How ALS Changed Everything PDF Download

Author: Jan Murray
Publisher:
ISBN: 9781500689261
Category : Amyotrophic lateral sclerosis
Languages : en
Pages : 210

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Book Description
A family's journey through ALS/Amyotrophic Lateral Sclerosis, aka Lou Gehrig's Disease, taking the reader from shock and devastation to acceptance, hope and LIFE despite the terminal illness. "How ALS Changed Everything" follows the Murray family through everyday, real, raw experiences with ALS, its effects on them as individuals, their children, their marriage, and faith. The story immediately draws the reader into the Murray's lives and is a poignant tale of facing a monster of an illness, with little to no hope, with bravery, yet fear, and still coming out on top in happiness. Eleven other touching stories from ALS families from around the country are also included in the book. Inspiring. Heart wrenching. Compelling.

Author: David Oliver
Publisher: OUP Oxford
ISBN: 0191509507
Category : Medical
Languages : en
Pages : 353

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Book Description
Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.

Author: Mark B. Bromberg
Publisher: Oxford University Press
ISBN: 0190241624
Category : Medical
Languages : en
Pages : 281

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Book Description
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

Author: Dr. Jenni Kleinman Berebitsky
Publisher:
ISBN: 9780692066690
Category : Amyotrophic lateral sclerosis
Languages : en
Pages : 278

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Book Description
The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease.

Author: Christopher A. Shaw
Publisher: John Wiley & Sons
ISBN: 1119745500
Category : Medical
Languages : en
Pages : 240

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Book Description
SPECTRUMS OF AMYOTROPHIC LATERAL SCLEROSIS Discover state-of-the-art research findings on ALS from leading authors and editors in the field In Spectrums of Amyotrophic Lateral Sclerosis: Heterogeneity, Pathogenesis & Therapeutic Directions, distinguished researchers and editors Dr. Christopher A. Shaw and Jessica R. Morrice deliver a practical and powerful perspective on Amyotrophic Lateral Sclerosis (ALS) as a heterogeneous spectrum of disorders. This increasingly accepted point-of-view allows researchers and medical professionals to develop better targeted interventions and more precise therapies. In the book, readers will find chapters on a wide variety of critical issues facing ALS researchers and healthcare practitioners treating ALS sufferers, including animal models of ALS, neuronal support cells known to have a pivotal role in ALS, and current challenges in ALS clinical trials, among others. The authors describe pathologic features common to all cases of ALS and why animal models, though crucial, should be interpreted with caution. Finally, multiple genetic and environmental etiologies of the disease are discussed. Readers will also benefit from the inclusion of: A thorough introduction to ALS as a spectrum disease and the implications for models, therapeutic development and clinical trial design Explorations of the genetic basis of ALS, prospective sALS etiologies, and the involvement of microbiome in ALS Discussions of ALS-PDC and environmental risk factors, protein aggregation in ALS, defects in RNA metabolism in ALS, and the non-cell autonomous nature of ALS and the involvement of glial cells Examinations of animal models of ALS and perspectives on previously failed ALS therapeutics and current therapeutic strategies Perfect for clinical neurologists, healthcare providers and caretakers, clinicians, and researchers studying motor neuron disease, Spectrums of Amyotrophic Lateral Sclerosis: Heterogeneity, Pathogenesis & Therapeutic Directions is also an indispensable resource for the neurodegenerative research community, neurology residents, and graduate-level neuroscience students.

Author: Jodi O'Donnell-Ames
Publisher: People Tested Publications
ISBN: 9780996867801
Category :
Languages : en
Pages : 136

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Book Description
Kevin and Jodi O'Donnell, were a young New Jersey couple busy raising a toddler and making plans for their future when they received life-altering news in 1995 that changed everything as they knew it. Kevin was only 30 years old when he was told that his health problems were the result of a rare, terminal disease called ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig's disease. Kevin and Jodi had not heard of ALS until then and had no idea how those three letters would challenge everything they thought to be certain. After more than 20 years of working with ALS families, Jodi realized that more information and better resources could be available to help families who are coming to grips with the challenges of the disease and the caregiving responsibilities that are involved. In the Introduction to "Someone I Love Has ALS: A Family Caregiver's Guide," Jodi recounts the journey she took as a caregiver, advocate and writer and embraces and shares the lessons learned throughout the pages of this wonderful guide, "This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." Although Kevin died of ALS in 2001 at the age 35, the disease never won the battle. ALS only strengthened Kevin and Jodi's love for God and each other and it created an even bigger purpose and plan: the creation of Hope Loves Company(r), the only non-profit whose mission is to support the children and grandchildren caregivers of PALS (people with ALS).

Author: Stephen Hawking
Publisher: Bantam
ISBN: 0553380168
Category : Science
Languages : en
Pages : 226

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Book Description
#1 NEW YORK TIMES BESTSELLER A landmark volume in science writing by one of the great minds of our time, Stephen Hawking’s book explores such profound questions as: How did the universe begin—and what made its start possible? Does time always flow forward? Is the universe unending—or are there boundaries? Are there other dimensions in space? What will happen when it all ends? Told in language we all can understand, A Brief History of Time plunges into the exotic realms of black holes and quarks, of antimatter and “arrows of time,” of the big bang and a bigger God—where the possibilities are wondrous and unexpected. With exciting images and profound imagination, Stephen Hawking brings us closer to the ultimate secrets at the very heart of creation.

Author: Casey Sherman
Publisher: University Press of New England
ISBN: 1512601594
Category : Biography & Autobiography
Languages : en
Pages : 186

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Book Description
While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body. A man whose love for others was unshakable. A man who refused to fight alone, and in so doing mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig's disease. When disease crippled Frates, the former Boston College baseball star turned tragedy into inspiration. Pete's story is a testament to the power of love, the steadfastness of family, the generosity of strangers, and the compassion of crowds. Half of the authors' proceeds will go to the Frates family.

Author: Andrew Eisen
Publisher: Cambridge University Press
ISBN: 9780521034265
Category : Medical
Languages : en
Pages : 324

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Book Description
Amyotrophic Lateral Sclerosis, otherwise known as Lou Gehrig's Disease, is one of several degenerative diseases of the aging nervous system. This text neatly synthesizes the recent explosion of research into this particular condition to construct a detailed and comprehensive overview. Drs. Eisen and Krieger bring their research expertise and extensive clinical experience to provide this practical and thought-provoking account. Chapters cover the epidemiology, molecular biology, and pathophysiology of ALS, as well as issues pertinent to clinical assessment and care.

Author: Ira Byock
Publisher: Penguin
ISBN: 110150028X
Category : Medical
Languages : en
Pages : 321

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Book Description
From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.