author: Ben Montgomery
Author: Amanda Skenandore