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Author: Roger J. Stancliffe Publisher: Springer Nature ISBN: 3030986977 Category : Psychology Languages : en Pages : 542
Book Description
This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning
Author: Roger J. Stancliffe Publisher: Springer Nature ISBN: 3030986977 Category : Psychology Languages : en Pages : 542
Book Description
This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning
Author: I. Leslie Rubin Publisher: Springer ISBN: 9783319180953 Category : Medical Languages : en Pages : 0
Book Description
This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.
Author: Eric Emerson Publisher: Cambridge University Press ISBN: 0521133149 Category : Medical Languages : en Pages : 177
Book Description
An authoritative, evidence-based overview of the health needs of people with intellectual disabilities and how to manage these needs appropriately.
Author: Robert L. Schalock Publisher: American Association ISBN: 9780940898967 Category : Developmentally disabled Languages : en Pages : 0
Book Description
The concepts of quality of life and personal outcomes -- Quality domains and indicators -- Measuring personal outcomes: an information collection process -- Managerial strategies: opening the doors inward -- Personal outcome measures: values and metrics for an integrated management system -- Rationale for systems-level performance indicators that reflect personal outcomes -- Considerations in developing performance indicators at the macro level -- How do I use performance indicator data? -- Reframing quality and rethinking quality improvement -- Emerging challenges and opportunities.
Author: Jillian Pawlyn Publisher: John Wiley & Sons ISBN: 1444301535 Category : Medical Languages : en Pages : 376
Book Description
Children and adults with profound and multiple learningdisabilities (PMLD) are among the most marginalised people insociety. They have some of the highest support needs and are mostreliant on services. This accessible text presents and promotescurrent best practice regarding interventions to meet the complexhealth needs of a person with profound & multiple learningdisabilities. Practical in focus, this text provides evidence-basedguidance on meeting the complex needs of a person with PMLD. The text presents a range of complex health needs that apractitioner may face, such as communication, nutrition, epilepsy,vision and mobility. Each practice-focused chapter provides cleardefinitions of the condition, with current evidence-basedbest-practice supporting the intervention. Written by a team of professionals who have wide experience andinterest in this subject area, this text will be invaluable for allthose working with, and caring for those with profound and multiplelearning disabilities.
Author: National Academies of Sciences, Engineering, and Medicine Publisher: National Academies Press ISBN: 0309376882 Category : Medical Languages : en Pages : 397
Book Description
Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.
Author: Andrew Hadler Publisher: John Wiley & Sons ISBN: 1119129524 Category : Medical Languages : en Pages : 667
Book Description
Winner of the 2021 PROSE Award for CLINICAL PSYCHOLOGY and PSYCHIATRY Against a global backdrop of problematic adherence to medical treatment, this volume addresses and provides practical solutions to the simple question: "Why don't patients take treatments that could save their lives?" The Wiley handbook of Healthcare Treatment Engagement offers a guide to the theory, research and clinical practice of promoting patient engagement in healthcare treatment at individual, organizational and systems levels. The concept of treatment engagement, as explained within the text, promotes a broader view than the related concept of treatment adherence. Treatment engagement encompasses more readily the lifestyle factors which may impact healthcare outcomes as much as medication-taking, as well as practical, economic and cultural factors which may determine access to treatment. Over a span of 32 chapters, an international panel of expert authors address this far-reaching and fascinating field, describing a broad range of evidence-based approaches which stand to improve clinical services and treatment outcomes, as well as the experience of users of healthcare service and practitioners alike. This comprehensive volume adopts an interdisciplinary approach to offer an understanding of the factors governing our healthcare systems and the motivations and behaviors of patients, clinicians and organizations. Presented in a user-friendly format for quick reference, the text first supports the reader’s understanding by exploring background topics such as the considerable impact of sub-optimal treatment adherence on healthcare outcomes, before describing practical clinical approaches to promote engagement in treatment, including chapters referring to specific patient populations. The text recognizes the support which may be required throughout the depth of each healthcare organization to promote patient engagement, and in the final section of the book, describes approaches to inform the development of healthcare services with which patients will be more likely to seek to engage. This important book: Provides a comprehensive summary of practical approaches developed across a wide range of clinical settings, integrating research findings and clinical literature from a variety of disciplines Introduces and compliments existing approaches to improve communication in healthcare settings and promote patient choice in planning treatment Presents a range of proven clinical solutions that will appeal to those seeking to improve outcomes on a budget Written for health professionals from all disciplines of clinical practice, as well as service planners and policy makers, The Wiley Handbook of Healthcare Treatment Engagement is a comprehensive guide for individual practitioners and organizations alike. 2021 PROSE Biological and Life Sciences Category for Clinical Psychology & Psychiatry
Author: K. Charlie Lakin Publisher: American Association ISBN: 9780940898905 Category : Developmentally disabled Languages : en Pages : 0
Book Description
National Goals is America's first effort to assess the status of the nation with regards to its fulfillment of research goals for persons with intellectual disabilities in areas such as education, positive behavior support, biomedical research, technology, transition planning, health supports, employment, self advocacy, aging, and community supports. The state of the knowledge and research contained in the book in areas such as education, positive behavior support, health supports, biomedical research, technology, and aging makes it an indispensable resource to anyone delivering quality care and services to citizens with intellectual disabilities. The book comes out of a groundbreaking, federal conference held in 2003. America's prominent leaders in the intellectual disability met in Washington, DC to review what this nation knows and needs to learn specifically in the area of research to fulfill the promises made to persons with developmental disabilities. In the words of the authors, research plays a central role in defining and achieving national goals for people with intellectual and developmental disabilities and their families. To be useful, this research must provide accessible, relevant information to people with disabilities and their families, professionals, the general public, and public officials. The result is a book that distills scientific research into comprehensible and accessible information so that key stake holders can align the reality of persons with intellectual and developmental disabilities with public policy--the clear and unambiguous promises made to them in the national legislation, court decisions, promises of the President, and other sources of national policy.
Author: Arjun Chanmugam Publisher: Cambridge University Press ISBN: 0521879264 Category : Medical Languages : en Pages : 333
Book Description
A rapid reference for management of patients with psychiatric disorders for emergency department physicians, primary care and acute care providers.
Author: Roger J. Stancliffe
Author: Roger J. Stancliffe
Author: I. Leslie Rubin
Author: Eric Emerson
Author: Robert L. Schalock
Author: Jillian Pawlyn
Author: National Academies of Sciences, Engineering, and Medicine
Author: Andrew Hadler
Author: K. Charlie Lakin
Author: Arjun Chanmugam
Author: Irene Tuffrey-Wijne