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Author: Kelsey M Finn Publisher: ISBN: Category : Languages : en Pages : 28
Book Description
This book tells the story of Jack, a boy who has CF, and his CF Superpowers. This book is intended to serve as a way to communicate with children about CF, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis. The book also contains a section for parents of tips of how best to communicate with kids about CF. The tips in this section are based on empirical, peer-reviewed research.
Author: Kelsey M Finn Publisher: ISBN: Category : Languages : en Pages : 28
Book Description
This book tells the story of Jack, a boy who has CF, and his CF Superpowers. This book is intended to serve as a way to communicate with children about CF, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis. The book also contains a section for parents of tips of how best to communicate with kids about CF. The tips in this section are based on empirical, peer-reviewed research.
Author: Kelsey M Finn Publisher: ISBN: Category : Languages : en Pages : 28
Book Description
This book tells the story of Jack, a boy who has a genetic condition called Cystic Fibrosis, and his Cystic Fibrosis Superpowers. Cystic Fibrosis affects approximately 1 in every 2,500 people of European ancestry, and also affects people of other ancestries, but less frequently. This book is intended to serve as a way to communicate with children about Cystic Fibrosis, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis.
Author: Diane Shader Smith Publisher: ISBN: 9780970035301 Category : Cystic fibrosis Languages : en Pages : 24
Book Description
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author: Tim Sweeney Publisher: Independently Published ISBN: Category : Languages : en Pages : 225
Book Description
Are you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.
Author: Andy C. Lipman Publisher: Booklogix ISBN: 9781610059558 Category : Health & Fitness Languages : en Pages : 216
Book Description
"Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox
Author: Rachael Lippincott Publisher: Simon & Schuster Books for Young Readers ISBN: 1534451560 Category : Young Adult Fiction Languages : en Pages : 288
Book Description
Now a major motion picture starring Cole Sprouse and Haley Lu Richardson! Goodreads Choice Winner, Best Young Adult Fiction of 2019 In this #1 New York Times bestselling novel that’s perfect for fans of John Green’s The Fault in Our Stars, two teens fall in love with just one minor complication—they can’t get within a few feet of each other without risking their lives. Can you love someone you can never touch? Stella Grant likes to be in control—even though her totally out of control lungs have sent her in and out of the hospital most of her life. At this point, what Stella needs to control most is keeping herself away from anyone or anything that might pass along an infection and jeopardize the possibility of a lung transplant. Six feet apart. No exceptions. The only thing Will Newman wants to be in control of is getting out of this hospital. He couldn’t care less about his treatments, or a fancy new clinical drug trial. Soon, he’ll turn eighteen and then he’ll be able to unplug all these machines and actually go see the world, not just its hospitals. Will’s exactly what Stella needs to stay away from. If he so much as breathes on Stella she could lose her spot on the transplant list. Either one of them could die. The only way to stay alive is to stay apart. But suddenly six feet doesn’t feel like safety. It feels like punishment. What if they could steal back just a little bit of the space their broken lungs have stolen from them? Would five feet apart really be so dangerous if it stops their hearts from breaking too?
Author: Steffanie Strathdee Publisher: Hachette Books ISBN: 0316418072 Category : Science Languages : en Pages : 346
Book Description
An electrifying memoir of one woman's extraordinary effort to save her husband's life-and the discovery of a forgotten cure that has the potential to save millions more. "A memoir that reads like a thriller." -New York Times Book Review "A fascinating and terrifying peek into the devastating outcomes of antibiotic misuse-and what happens when standard health care falls short." -Scientific American Epidemiologist Steffanie Strathdee and her husband, psychologist Tom Patterson, were vacationing in Egypt when Tom came down with a stomach bug. What at first seemed like a case of food poisoning quickly turned critical, and by the time Tom had been transferred via emergency medevac to the world-class medical center at UC San Diego, where both he and Steffanie worked, blood work revealed why modern medicine was failing: Tom was fighting one of the most dangerous, antibiotic-resistant bacteria in the world. Frantic, Steffanie combed through research old and new and came across phage therapy: the idea that the right virus, aka "the perfect predator," can kill even the most lethal bacteria. Phage treatment had fallen out of favor almost 100 years ago, after antibiotic use went mainstream. Now, with time running out, Steffanie appealed to phage researchers all over the world for help. She found allies at the FDA, researchers from Texas A&M, and a clandestine Navy biomedical center -- and together they resurrected a forgotten cure. A nail-biting medical mystery, The Perfect Predator is a story of love and survival against all odds, and the (re)discovery of a powerful new weapon in the global superbug crisis.
Author: Sarah J. Maas Publisher: Ember ISBN: 0399549722 Category : Young Adult Fiction Languages : en Pages : 402
Book Description
Sizzling with action and suspense, #1 New York Times bestselling author SARAH J. MAAS delivers with this DC Icons coming-of-age Selina Kyle who will steal readers' hearts in the YA blockbuster: CATWOMAN! DC ICONS IS NOW A NEW YORK TIMES BESTSELLING SERIES! "A Catwoman story with Maas' signature touch. . . . Devilish." --Entertainment Weekly When the Bat's away, the Cat will play. It's time to see how many lives this cat really has. Two years after escaping Gotham City's slums, Selina Kyle returns as the mysterious and wealthy Holly Vanderhees. She quickly discovers that with Batman off on a vital mission, the city looks ripe for the taking. Meanwhile, Luke Fox wants to prove that as Batwing he has what it takes to help people. He targets a new thief on the prowl who has teamed up with Poison Ivy and Harley Quinn. Together, they are wreaking havoc. This Catwoman is clever—she may be Batwing's undoing. In this third DC Icons book, Selina is playing a desperate game of cat and mouse, forming unexpected friendships and entangling herself with Batwing by night and her devilishly handsome neighbor Luke Fox by day. But with a dangerous threat from the past on her tail, will she be able to pull off the heist that's closest to her heart? "Maas has a gift for crafting fierce female protagonists. . . . An epic shoutout to all the bad girls who know how to have fun." —Kirkus Reviews, STARRED REVIEW "A Catwoman story unlike anything you've seen before." --Nerdist Don't miss the rest of the DC Icons series! Powerful reads in any order you choose: Wonder Woman: Warbringer by Leigh Bardugo Batman: Nightwalker by Marie Lu Superman: Dawnbreaker by Matt de la Peña
Author: Isabel Stenzel Byrnes Publisher: University of Missouri Press ISBN: 0826273424 Category : Biography & Autobiography Languages : en Pages : 361
Book Description
For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood.Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: “We have an old life—one of growing up with chronic illness—and anew life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.
Author: Kelsey M Finn
Author: Kelsey M Finn
Author: Kelsey M Finn
Author: Cynthia S. Henry
Author: Diane Shader Smith
Author: Tim Sweeney
Author: Andy C. Lipman
Author: Rachael Lippincott
Author: Steffanie Strathdee
Author: Sarah J. Maas
Author: Isabel Stenzel Byrnes