Author: Geneviève CardinalPublisher:
ISBN:
Category :
Languages : en
Pages : 380
Book Description
"L'encadrement de la thérapie génique
Author: Geneviève CardinalL' encadrement juridique de la thérapie génique
Author: Patricia MarillerL'encadrement juridique des thérapies génique et cellulaire
Author: Françoise FervalLes dimensions normatives de la thérapie génique
Author: Geneviève CardinalPublisher: Montréal : Éditions Thémis
ISBN: 9782894001677
Category : Clinical trials
Languages : fr
Pages : 149
Book Description
Au moment où l'on jugeait qu'elle commençait à tenir ses promesses, la thérapie génique a connu des ratés marquants. Aux Etats-Unis, chef de file des essais cliniques dans ce secteur de pointe, un jeune homme est mort des suites d'une thérapie génique à la fin des années 90. En toile de fond de ce drame : des allégations de laxisme et de conflit d'intérêts. En France, des cas de leucémie ont par la suite été rapportés chez des bébés-bulles soignés par la thérapie génique. Quelques années plus tôt, on les avait crus guéris. Ces mésaventures ont cruellement rappelé que la thérapie génique n'est pas une panacée et qu'elle demeure une procédure à l'efficacité incertaine. D'où l'importance, souligne Geneviève Cardinal, d'un encadrement conforme aux risques de cette nouvelle branche de la médecine. Or, à la suite d'une analyse de divers modèles normatifs en la matière, l'auteure témoigne des errances du gouvernement canadien d'une façon saisissante. L'étude comparative de Me Cardinal tombe à point nommé. En déficit de confiance, la technologie novatrice pourrait voir son avenir compromis. Chercheurs et décideurs doivent démontrer que l'évaluation et le contrôle des risques sont sans faille. C'est pourquoi ce livre, qui fait date au Canada, profitera aux scientifiques, éthiciens, juristes et politiciens. Il doit être lu attentivement. Les conclusions de son auteure susciteront le débat et, espérons-le, la réforme et l'innovation. La parution de ce premier liure donne un coup d'envoi à la toute nouvelle collection juridique intitulée " Droit, biotechnologie et société ". Cette collection a vu le jour grâce à un heureux partenariat regroupant lnstitut International de Recherche en Ethique Biomédicale (IIREB), la Chaire de recherche du Canada en droit et en médecine, le Centre de recherche en droit public (CRDP) et les Editions Thémis. Cette action commune porte aujourd'hui fruit. Nous souhaitons que l'analyse de sujets contemporains contribue à la réflexion collective nécessaire face au développement des biotechnologies.
La thérapie génique dans le cadre de la B-thalassémie
Author: Aurélie QuintalMaster's Theses Directories
Author: Publisher:
ISBN:
Category : Dissertations, Academic
Languages : en
Pages : 412
Book Description
"Education, arts and social sciences, natural and technical sciences in the United States and Canada".
La revue du Barreau
Author: International Journal of Bioethics
Author: Adjuvant Therapy for Breast Cancer
Author: Monica CastiglionePublisher: Springer Science & Business Media
ISBN: 0387751157
Category : Medical
Languages : en
Pages : 483
Book Description
Adjuvant treatment is administered prior to or as follow up to surgical procedures for breast cancer. Proven success in using medical therapies allowing for breast conserving procedures or reducing risk of occurrence. Although there has been much progress towards a cure, including the introduction of new targeted therapies, metastasizing cancer remains highly incurable.
Your Mindful Compass
Author: Andrea Maloney ScharaPublisher:
ISBN: 9780615928791
Category : Families
Languages : en
Pages : 318
Book Description
"Your Mindful Compass" takes us behind the emotional curtain to see the mechanisms regulating individuals in social systems. There is great comfort and wisdom in knowing we can increase our awareness to manage the swift and ancient mechanisms of social control. We can gain greater flexibility by seeing how social controls work in systems from ants to humans. To be less controlled by others, we learn how emotional systems influence our relationship-oriented brain. People want to know what goes on in families that give rise to amazing leaders and/or terrorists. For the first time in history we can understand the systems in which we live. The social sciences have been accumulating knowledge since the early fifties as to how we are regulated by others. S. Milgram, S. Ashe, P. Zimbardo and J. Calhoun, detail the vulnerability to being duped and deceived and the difficulty of cooperating when values differ. Murray Bowen, M.D., the first researcher to observe several live-in families, for up to three years, at the National Institute of Mental Health. Describing how family members overly influence one another and distribute stress unevenly, Bowen described both how symptoms and family leaders emerge in highly stressed families. Our brain is not organized to automatically perceive that each family has an emotional system, fine-tuned by evolution and "valuing" its survival as a whole, as much as the survival of any individual. It is easier to see this emotional system function in ants or mice but not in humans. The emotional system is organized to snooker us humans: encouraging us to take sides, run away from others, to pressure others, to get sick, to blame others, and to have great difficulty in seeing our part in problems. It is hard to see that we become anxious, stressed out and even that we are difficult to deal with. But "thinking systems" can open the doors of perception, allowing us to experience the world in a different way. This book offers both coaching ideas and stories from leaders as to strategies to break out from social control by de-triangling, using paradoxes, reversals and other types of interruptions of highly linked emotional processes. Time is needed to think clearly about the automatic nature of the two against one triangle. Time and experience is required as we learn strategies to put two people together and get self outside the control of the system. In addition, it takes time to clarify and define one's principles, to know what "I" will or will not do and to be able to take a stand with others with whom we are very involved. The good news is that systems' thinking is possible for anyone. It is always possible for an individual to understand feelings and to integrate them with their more rational brains. In so doing, an individual increases his or her ability to communicate despite misunderstandings or even rejection from important others. The effort involved in creating your Mindful Compass enables us to perceive the relationship system without experiencing it's threats. The four points on the Mindful Compass are: 1) Action for Self, 2) Resistance to Forward Progress, 3) Knowledge of Social Systems and the 4) The Ability to Stand Alone. Each gives us a view of the process one enters when making an effort to define a self and build an emotional backbone. It is not easy to find our way through the social jungle. The ability to know emotional systems well enough to take a position for self and to become more differentiated is part of the natural way humans cope with pressure. Now people can use available knowledge to build an emotional backbone, by thoughtfully altering their part in the relationship system. No one knows how far one can go by making an effort to be more of a self-defined individual in relationships to others. Through increasing emotional maturity, we can find greater individual freedom at the same time that we increase our ability to cooperate and to be close to others.