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Author: Nykole Sutherland Publisher: ISBN: Category : Genetic counseling Languages : en Pages : 56
Book Description
Genetic counseling and testing for adult-onset conditions is a rapidly expanding area of personalized medicine. To date, there have been no studies documenting how this trend has influenced genetic counselors’ personal decisions about genetic testing. The purpose of this study was to explore genetic counselors’ thoughts, behaviors, and experiences surrounding their own personal experiences with this type of genetics evaluation. A survey composed of closed and open-ended questions was designed to elicit information from current genetic counselors via the NSGC listserv. In total, 390 individuals responded to the survey. Genetic counselors received testing by ways of consultation with a genetic counselor, by ordering the testing themselves, or by their primary care physician ordering the testing. Statistical analysis of the data shows that genetic counselors are more likely to participate in genetic testing for an adult-onset condition as they gain both age (p = 0.001) and experience in the field (p = 0.007), or if they work in an industry/laboratory setting (p =
Author: Nykole Sutherland Publisher: ISBN: Category : Genetic counseling Languages : en Pages : 56
Book Description
Genetic counseling and testing for adult-onset conditions is a rapidly expanding area of personalized medicine. To date, there have been no studies documenting how this trend has influenced genetic counselors’ personal decisions about genetic testing. The purpose of this study was to explore genetic counselors’ thoughts, behaviors, and experiences surrounding their own personal experiences with this type of genetics evaluation. A survey composed of closed and open-ended questions was designed to elicit information from current genetic counselors via the NSGC listserv. In total, 390 individuals responded to the survey. Genetic counselors received testing by ways of consultation with a genetic counselor, by ordering the testing themselves, or by their primary care physician ordering the testing. Statistical analysis of the data shows that genetic counselors are more likely to participate in genetic testing for an adult-onset condition as they gain both age (p = 0.001) and experience in the field (p = 0.007), or if they work in an industry/laboratory setting (p =
Author: Barbara B. Biesecker Publisher: Oxford University Press, USA ISBN: 0190626429 Category : Medical Languages : en Pages : 241
Book Description
A CRITICAL NEW APPROACH FOR LEARNING AND THRIVING IN A FIELD OF CHANGE The scope and responsibilities of today's genetic counselors exceed the reasonable capacity of any one educational resource. While the field's first-year curriculum may be relatively fixed, the landscape of what comes after that -- a dizzying mix of practice, ethics, research design, and professional competencies -- is increasingly broad. Advanced Genetic Counseling offers an overdue extension of the field's core curriculum. From navigating ethical dilemmas and potential conflicts of interest to confronting the biases and patterns of thought that can limit counselors' interactions with clients, it prepares readers to face the profession's most challenging aspects with confidence. Drawing on techniques from psychotherapy, social psychology, and health behavior, Advanced Genetic Counseling is an essential resource for trainees and mid-career professionals. It offers a roadmap not just for addressing client needs, but for the future of genetic counseling education.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309047986 Category : Medical Languages : en Pages : 353
Book Description
Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
Author: Patricia M. Veach Publisher: John Wiley & Sons ISBN: 1119529816 Category : Medical Languages : en Pages : 416
Book Description
The second edition of Genetic Counseling Practice: Advanced Concepts and Skills, provides in-depth content regarding the advanced competencies for meeting patient needs across the changing landscape of genetic counseling practice. The content aligns with the Reciprocal Engagement Model (REM) of practice which integrates the biomedical knowledge and psychosocial aspects of genetic counseling. This edition has been revised and expanded to reflect advances made in the present-day field. Edited by a team two genetic counselors and a psychologist, the chapters offer a holistic picture of genetic counseling. Chapter authors are all recognized experts in the profession. The chapters are grounded in evidence-based practice and research. Each chapter includes learning activities to help readers apply concepts and skills. Featured topic areas include: Meeting the needs of culturally diverse patients Addressing challenging patient dynamics Working with children, adolescents and families Using emerging service delivery models for genetic counseling Engaging in self-reflective, deliberate practice Promoting genetic counselor professional development Genetic Counseling Practice is an indispensable guide to the complex and evolving field of genetic counseling, and this updated second edition will help practitioners and trainees alike navigate its most pressing and practical challenges with skill and care.
Author: Bonnie S. LeRoy Publisher: John Wiley & Sons ISBN: 111821059X Category : Science Languages : en Pages : 438
Book Description
The first advanced-level genetics counseling skills resource As genetic medicine and testing continue to expand, so the role of the genetic counselor is transforming and evolving. Genetic Counseling Practice: Advanced Concepts and Skills is the first text to address ways that genetic counselors can deepen their skills to meet expanding practice demands. This timely resource not only helps readers further develop their abilities to gather relevant data and interpret it for patients, it also aids them in surpassing their usual role by truly understanding patient situations, incorporating patient values into clinical practice, providing in-depth support, and facilitating thoroughly informed, autonomous decisions. Edited by an expert cross-disciplinary team consisting of a genetic counseling program director, a licensed psychologist, and a nurse/bioethicist/family social scientist, this authoritative reference provides specific and detailed instruction in addressing psychosocial aspects of genetic counseling practice and professional development and training issues of genetic counselors. Provides a process view of genetic counselor service provision; i.e., skills that promote desired genetic counseling outcomes are emphasized (such as relationship skills, patient characteristics, client behaviors, and extra-clinical skills) Includes experiential activities in every chapter to help readers apply concepts and skills Draws on the experience of widely recognized experts in genetic counseling theory, practice, and research, who serve as chapter authors Features numerous specific, real-life examples from clinical practice Genetic Counseling Practice addresses issues relevant to practicing genetic counselors as well as students of genetic counseling programs. In addition, oncology nurses, social workers, and psychologists working with genetic counseling patients and families; medical geneticists and physicians training in the field; and physician assistants will also benefit from this resource.
Author: Wendy R. Uhlmann Publisher: John Wiley & Sons ISBN: 1118210530 Category : Medical Languages : en Pages : 644
Book Description
The first book devoted exclusively to the principles and practice of genetic counseling—now in a new edition First published in 1998, A Guide to Genetic Counseling quickly became a bestselling and widely recognized text, used nationally and internationally in genetic counseling training programs. Now in its eagerly anticipated Second Edition, it provides a thoroughly revised and comprehensive overview of genetic counseling, focusing on the components, theoretical framework, and unique approach to patient care that are the basis of this profession. The book defines the core competencies and covers the genetic counseling process from case initiation to completion—in addition to addressing global professional issues—with an emphasis on describing fundamental principles and practices. Chapters are written by leaders in the field of genetic counseling and are organized to facilitate academic instruction and skill attainment. They provide the most up-to-date coverage of: The history and practice of genetic counseling Family history Interviewing Case preparation and management Psychosocial counseling Patient education Risk communication and decision-making Medical genetics evaluation Understanding genetic testing Medical documentation Multicultural counseling Ethical and legal issues Student supervision Genetic counseling research Professional development Genetics education and outreach Evolving roles and expanding opportunities Case examples A Guide to Genetic Counseling, Second Edition belongs on the syllabi of all medical and human genetics and genetic counseling training programs. It is an indispensable reference for both students and healthcare professionals working with patients who have or are at risk for genetic conditions.
Author: Patricia McCarthy Veach Publisher: Springer ISBN: 3319747991 Category : Medical Languages : en Pages : 416
Book Description
Designed as an aid to students in Genetics counseling classes and professionals interested in honing their skills, Facilitating the Genetic Counseling Process will guide the reader through the why's and how's of assisting clients with these complex issues. The authors' collective years of both teaching students and counseling clients is reflected in the clear, practical approach of this manual.
Author: Diane M. Bartells Publisher: Routledge ISBN: 1351328581 Category : Medical Languages : en Pages : 283
Book Description
Genetic counselors translate the findings of scientific investigation into meaningful accounts that enable individuals and families to make decisions about their lives. This collection of original papers explores the history, values, and norms of that process, with some focus on the value of nondirectiveness in counseling practice. The contributors; examination of genetic counseling issues serves as a foundation from which to address other ethical, legal, and policy considerations in the expanding universe of clinical genetics.
Author: Janice L. Berliner Publisher: Oxford University Press, USA ISBN: 019994489X Category : Medical Languages : en Pages : 241
Book Description
By using a creative approach that focuses on a single extended family as a case example to illustrate each chapter's key point, the authors elucidate ethical issues arising in the genetics clinic and laboratory surrounding many timely issues.
Author: Nykole Sutherland
Author: Nykole Sutherland
Author: Barbara B. Biesecker
Author: Institute of Medicine
Author: Patricia M. Veach
Author: Bonnie S. LeRoy
Author: Wendy R. Uhlmann
Author: Christine Evans
Author: Patricia McCarthy Veach
Author: Diane M. Bartells
Author: Janice L. Berliner