Direct-to-consumer Genetic Tests, Government Oversight, and the First Amendment PDF Download

Author: Gail H. Javitt
Publisher:
ISBN:
Category : Human chromosome abnormalities
Languages : en
Pages : 52

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Author: United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Oversight and Investigations
Publisher:
ISBN:
Category : Direct-to-consumer medical device advertising
Languages : en
Pages : 244

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Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309047986
Category : Medical
Languages : en
Pages : 353

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Book Description
Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

Author: United States. Congress. Senate. Special Committee on Aging
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 224

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Author: Geoffrey S. Ginsburg
Publisher: Academic Press
ISBN: 0123822270
Category : Science
Languages : en
Pages : 1343

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Book Description
Genomic and Personalized Medicine, Second Edition - winner of a 2013 Highly Commended BMA Medical Book Award for Medicine - is a major discussion of the structure, history, and applications of the field, as it emerges from the campus and lab into clinical action. As with the first edition, leading experts review the development of the new science, the current opportunities for genome-based analysis in healthcare, and the potential of genomic medicine in future healthcare. The inclusion of the latest information on diagnostic testing, population screening, disease susceptability, and pharmacogenomics makes this work an ideal companion for the many stakeholders of genomic and personalized medicine. With advancing knowledge of the genome across and outside protein-coding regions of DNA, new comprehension of genomic variation and frequencies across populations, the elucidation of advanced strategic approaches to genomic study, and above all in the elaboration of next-generation sequencing, genomic medicine has begun to achieve the much-vaunted transformative health outcomes of the Human Genome Project, almost a decade after its official completion in April 2003. Highly Commended 2013 BMA Medical Book Award for Medicine More than 100 chapters, from leading researchers, review the many impacts of genomic discoveries in clinical action, including 63 chapters new to this edition Discusses state-of-the-art genome technologies, including population screening, novel diagnostics, and gene-based therapeutics Wide and inclusive discussion encompasses the formidable ethical, legal, regulatory and social challenges related to the evolving practice of genomic medicine Clearly and beautifully illustrated with 280 color figures, and many thousands of references for further reading and deeper analysis

Author: Harvard Law Review
Publisher: Quid Pro Books
ISBN: 1610278941
Category : Law
Languages : en
Pages : 498

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Book Description
The Harvard Law Review is offered in a digital edition, featuring active Contents, linked notes, and proper ebook formatting. The contents of Issue 5 include: Article, "Multistage Adjudication," by Louis Kaplow Book Review, "Humanizing the Criminal Justice Machine: Re-Animated Justice or Frankenstein's Monster?" by Nicola Lacey Note, "Importing a Trade or Business Limitation into sec. 2036: Toward a Regulatory Solution to FLP-Driven Transfer Tax Avoidance" Note, "The Benefits of Unequal Protection" Note, "Diagnostic Method Patents and Harms to Follow-On Innovation" Note, "Three Formulations of the Nexus Requirement in Reasonable Accommodations Law" In addition, student research explores Recent Cases on the intersection of age discrimination claims and sec. 1983 claims, the First Amendment implications of restricting airline ads and of compelled speech in suicide advisories, whether transactions in unlisted securities are "domestic," whether employee misuse of computers violates the Computer Fraud and Abuse Act, and prudential standing in environmental cases. Finally, the issue includes a Recent Book essay and several book notes of Recent Publications. The Harvard Law Review is a student-run organization whose primary purpose is to publish a journal of legal scholarship. The Review comes out monthly from November through June and has roughly 2000 pages per volume. The organization is formally independent of the Harvard Law School. Student editors make all editorial and organizational decisions. This issue of the Review is March 2013, the fifth issue of academic year 2012-2013 (Volume 126).

Author: Daniel Lee Kleinman
Publisher: Routledge
ISBN: 113623716X
Category : Political Science
Languages : en
Pages : 541

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Book Description
Over the last decade or so, the field of science and technology studies (STS) has become an intellectually dynamic interdisciplinary arena. Concepts, methods, and theoretical perspectives are being drawn both from long-established and relatively young disciplines. From its origins in philosophical and political debates about the creation and use of scientific knowledge, STS has become a wide and deep space for the consideration of the place of science and technology in the world, past and present. The Routledge Handbook of Science, Technology and Society seeks to capture the dynamism and breadth of the field by presenting work that pushes the reader to think about science and technology and their intersections with social life in new ways. The interdisciplinary contributions by international experts in this handbook are organized around six topic areas: embodiment consuming technoscience digitization environments science as work rules and standards This volume highlights a range of theoretical and empirical approaches to some of the persistent – and new – questions in the field. It will be useful for students and scholars throughout the social sciences and humanities, including in science and technology studies, history, geography, critical race studies, sociology, communications, women’s and gender studies, anthropology, and political science.

Author: Matthias Wienroth
Publisher: Routledge
ISBN: 1317691512
Category : Social Science
Languages : en
Pages : 219

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Book Description
The areas of personal genomics and citizen science draw on – and bring together – different cultures of producing and managing knowledge and meaning. They also cross local and global boundaries, are subjects and objects of transformation and mobility of research practices, evaluation and multi-stakeholder groups. Thirdly, they draw on logics of ‘convergence’: new links between, and new kinds of, stakeholders, spaces, knowledge, practices, challenges and opportunities. This themed collection of essays from nationally and internationally leading scholars and commentators advances and widens current debates in Science and Technology Studies and in Science Policy concerning ‘converging technologies’ by complementing the customary focus on technical aspirations for convergence with the analysis of the practices and logics of scientific, social and cultural knowledge production that constitute contemporary technoscience. In case studies from across the globe, contributors discuss the ways in which science and social order are linked in areas such as direct-to consumer genetic testing and do-it-yourself biotechnologies. Organised into thematic sections, ‘Knowing New Biotechnologies’ explores: • ways of understanding the dynamics and logics of convergences in emergent biotechnologies • governance and regulatory issues around technoscientific convergences • democratic aspects of converging technologies – lay involvement in scientific research and the co-production of biotechnology and social and cultural knowledge.

Author: Susanna Priest
Publisher: University of Chicago Press
ISBN: 022649795X
Category : Science
Languages : en
Pages : 318

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Book Description
From climate to vaccination, stem-cell research to evolution, scientific work is often the subject of public controversies in which scientists and science communicators find themselves enmeshed. Especially with such hot-button topics, science communication plays vital roles. Gathering together the work of a multidisciplinary, international collection of scholars, the editors of Ethics and Practice in Science Communication present an enlightening dialogue involving these communities, one that articulates the often differing objectives and ethical responsibilities communicators face in bringing a range of scientific knowledge to the wider world. In three sections—how ethics matters, professional practice, and case studies—contributors to this volume explore the many complex questions surrounding the communication of scientific results to nonscientists. Has the science been shared clearly and accurately? Have questions of risk, uncertainty, and appropriate representation been adequately addressed? And, most fundamentally, what is the purpose of communicating science to the public: Is it to inform and empower? Or to persuade—to influence behavior and policy? By inspiring scientists and science communicators alike to think more deeply about their work, this book reaffirms that the integrity of the communication of science is vital to a healthy relationship between science and society today.

Author: Richard A. Goodman
Publisher: Oxford University Press
ISBN: 0199748284
Category : Medical
Languages : en
Pages : 609

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Book Description
Continually changing health threats, technologies, science, and demographics require that public health professionals have an understanding of law sufficient to address complex new public health challenges as they come into being. Law in Public Health Practice, Second Edition provides a thorough review of the legal basis and authorities for the core elements of public health practice and solid discussions of existing and emerging high-priority areas where law and public health intersect. As in the previous edition, each chapter is authored jointly by experts in law and public health. This new edition features three completely new chapters, with several others thoroughly revised and updated. New chapters address such topics as the structure of law in US public health systems and practice, the role of the judiciary in public health, and law in chronic disease prevention and control. The chapter on public health emergencies has also been fully revised to take into account both the SARS epidemic of 2003 and the events of the Fall of 2001. The chapter now discusses topics such as the legal basis for declaring emergencies, the legal structure of mutual aid agreements, and the role of the military in emergencies. Other fully revised chapters include those on genomics, injury prevention, identifiable health information, and ethics in the practice of public health. The book begins with a section on the legal basis for public health practice, including foundations and structure of the law, discussions of the judiciary, ethics and practice of public health, and criminal law and international considerations. The second section focuses on core public health applications and the law, and includes chapters on legal counsel for public health practitioners, legal authorities for interventions in public health emergencies, and considerations for special populations. The third section discusses the law in controlling and preventing diseases, injuries, and disabilities. This section includes chapters on genomics, vaccinations, foodborne illness, STDs, reproductive health, chronic disease control, tobacco use, and occupational and environmental health. All chapters take a practical approach and are written in an accessible, user-friendly fashion. This is an excellent resource for a wide readership of public health practitioners, lawyers, and healthcare providers, as well as for educators and students of law and public health.