Faces of Huntington's PDF Download

Author: Carmen Leal-Pock
Publisher: Belleville, Ont. : Essence Pub.
ISBN: 9781894169103
Category : Huntington's chorea
Languages : en
Pages : 363

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Author: Adam Rosenblatt
Publisher:
ISBN: 9780963773029
Category : Huntington's chorea
Languages : en
Pages : 85

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Author: Cicero M Fain III
Publisher: University of Illinois Press
ISBN: 0252051432
Category : History
Languages : en
Pages : 247

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How African Americans thrived in a West Virginia city By 1930, Huntington had become West Virginia's largest city. Its booming economy and relatively tolerant racial climate attracted African Americans from across Appalachia and the South. Prosperity gave these migrants political clout and spurred the formation of communities that defined black Huntington--factors that empowered blacks to confront institutionalized and industrial racism on the one hand and the white embrace of Jim Crow on the other. Cicero M. Fain III illuminates the unique cultural identity and dynamic sense of accomplishment and purpose that transformed African American life in Huntington. Using interviews and untapped archival materials, Fain details the rise and consolidation of the black working class as it pursued, then fulfilled, its aspirations. He also reveals how African Americans developed a host of strategies--strong kin and social networks, institutional development, property ownership, and legal challenges--to defend their gains in the face of the white status quo. Eye-opening and eloquent, Black Huntington makes visible another facet of the African American experience in Appalachia.

Author: Oliver Quarrell
Publisher: Oxford University Press, USA
ISBN: 0199236127
Category : Medical
Languages : en
Pages : 222

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Book Description
Huntington's disease (HD) is an inherited progressive neurodegenerative disorder. Although onset of HD usually occurs in adulthood, a small percentage of cases develop symptoms before 20 years of age (juvenile-onset Huntington's Disease or JHD). This book summarises, for the first time, the clinical and scientific knowledge available on JHD.

Author: Trish Dainton
Publisher:
ISBN: 9781908105097
Category : Huntington's disease
Languages : en
Pages : 180

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Book Description
Using poetry and prose, this book aims at describing Huntington's disease through the eyes of a carer based on her own experiences, and those of many hundreds of carers and sufferers. With over seventy poems, and their supplementary stories grouped within eight themes from science, to society, it touches on the practical sides of caring and darker side of human nature. Being the complex beast that it is, the book not only covers an insight into Huntington's but into the plight of people suffering from all kinds of mental and physical disability, and of those caring for them.

Author: Samuel P. Huntington
Publisher:
ISBN: 9780684866697
Category : Americanization
Languages : en
Pages : 0

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America was founded by settlers who brought with them a distinct culture including the English language, Protestant values, individualism, religious commitment, and respect for law. The waves of later immigrants came gradually accepted these values and assimilated into America's Anglo-Protestant culture. More recently, however, national identity has been eroded by the problems of assimilating massive numbers of immigrants, bilingualism, multiculturalism, the devaluation of citizenship, and the "denationalization" of American élites. September 11 brought a revival of American patriotism, but already there are signs that this is fading. This book shows the need for us to reassert the core values that make us Americans.--From publisher description.

Author: Therese Crutcher-Marin
Publisher: Norcal Publishing Company
ISBN: 9780998442204
Category : Biography & Autobiography
Languages : en
Pages : 312

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Therese Crutcher is not a risk taker. Through meticulous planning, she eliminates as much uncertainty from her life as she can. Yet during her senior year of college, blithely planning to marry her beloved John Marin, she is suddenly thrown into turmoil when John's sisters announce they finally know what killed their mother, Huntington's disease. John and his three older sisters have a fifty-percent chance of inheriting Huntington's, which slowly kills the brain cells that affect movement and cognition. John says, "You never know what will happen in life," but his at-risk status shakes Therese to the core. How can she live with such uncertainty? Eventually, Therese takes the biggest gamble of her life and marries John. All four Marins choose to ignore what they cannot change; and in the early years, John and his sisters--a big part of Therese's life-- remain healthy, fun-loving, and as close as ever. When she observes symptoms in Lora, the oldest sister, Therese fears that Huntington's has found her. And when Marcia is diagnosed with the disease, Therese--with two small children, a career, and a husband now in the prime age range to show symptoms--struggles against the demons that feed her fear.When Marcia's symptoms worsen, Therese lovingly oversees her care. Several years later, Cindy, the youngest, also develops Huntington's, and Therese does the same, feeling that managing the care of these loved ones is the greatest gift she can give them.Thus unfolds a life filled with unpredictability, tough choices, and pain, and yet full of love, good times, and great joy. Therese comes to realize that the uncertainty she willingly took on has opened her heart to love more deeply; that acknowledging her world could change overnight has made her life richer. She has learned to overlook shortcomings and to compromise, to let go of anger, to find joy in the simple things. And though John's sisters leave this world far too soon, the Marin siblings, she realizes, have taught her about embracing life, forgiveness, and unconditional love.

Author: Lisa Genova
Publisher: Simon and Schuster
ISBN: 1476717834
Category : Fiction
Languages : en
Pages : 368

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A New York Times bestseller ▪ A Library Journal Best Books of 2015 Pick ▪ A St. Louis Post-Dispatch Best Books of 2015 Pick ▪A GoodReads Top Ten Fiction Book of 2015 ▪ A People Magazine Great Read From New York Times bestselling author and neuroscientist Lisa Genova comes a “heartbreaking…very human novel” (Matthew Thomas, author of We Are Not Ourselves) that does for Huntington’s disease what her debut novel Still Alice did for Alzheimer’s. Joe O’Brien is a forty-three-year-old police officer from the Irish Catholic neighborhood of Charlestown, Massachusetts. A devoted husband, proud father of four children in their twenties, and respected officer, Joe begins experiencing bouts of disorganized thinking, uncharacteristic temper outbursts, and strange, involuntary movements. He initially attributes these episodes to the stress of his job, but as these symptoms worsen, he agrees to see a neurologist and is handed a diagnosis that will change his and his family’s lives forever: Huntington’s disease. Huntington’s is a lethal neurodegenerative disease with no treatment and no cure, and each of Joe’s four children has a 50 percent chance of inheriting their father’s disease. While watching her potential future in her father’s escalating symptoms, twenty-one-year-old daughter Katie struggles with the questions this test imposes on her young adult life. As Joe’s symptoms worsen and he’s eventually stripped of his badge and more, Joe struggles to maintain hope and a sense of purpose, while Katie and her siblings must find the courage to either live a life “at risk” or learn their fate. Praised for writing that “explores the resilience of the human spirit” (San Francisco Chronicle), Lisa Genova has once again delivered a novel as powerful and unforgettable as the human insights at its core.

Author: Sandy Sulaiman
Publisher: Jessica Kingsley Publishers
ISBN: 1846426308
Category : Health & Fitness
Languages : en
Pages : 178

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Book Description
Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.

Author: Jane S. Paulsen
Publisher:
ISBN: 9780963773043
Category : Huntington's chorea
Languages : en
Pages : 46

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