How to Start a Parkinson's Support Group PDF Download

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Languages : en
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Languages : en
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Author: Glenna Wotton Atwood
Publisher: Turner Publishing Company
ISBN: 0470244305
Category : Health & Fitness
Languages : en
Pages : 185

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Book Description
The long-awaited update to the definitive guide to successfully living with Parkinson's disease Known for its upbeat, informative, and inspirational guidance, Living Well with Parkinson's includes a wealth of up-to-date medical information for Parkinson's sufferers, who number over 1 million in the U.S. alone. Combined with the author's poignant personal account of her own struggles with the disease, this new edition features coverage of pallidotomy (a new surgical technique), the dramatic implications of recent genetic research, and new drugs and therapies. The book also includes tips on dealing with social services and elder law, maintaining a positive attitude, handling issues with spouses and children, and finding support groups. Glenna Wotton Atwood, a former home economics teacher from Maine, lived with Parkinson's for over two decades until her death in 1998. Lila Green Hunnewell (Rockaway, NJ) is a freelance writer and editor. Roxanne Moore Saucier (Bangor, ME) is a journalist with the Bangor Daily News.

Author: Michael S. Okun
Publisher: Createspace Independent Publishing Platform
ISBN: 9781481854993
Category : Chronic diseases
Languages : en
Pages : 0

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Addresses all of the new and emerging Parkinson's disease therapies (stem cells, gene therapy, optogenetics, etc.).

Author: Ray Dorsey
Publisher: PublicAffairs
ISBN: 1541724496
Category : Health & Fitness
Languages : en
Pages : 271

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In this "must-read" guide (Lonnie Ali), four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson's disease-one of the great health challenges of our time. Brain diseases are now the world's leading source of disability. The fastest growing of these is Parkinson's: the number of impacted patients has doubled to more than six million over the last twenty-five years and is projected to double again by 2040. Harmful pesticides that increase the risk of Parkinson's continue to proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old. In Ending Parkinson's Disease, four top experts provide a plan to help prevent Parkinson's, improve care and treatment, and end the silence associated with this devastating disease.

Author: Claire J. Creutzfeldt
Publisher: Springer
ISBN: 3319932152
Category : Medical
Languages : en
Pages : 312

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This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.

Author: Michele Tagliati
Publisher: ReadHowYouWant.com
ISBN: 1442986654
Category :
Languages : en
Pages : 422

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A diagnosis of Parkinson's disease is a life-altering event. There is no one way to deal with it. Everyone has a unique set of circumstances, and every patient experiences Parkinson's differently. That's why one book on PD can never be all things to all people. Whether you are living with the disease or are a caregiver or friend to someone who is, you will come to rely on a wide variety of high-quality books, manuals, Web sites, resources and tools. You may be surprised by the voracity of your appetite for newer, better, and just plain more information about PD. And since Parkinson's is-for now, at least-a disease that stays with you for life, your information needs may evolve and change over time. This book represents something incredibly important: a place to start. We commend its emphasis on tenets that we at The Michael J. Fox Foundation strive to incorporate into our work: an action orientation, a problem-solving mentality, and the distillation of a great deal of complicated information into clear, logical next steps. Most importantly, the Foundation shares with the authors of this book a commitment to keep patients front and center in every decision we make. As the largest funder of Parkinson's research outside the federal government, we actively partner with scientists to innovate new funding mechanisms that can maximize the quality, quantity and pace of PD research. With a comprehensive view of the field and proactive management of the grants in our portfolio, we are ideally positioned to bridge the gap between basic research and the clinic. For years scientists have asserted that with sufficient research funding, a cure for Parkinson's is within reach. We are working urgently to prove them right. ---Debi Brooks, President and CEO, The Michael J. Fox Foundation for Parkinson's Research.

Author: John M. Vine
Publisher: Paul Dry Books
ISBN: 1589881192
Category : Health & Fitness
Languages : en
Pages : 158

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“John Vine says he wrote this book for people who have been newly diagnosed with Parkinson’s disease. Well, I was diagnosed 24 years ago, and I still learned something new on every page.”—Michael Kinsley, Vanity Fair columnist and author of Old Age: A Beginner’s Guide Here is the book that John Vine and his wife, Joanne, wish they could have consulted when John was first diagnosed with Parkinson’s disease—a nontechnical, personal guide written from the patient’s perspective. Relying on his experiences over the past 12 years, John writes knowledgeably about all aspects of the disease. John also interviewed other Parkinson’s patients and their partners, whose stories and advice he includes throughout the book. “I wish we’d had John Vine’s book when my brother-in-law was diagnosed. The book is highly informative, unflinchingly honest, and reassuringly optimistic. It’s just what the doctor should have ordered.”—Cokie Roberts, best-selling author and political commentator on ABC News and NPR “John Vine details, in a compelling and accessible way, his experience with Parkinson’s disease. His book is an extraordinary guide to living successfully with Parkinson’s, and a must read for all who want to better understand the condition. Although diagnosed with Parkinson’s, my father lived an active and productive life until his death at age 94. As the book makes clear, while each patient’s journey is unique, common approaches are indispensable in treating the symptoms of the disease.”—Eric H. Holder, Jr. served as the 82nd Attorney General of the United States from 2009 to 2015 “John Vine has written the best primer I’ve ever read for newly diagnosed Parkinson’s patients and their families. It helps them cope with the shock of diagnosis, gives them (jargon-free) the scientific basics they need to know, describes the symptoms they may experience (making clear that every case is different) and catalogs the resources available to navigate living with Parkinson’s. John humanizes the book by describing his own experience and that of 22 other patients and their partners. I’d urge every neurologist to have copies of Vine’s primer on hand to help new PD on their journey forward.”—Morton Kondracke, author of Saving Milly: Love, Politics and Parkinson’s Disease and a member of the Founders' Council of the Michael J. Fox Foundation “My husband has PD, and I devoured this book. It’s wise, wonderfully readable, and, above all, helpful. Since John Vine has PD, he speaks with great authority about the challenges, both physical and psychological. If you have Parkinson’s, live with someone who has it, or just know someone battling the disease, A Parkinson’s Primer is for you.”—Lesley Stahl, award-winning television journalist on the CBS News program 60 Minutes “This is a remarkable book describing the personal experiences of many individuals, including the author, living with Parkinson’s disease. It captures the fact that although there are many possible symptoms in this disease, each person experiences different symptoms and copes with them in various ways. The thoughtful and insightful comments and coping strategies should be helpful for persons with PD, and their partners, regardless of the stage of the disease.”—Stephen Grill, MD, PhD, Director of the Parkinson’s & Movement Disorders Center of Maryland

Author: Karl Robb
Publisher: RobbWorks LLC
ISBN: 0988184702
Category : Health & Fitness
Languages : en
Pages : 226

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Book Description
A compilation of insights, practical tools and inspirational suggestions for improving mind-body connection and empowering healing.

Author: Barbara Blake-Krebs
Publisher: Hunter House
ISBN: 0897933400
Category : Family & Relationships
Languages : en
Pages : 295

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Book Description
Discusses symptoms, side effects of medication, support groups, and surgeryptions, as well as the physical, emotional, and social challenges facingoung people with Parkinson's disease.