Ethics and Integrity in Research with Older People and Service Users PDF Download

Author: Roger O’Sullivan
Publisher: Emerald Group Publishing
ISBN: 1804554227
Category : Social Science
Languages : en
Pages : 241

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Book Description
Setting out practical insights and guidance, as well as addressing theoretical and philosophical aspects, this volume includes contributions from ‘researchers’, ’the researched’ and ‘those in between’ on topics including dementia, family carers, and mental health with the common goal of producing high quality 'user' relevant research.

Author: Anne Good
Publisher: Emerald Group Publishing
ISBN: 1787693112
Category : Social Science
Languages : en
Pages : 190

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Book Description
Considering important aspects of general ethical research principles, this volume establishes an inspiring vision for both present and future improvements across all levels of disability research.

Author: Mihalis Kritikos
Publisher: Emerald Group Publishing
ISBN: 1837537747
Category : Social Science
Languages : en
Pages : 136

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Book Description
Proposing a clear list of policy options, this volume tackles structural challenges with the aim of safeguarding a responsible deployment of AI-powered monitoring tools within the workplace and protecting employees as data subjects whose digital footprints are under constant scrutiny.

Author: Lily George
Publisher: Emerald Group Publishing
ISBN: 1787693899
Category : Social Science
Languages : en
Pages : 364

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Book Description
It’s important that research with indigenous peoples is ethically and methodologically relevant. This volume looks at challenges involved in this research and offers best practice guidelines to research communities, exploring how adherence to ethical research principles acknowledges and maintains the integrity of indigenous people and knowledge.

Author: Marshall B. Kapp, JD, MPH, FCLM
Publisher: Springer Publishing Company
ISBN: 0826116361
Category : Law
Languages : en
Pages : 184

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Book Description
Perplexing ethical questions emerge when conducting research involving older adult participants. Fundamental ethical concerns often grappled with include the ability to obtain truly voluntary and competent informed consent, the proper role of surrogate decision making in the research context, and the equitable selection of research subjects. This volume brings to the forefront a discussion of how to encourage essential research specifically designed to benefit older persons while protecting the legal and ethical rights of actual and potential older research participants. Highly qualified and diverse contributors analyze and explain some of the most salient and legal conundrums implicated in the design, conduct, interpretation, and application of research protocols that touch on these problems of aging and the aged.

Author: Martha B. Holstein, PhD
Publisher: Springer Publishing Company
ISBN: 0826122981
Category : Medical
Languages : en
Pages : 336

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Book Description
Caring for elders outside of institutions is the fastest growing sector of US health care. Building on their research study at the Park Ridge Center, editors Holstein and Mitzen, together with a team of experts, examine the complexities involved in developing an ethics for community-based long-term care. They also challenge policymakers to make home care a more viable option for older people in need. Chapters address many of the ethical and practical problems that arise in the care of older people with physical and mental disabilities--including how to allocate scarce funds, how to keep good caregivers, how to balance concerns of autonomy, risk and safety, and worker stress. The volume is an excellent resource for practitioners, policymakers, and students.

Author: Hugh McLaughlin
Publisher: SAGE
ISBN: 1847870716
Category : Social Science
Languages : en
Pages : 186

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Book Description
This book represents a major contribution to the development and increasingly accepted importance of involving service users in research. It argues that this development is neither a fad nor a cure-all, and highlights the strengths, weaknesses, benefits, and costs of the approach. Using reflexive questions and practical examples to challenge the reader to consider their own position in relation to these issues, this book should occupy a central place on the shelves of all undergraduate health and social welfare students.

Author: Joseph E. Trimble
Publisher: SAGE
ISBN: 9780761930433
Category : Psychology
Languages : en
Pages : 398

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Book Description
This volume addresses challenges at methodological, procedural and conceptual levels for the responsible conduct of research in the field. Each chapter includes case examples to illustrate significant ethical principles.

Author: National Research Council
Publisher: National Academies Press
ISBN: 0309084342
Category : Social Science
Languages : en
Pages : 569

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Book Description
Since the late 1970s when Congressman Claude Pepper held widely publicized hearings on the mistreatment of the elderly, policy makers and practitioners have sought ways to protect older Americans from physical, psychological, and financial abuse. Yet, during the last 20 years fewer than 50 articles have addressed the shameful problem that abusersâ€"and sometimes the abused themselvesâ€"want to conceal. Elder Mistreatment in an Aging America takes a giant step toward broadening our understanding of the mistreatment of the elderly and recommends specific research and funding strategies that can be used to deepen it. The book includes a discussion of the conceptual, methodological, and logistical issues needed to create a solid research base as well as the ethical concerns that must be considered when working with older subjects. It also looks at problems in determination of a report's reliability and the role of physicians, EMTs, and others who are among the first to recognize situations of mistreatment. Elder Mistreatment in an Aging America will be of interest to anyone concerned about the elderly and ways to intervene when abuse is suspected, including family members, caregivers, and advocates for the elderly. It will also be of interest to researchers, research sponsors, and policy makers who need to know how to advance our knowledge of this problem.

Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
ISBN: 1587634333
Category : Medical
Languages : en
Pages : 385

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Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.