Identifying Health, Educational, and Social Emotional Needs and Potential Intervention Strategies for Children with Cystic Fibrosis First Entering Elementary School PDF Download

Author: Kristen M. Carson
Publisher:
ISBN: 9781339068862
Category :
Languages : en
Pages : 176

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Book Description
Cystic Fibrosis (CF) is one of the most common, life-threatening genetic disorders impacting children (Cystic Fibrosis Foundation, n.d.) and, although rare, has a broad impact on children's health, educational, and social-emotional functioning. Current interventions for children with CF lack comprehensiveness, do not occur in the school setting, and fail to employ systems collaboration. Further, interventions have taken a more reactive rather than proactive approach to meeting children's needs. This investigation addressed current gaps in the literature by identifying children's health, educational, and social-emotional needs and potential intervention strategies to be employed as children with CF first enter elementary school. The study utilized participatory action research methods (e.g., focus groups, individual interviews, advisory panel) to gain information from parents and caregivers of children with CF (n = 11), school personnel (n = 15), and CF health care professionals (n = 14) and to collaboratively identify intervention strategies perceived to be beneficial, acceptable, and feasible for implementation. Results indicated primary areas for intervention to include nutrition (e.g., malabsorption), health-related treatments (e.g., medications), educational difficulties (e.g., falling behind), disclosure, social support, and mental health (e.g., anxiety, depression). Comprehensive strategies (e.g., formalized plans, use of technology, multisystemic collaboration) to address primary concerns are discussed. It will be important for schools, families, and health care professionals to collaboratively plan to meet the comprehensive needs of children with CF in schools by increasing communication and education across systems.

Author: Laura Nabors
Publisher: Springer
ISBN: 9783031479168
Category : Psychology
Languages : en
Pages : 0

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Book Description
This book examines the critical nature of engaging families in mental health interventions that promote well-being and resilience in young children, from birth to 8 years of age, with a particular focus on the importance of equity and systems of care. It addresses evidence-based and evidence-informed interventions to promote family engagement to improve behavioral, social, and emotional functioning of infants and toddlers, preschoolers, and children in the early elementary school years. The book is grounded in empirical knowledge on reducing health disparities and promoting equity in mental health care for young children, including equitable access, services, and outcomes. It emphasizes a community-based systems of care approach to family engagement in mental health interventions and highlights the most promising policies and practices. Key areas of coverage include: Mental health interventions for different developmental levels, including infancy and toddlerhood, the preschool years, and in early elementary school. Inequities and gaps in systems of care for young children. Evidence-based and evidence-informed prevention practices and intervention strategies to engage families and support children’s psychological well-being. Family engagement in interventions for young children with special needs or who are recovering from trauma. Family Engagement in Mental Health Interventions for Young Children is a must-have resource for researchers, professors, and graduate students as well as clinicians, therapists, and other professionals in developmental psychology, child and adolescent psychiatry, family and systems therapy, school and clinical child psychology, social work and counseling, pediatrics and school nursing, and all interrelated disciplines.

Author: Deborah F. Perry
Publisher: Brookes Publishing Company
ISBN:
Category : Education
Languages : en
Pages : 436

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Book Description
This groundbreaking guide to systems development helps professionals improve young children's social?emotional outcomes by building sturdy bridges between mental health and medical, educational, and social services. A comprehensive, research?based boo

Author: Hanan Sukkar
Publisher: Taylor & Francis
ISBN: 1317421167
Category : Psychology
Languages : en
Pages : 278

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Book Description
Early childhood is considered a critical but often vulnerable period in a child’s development where early identification and intervention can be crucial for improving children’s developmental outcomes. Systems and family-centred perspectives are vital to support families and build their capacities to lead normalized lives with improved family quality of life. This book explores the family-centred practices and systems factors which influence families’ experiences raising children with complex needs. It also considers the ways in which professionals can work with families to build and support parent and child competence. Conceptual and practical work from Australia, Canada, Europe and the United States present descriptions of and implications for different family system frameworks and early-childhood programs. Contributors in this edited volume bring together contemporary information that bridges the research to practice gap in supporting families of young children with disabilities or delays. Chapters include: Early Intervention for Young Children with Developmental Delays: Contributions of the Developmental Systems Approach Family Composition and Family Needs in Australia: What Makes a Family? Working with Families in Early Childhood Intervention: Family-Centred Practices in an Individualised Funding Landscape Family Systems and Family-Centred Intervention Practices in Portugal and Spain: Iberian Reflections on Early Childhood Intervention This book will attract the attention scholars of Parenting and Families; Child Development and Childcare.

Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 030948202X
Category : Social Science
Languages : en
Pages : 391

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Book Description
Healthy mental, emotional, and behavioral (MEB) development is a critical foundation for a productive adulthood. Much is known about strategies to support families and communities in strengthening the MEB development of children and youth, by promoting healthy development and also by preventing and mitigating disorder, so that young people reach adulthood ready to thrive and contribute to society. Over the last decade, a growing body of research has significantly strengthened understanding of healthy MEB development and the factors that influence it, as well as how it can be fostered. Yet, the United States has not taken full advantage of this growing knowledge base. Ten years later, the nation still is not effectively mitigating risks for poor MEB health outcomes; these risks remain prevalent, and available data show no significant reductions in their prevalence. Fostering Healthy Mental, Emotional, and Behavioral Development in Children and Youth: A National Agenda examines the gap between current research and achievable national goals for the next ten years. This report identifies the complexities of childhood influences and highlights the need for a tailored approach when implementing new policies and practices. This report provides a framework for a cohesive, multidisciplinary national approach to improving MEB health.

Author: Bonnie Keilty
Publisher: Teachers College Press
ISBN: 0807774847
Category : Education
Languages : en
Pages :

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Book Description
This guidebook on family–professional partnerships has been used as a go-to early intervention resource in university coursework, for inservice professional development, and as a support to families in (or considering) early intervention. This new edition has been completely revised to reflect recent research and respond to feedback that the author accumulated from users of the book, including practicing professionals and university instructors. With a focus on how families and professionals can collaborate effectively so that infants and toddlers (0–3) learn, grow, and thrive, chapters address: child learning and development, family functioning and priorities, early intervention as a support and not a substitute, and planning “what’s next” after early intervention. Specific components of early intervention—evaluation and assessment, program planning, intervention implementation, service coordination, and transition—are also discussed. This hands-on resource uses stories of families in early intervention to illustrate key concepts and provides checklists that readers can use to assess their experiences in early intervention. “This guidebook is my go-to source with families, professionals, and students. The newest edition expands upon an already exceptional book with the most recent policy and evidence-based practice recommendations. I can’t keep enough copies in my library.” —Susan Fowler, director, Illinois Early Intervention Clearinghouse “Supporting and empowering parents to help their infants and toddlers with delays and/or disabilities to learn and grow is key to future successes. Bonnie’s Keilty’s comprehensive work on the new edition of The Early Intervention Guidebook for Families and Professionals will help to insure that Part C Early Intervention around the country will stay focused on its work with and for families.” —Roxane Romanick, Founding Board Member Early Intervention Family Alliance

Author: Dennis Drotar
Publisher: Psychology Press
ISBN: 1135666415
Category : Psychology
Languages : en
Pages : 567

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Book Description
Based on a conference that assembled experts in the field of pediatric compliance in chronic illness, this book presents the latest data and conceptual models of adherence to treatment and recommendations for new directions in the field. Interdisciplinary in approach, the contributors represent a broad array of disciplines, including anthropology, pediatrics, psychology, and sociology. Designed to address critical gaps in the understanding of adherence/compliance to treatment regiments for children with chronic health conditions, this book reviews: *conceptual models used to define adherence treatment and conduct research; *the influences on treatment adherence to chronic illness in children; *the impact of adherence to treatment on children's health and psychological development; *strategies of interventions to promote adherence and reduce noncompliance rates; *methodological and measurement problems in the assessment of treatment adherence; and *recommended research priorities for the measurement of adherence and applications of interventions and training in the treatment of pediatric chronic illness.

Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309388570
Category : Social Science
Languages : en
Pages : 525

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Book Description
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Author: Council for Exceptional Children, Reston, VA. Div. for Early Childhood
Publisher: Council Exceptional Children
ISBN:
Category : Education
Languages : en
Pages : 139

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Book Description
This document describes a set of indicators that the Division for Early Childhood (DEC) Task Force on Recommended Practices recommends for early intervention and early childhood special education (EI/ECSE) programs for infants and young children with special needs and their families. The indicators are designed to be used by professionals in examining practices currently employed in EI/ECSE programs and in developing programs, and for families to use in selecting a program. The indicators are research-based or value-based, family-centered, compatible with a multicultural perspective, involving members of various disciplines, developmentally and chronologically age appropriate, and normalized. Indicators address the following specific program areas: assessment, family participation, individualized family service plans and individualized education programs, service delivery models, general curriculum and intervention strategies, interventions to promote cognitive skills, interventions to promote communication skills, interventions to promote social skills and emotional development, interventions to promote adaptive behavior skills, interventions to promote motor skills, transition, personnel competence, program evaluation, and early intervention with children who are gifted. For each set of indicators, a narrative discussion outlines a rationale for inclusion and implications for intervention. References accompany each section. (JDD)

Author: Roger Detels
Publisher: Oxford University Press
ISBN: 019881013X
Category : Medical
Languages : en
Pages : 1717

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Book Description
Sixth edition of the hugely successful, internationally recognised textbook on global public health and epidemiology, with 3 volumes comprehensively covering the scope, methods, and practice of the discipline