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Author: Chris Kaposy Publisher: MIT Press ISBN: 0262037718 Category : Science Languages : en Pages : 237
Book Description
An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Author: Chris Kaposy Publisher: MIT Press ISBN: 0262037718 Category : Science Languages : en Pages : 237
Book Description
An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Author: Kathryn Lynard Soper Publisher: Special Needs Collection ISBN: 9781606132760 Category : Children with disabilities Languages : en Pages : 0
Book Description
This commemorative 10th anniversary edition of Gifts will include 10 new personal stories, along with "where are they now" updates on many of the children and families featured in the first edition. Gifts is the much-loved collection of over 60 essays written by mothers who share their truths about raising children with Down syndrome. Powerful then and powerful now, it affirms over and over that a life with an extra chromosome is one worth living.
Author: Amy Silverman Publisher: ISBN: 9781606132753 Category : Child rearing Languages : en Pages :
Book Description
All parent stories about raising a child with Down syndrome are special and unique, but in the hands of a good writer, they can have the power to reach, change, and resonate far beyond family and friends. And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.
Author: Michael Berube Publisher: Vintage ISBN: 0679758666 Category : Family & Relationships Languages : en Pages : 306
Book Description
When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.
Author: Brian Skotko Publisher: Special Needs Collection ISBN: 9781890627867 Category : Brothers and sisters Languages : en Pages : 0
Book Description
Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Managing uncomfortable situations Sorting out your feelings Becoming an advocate What the future holds for you and your sibling Finding local and national resources Thoughtful, knowledgeable answers are provided by Brian Skotko, the brother of a young woman with Down syndrome, and Sue Levine, a social worker focused on sibling issues for the past 30 years. Fasten Your Seatbelt gives teens the green light to explore their own feelings and questions about their sibling with Down syndrome and how their relationship may change in the future. Wondering whats on their minds? Here are a few sample questions from the book: Why does my brother always have temper tantrums? How can one extra chromosome make someone so different? Can my sister with Down syndrome marry someday? Will my brother be able to live on his own as an adult?
Author: Jen Jacob Publisher: Simon and Schuster ISBN: 1440592918 Category : Family & Relationships Languages : en Pages : 204
Book Description
Help your child succeed and thrive! As a parent of a child diagnosed with Down syndrome, you may be feeling unsure of what to do next or where your child's journey will take you. In this book, authors Jen Jacob and Mardra Sikora share their experiences and guide you through life with Ds with expert advice from diagnosis to adulthood. Each page teaches you ways to support your child through major milestones; nurture their development; and ensure that they succeed behaviorally, socially, and cognitively. You'll also find valuable information on: Sharing the news with loved ones Transitioning into primary school Developing your child's social skills Discussing future opportunities, including employment and housing options With The Parent's Guide to Down Syndrome, you will have the tools you need to raise a happy, healthy, and thriving child.
Author: Heather Avis Publisher: Zondervan ISBN: 0310345499 Category : Biography & Autobiography Languages : en Pages : 224
Book Description
When life looks radically different than the plan we have for ourselves, it's the lucky few that recognize God's plan is best. That's what adoptive mom Heather Avis learned, and that's the invitation of this book. As the mother of three adopted children - two with Down syndrome - Heather Avis has learned that it's truly the lucky few who get to live a life like hers, who actually recognize that God's plans are best, even when they seem so radically different from the plans we have for ourselves. When Heather started her journey into parenthood she never thought it would look like this, never planned to have three adopted children, and certainly never imagined that two of them would have Down syndrome. But like most things God does, once she stepped into the craziness and confusion that comes with the unknown and the unplanned, she realized that they were indeed among the lucky few. Discover in this book what 70,000+ followers of Heather's hit Instagram account @macymakesmyday already know: the power of faith and family can help us stay strong in the toughest times. This book will also be especially touching to those with adopted family members or children with Down syndrome in their lives.
Author: Kelle Hampton Publisher: William Morrow Paperbacks ISBN: 9780062045041 Category : Biography & Autobiography Languages : en Pages : 0
Book Description
“In her tender and genuinely beautiful memoir, Kelle Hampton encourages us to not simply accept the unexpected circumstances of our lives, but to embrace them like the things we wished for all along.” —Matthew Logelin, New York Times bestselling author of Two Kisses for Maddy Bloom is an inspiring and heartfelt memoir that celebrates the beauty found in the unexpected, the strength of a mother’s love, and, ultimately, the amazing power of perspective. The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.
Author: Elizabeth A. Byrne Publisher: Psychology Press ISBN: 0415006082 Category : Children with mental disabilities Languages : en Pages : 168
Book Description
The authors present research based on interviews with families in the Manchester Down's Syndrome Cohort given to professionals involved in the welfare of children with Down's Syndrome or in the provision of community care and support for their families.
Author: Chris Kaposy
Author: Chris Kaposy
Author: Kathryn Lynard Soper
Author: Amy Silverman
Author: Michael Berube
Author: Brian Skotko
Author: Jen Jacob
Author: Heather Avis
Author: Natalie Hale
Author: Kelle Hampton
Author: Elizabeth A. Byrne