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Informal Caregivers: From Hidden Heroes to Integral Part of Care

Informal Caregivers: From Hidden Heroes to Integral Part of Care PDF Author: Andreas Charalambous
Publisher: Springer Nature
ISBN: 3031167457
Category : Medical
Languages : en
Pages : 219

Book Description
This book builds on the current trends in informal caregivers’ role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users’ perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle “outpatient before inpatient”, the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts’ high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers’ impact on patients’ outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.

Informal Caregivers: From Hidden Heroes to Integral Part of Care

Informal Caregivers: From Hidden Heroes to Integral Part of Care PDF Author: Andreas Charalambous
Publisher: Springer Nature
ISBN: 3031167457
Category : Medical
Languages : en
Pages : 219

Book Description
This book builds on the current trends in informal caregivers’ role in the supportive care of cancer patients (as well as other diseases) across the care continuum covering topics from the healthcare professionals and the users’ perspectives. Informal caregivers are a critical resource to their care recipients and an essential component of the health care system. The book introduces a comprehensive view of the topic and acknowledges the importance and the complexity of caregiving. Here lays one of the uniqueness of this book, which highlights the areas and the ways that for example interventions in specific settings/groups of patients can actually facilitate the caregiving process. The increasing number of care-dependent people, the adoption of the principle “outpatient before inpatient”, the shift of care from inpatient to outpatient and the preference for home care (i.e. majority) are only some of the reasons that contributed to Informal caregiving becoming a central feature of the health care landscape and will become even more prominent in the decades ahead. The book draws on the experts’ high-end, current systematic research evidence and real-life examples on these topics to provide an insightful perspective on undertaking research within this context, and to demonstrate informal caregivers’ impact on patients’ outcomes. The structure of the book provides multiple perspectives to the topic and makes it appealing to a wide range of recipients including the nursing community, clinicians, social workers, researchers, policy makers, technology experts as well as postgraduate students especially to those practicing specifically in supportive care in cancer. The book fills a gap in this field of expertise not only by familiarizing the reader with a wide range of topics to be considered but it also emphasizes on what the developments in the field in the future would need to take into consideration. Finally, current and future studies can be informed from the practices of preceding studies that are incorporated in the book.

Informal Caregiving

Informal Caregiving PDF Author:
Publisher:
ISBN:
Category : Caregivers
Languages : en
Pages : 34

Book Description


The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities

The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities PDF Author: Gavin Ware, Debra
Publisher: IGI Global
ISBN: 1522574530
Category : Medical
Languages : en
Pages : 131

Book Description
Because progressive advancements to healthcare practices are leading to longer lifespans, an increased number of aging individuals now require constant care from practiced caregivers. The financial costs of in-home care can be quite high; therefore, many families are opting to stand in as caregivers, and this can lead to various impacts on their own social and psychological wellbeing. The Mental Health Effects of Informal Caregiving: Emerging Research and Opportunities provides autobiographical accounts and statistical data associated with the caregiving experience, as well as the methods to discern the positive psychological forces that shape the subjective wellbeing of informal caregivers. Highlighting topics such as institutional vs. informal caregiving, special healthcare needs, and veteran care, this book is ideally designed for psychologists, therapists, researchers, medical institutions, academia, and students seeking current research on the subjective wellbeing of informal caregivers.

Family Care and Social Capital: Transitions in Informal Care

Family Care and Social Capital: Transitions in Informal Care PDF Author: Patrick Barrett
Publisher: Springer Science & Business Media
ISBN: 9400768729
Category : Social Science
Languages : en
Pages : 186

Book Description
Becoming a caregiver is increasingly an inevitable experience for many people and, therefore, a likely life transition. Drawing on research and personal experiences of working with family caregivers, this book examines a range of family caregiving situations from across the life course. It seeks to capture the dynamics of caregiving in a number of common situations: caregiving during infancy, for adults who acquire a disability through accidents or illness, for older people with age-related issues, and caregiving by children and adolescent carers and grandparent carers. In drawing attention to key moments of vulnerability faced by family and informal caregivers, and by suggesting how to assist ‘reconnection’ at these moments, the book provides a guide for those working in the area of health, disability and care. Informal care is conceptualised as occurring with the context of personal interrelationships, these being nested within wider kin networks and linked with wider professional formal care networks. Informal care is seen both as an expression of social capital and as an activity that builds social capital. It is an indicator of resources of mutual support within social networks, and it has the effect of adding to the stock of social resources. The book makes a case, therefore, for facilitating the development of social capital by strengthening the capacity of informal caregivers and caregiver groups, and by improving the linkages with formal care organisations.

The Person Beside the Bed

The Person Beside the Bed PDF Author: Jo Angelia Simpson
Publisher:
ISBN: 9780982614365
Category : Care of the sick
Languages : en
Pages : 96

Book Description
In the United States today more than fifty million family caregivers provide an average of thirty-seven billion hours of unpaid, informal care per year for adult family members, children, and friends with chronic illnesses or conditions. Family caregivers log in from twenty-one to eighty or more hours a week, and many do not get consistent help from other family members. Informal caregiving on an extended basis can become extremely stressful and tiring. So here s the question: who is caring for the caregiver in your life? Caregivers desperately need to be care receivers too. But what can you do to support, relieve, and assist the person in your life the one who is giving so much? The Person Beside the Bed is the tool you need to show your care for the one who is carrying this blessed burden of caring for your loved one. Don t let the caregivers in your life become invisible.

Caregiving Experiences of Informal Caregivers

Caregiving Experiences of Informal Caregivers PDF Author: Marloes Oldenkamp
Publisher:
ISBN: 9789403404387
Category :
Languages : en
Pages : 215

Book Description


Improving Support for America's Hidden Heroes

Improving Support for America's Hidden Heroes PDF Author: Terri Tanielian
Publisher:
ISBN: 9780833097675
Category : History
Languages : en
Pages : 0

Book Description
"Sponsored by the Elizabeth Dole Foundation."

Families Caring for an Aging America

Families Caring for an Aging America PDF Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309448093
Category : Medical
Languages : en
Pages : 367

Book Description
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Forced to Care

Forced to Care PDF Author: Evelyn Nakano Glenn
Publisher: Harvard University Press
ISBN: 0674064151
Category : Social Science
Languages : en
Pages : 271

Book Description
The United States faces a growing crisis in care. The number of people needing care is growing while the ranks of traditional caregivers have shrunk. The status of care workers is a critical concern. Evelyn Nakano Glenn offers an innovative interpretation of care labor in the United States by tracing the roots of inequity along two interconnected strands: unpaid caring within the family; and slavery, indenture, and other forms of coerced labor. By bringing both into the same analytic framework, she provides a convincing explanation of the devaluation of care work and the exclusion of both unpaid and paid care workers from critical rights such as minimum wage, retirement benefits, and workers' compensation. Glenn reveals how assumptions about gender, family, home, civilization, and citizenship have shaped the development of care labor and been incorporated into law and social policies. She exposes the underlying systems of control that have resulted in womenÑespecially immigrants and women of colorÑperforming a disproportionate share of caring labor. Finally, she examines strategies for improving the situation of unpaid family caregivers and paid home healthcare workers. This important and timely book illuminates the source of contradictions between American beliefs about the value and importance of caring in a good society and the exploitation and devalued status of those who actually do the caring.

Hidden Heroes

Hidden Heroes PDF Author: Rajeev Ramchand
Publisher: Rand Corporation
ISBN: 0833085581
Category : Biography & Autobiography
Languages : en
Pages : 289

Book Description
"While much has been written about the role of caregiving for the elderly and chronically ill and for children with special needs, little is known about "military caregivers" -- the population of those who care for wounded, ill, and injured military personnel and veterans. These caregivers play an essential role in caring for injured or wounded service members and veterans. This enables those for whom they are caring to live better quality lives, and can result in faster and improved rehabilitation and recovery. Yet playing this role can impose a substantial physical, emotional, and financial toll on caregivers. This report summarizes the results of a study designed to describe the magnitude of military caregiving in the United States today, as well as to identify gaps in the array of programs, policies, and initiatives designed to support military caregivers. Improving military caregivers' well-being and ensuring their continued ability to provide care will require multifaceted approaches to reducing the current burdens caregiving may impose, and bolstering their ability to serve as caregivers more effectively. Given the systematic differences among military caregiver groups, it is also important that tailored approaches meet the unique needs and characteristics of post-9/11 caregivers."--Abstract.