Author: Peter Ubel Publisher: Text Publishing ISBN: 1921961260 Category : Medical Languages : en Pages : 363
Book Description
Critical Decisions is the most important book on the patient-doctor relationship to date. In this revolutionary book, practicing physician, behavioural scientist, and bioethicist Peter Ubel reveals how hidden dynamics keep us, and our loved ones, from making the best medical choices.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309303133 Category : Medical Languages : en Pages : 470
Book Description
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Author: Committee on Care at the End of Life Publisher: National Academies Press ISBN: 0309518253 Category : Medical Languages : en Pages : 457
Book Description
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Author: Roi Livne Publisher: ISBN: 0674545176 Category : Medical Languages : en Pages : 361
Book Description
Once defiant of death--or even in denial--many American families and health care professionals are embracing the notion that a life consumed by suffering may not be worth living. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.
Author: Susan P. Shapiro Publisher: University of Chicago Press ISBN: 022661574X Category : Medical Languages : en Pages : 349
Book Description
Seven in ten Americans over the age of age of sixty who require medical decisions in the final days of their life lack the capacity to make them. For many of us, our biggest, life-and-death decisions—literally—will therefore be made by someone else. They will decide whether we live or die; between long life and quality of life; whether we receive heroic interventions in our final hours; and whether we die in a hospital or at home. They will determine whether our wishes are honored and choose between fidelity to our interests and what is best for themselves or others. Yet despite their critical role, we know remarkably little about how our loved ones decide for us. Speaking for the Dying tells their story, drawing on daily observations over more than two years in two intensive care units in a diverse urban hospital. From bedsides, hallways, and conference rooms, you will hear, in their own words, how physicians really talk to families and how they respond. You will see how decision makers are selected, the interventions they weigh in on, the information they seek and evaluate, the values and memories they draw on, the criteria they weigh, the outcomes they choose, the conflicts they become embroiled in, and the challenges they face. Observations also provide insight into why some decision makers authorize one aggressive intervention after the next while others do not—even on behalf of patients with similar problems and prospects. And they expose the limited role of advance directives in structuring the process decision makers follow or the outcomes that result. Research has consistently found that choosing life or death for another is one of the most difficult decisions anyone can face, sometimes haunting families for decades. This book shines a bright light on a role few of us will escape and offers steps that patients and loved ones, health care providers, lawyers, and policymakers could undertake before it is too late.
Author: Burnell Burnell Publisher: Routledge ISBN: 1351844261 Category : Psychology Languages : en Pages : 186
Book Description
"Freedom of Information in a Post 9-11 World" is, to date, the first international scholarly examination of the impact of the terrorist attack on the United States in terms of how it may alter academic and corporate research, as well as the sharing of information generated by that research, by international colleagues in technological fields. The collection of essays brings together a widely varied panel of communications experts from different backgrounds and cultures to focus their expertise on the ramifications of this world-changing event. Drawing upon the related but separate disciplines of law, interpersonal communication, semiotics, rhetoric, management, information sciences, and education, the collection adds new insight to the potential future challenges high-tech professionals and academics will face in a global community that now seems much less communal than it did prior to September 11, 2001.In "Freedom to Choose: How to Make End-of-Life Decisions on Your Own Terms", young persons, baby boomers, and "senior citizens" alike will find the information they need to make intelligent, informed, and well-planned decisions about end-of-life care, and to clearly state their wishes based on personal, cultural, religious, and family values. In direct and simple language, Dr. Burnell describes how to prepare for a smooth transition to end-of-life care and what to do to prevent family conflicts, overcome death fears and anxiety, and achieve peace of mind for our loved ones and ourselves.The book gives practical advice on how to make decisions about end-of-life care and how to prepare a living will and durable power of attorney for health care. Dr. Burnell provides guidelines at the end of each chapter on what to consider before preparing these important documents: how to preserve one's rights as a patient; how to choose the right doctor; the best place to be when critically ill; the laws governing advance directives; and the best alternatives for end-of-life care, such as good pain control and assisted dying (where this is legal). "Freedom to Choose" provides a user-friendly approach to facing these difficult decisions. It includes extensive lists of resources and organizations, and a glossary necessary for understanding the issues at hand. As this book makes clear, preparing an advance directive and knowing all the available options at the end of life are the most important steps for achieving peace of mind.The primary audience is anyone, young or old, who needs to prepare a set of advance directives: healthy people, for themselves or their loved ones who are seriously ill or on life support, and people with a terminal illness. The secondary audience is health professionals who deal with people in end-of-life care or with decision-makers on end-of-life issues: primary care physicians; nurses; geriatricians; psychiatrists; hospice doctors, nurses, and volunteer staff; caregivers for the seriously ill; oncologists; interns and residents; counselors; family therapists; psychologists; social workers who work with the dying and bereaved; attorneys; thanatologists; estate planning advisors; senior citizen center staff; college teachers in death and dying courses; professionals taking courses in psychology, gerontology, thanatology, nursing, and social work.
Author: Kathryn Butler Publisher: Crossway ISBN: 1433561042 Category : Religion Languages : en Pages : 232
Book Description
“To prepare yourself to make difficult medical decisions in a distinctly Christian way, you won’t do better than to read Between Life and Death.” —Tim Challies Modern medical advances save countless lives. But for all their merits, sophisticated technologies have created a daunting new challenge, namely a blurring of the expanse between life and death. The dying process is often hidden behind a complex web of medical terminology, statistics, and ethical decisions, making it difficult for patients and loved ones to know how to approach the end of life in a dignity-affirming, Godhonoring, faith-filled way. This book offers a distinctly Christian guide to end-of-life care. It equips readers by explaining common medical jargon, exploring biblical principles that connect to common medical situations, and offering guidance for making critical decisions. In these pages, readers will find the medical knowledge and scriptural wisdom they need to navigate this painful and confusing process with clarity, peace, and discernment.
Author: Joseph T. Batuello Publisher: Virtual Bookworm.Com Pub Incorporated ISBN: 9781589393059 Category : Self-Help Languages : en Pages : 108
Book Description
The time in life when a person or their loved one confronts a serious or terminal illness is trying and stressful. Serious decisions must often be made on short notice and with a minimum of preparation. This time is often burdened by the emotional shock of impending death, and the associated grief. Many people are unprepared to face these trying circumstances and often have little understanding of the medical facts and options available to them.End-of-Life Decisions: A Practical Guide is a concise book designed to provide the relevant information that dying patients and loved ones need to deal with medical decisions and the end of life. It presents, in everyday language, the basic facts regarding end-of-life decision making, the relevant issues concerning mechanical ventilation and tube feeding, as well as discussions of hospice and palliative care, and pain control. This book omits academic discussions of philosophy and tangential anecdotes. When people are confronted with the imminent death of a loved one, they do not wish to wade through hundreds of pages of theory; they need concise facts and accurate information. That's exactly what End-of-Life Decisions provides.
Author: James L. Werth, Jr., PhD Publisher: Springer Publishing Company ISBN: 0826108504 Category : Social Science Languages : en Pages : 255
Book Description
"I found this book to be a well-written, sensitively presented, and important resource for those engaged in this critical area of work. Thank you, Dr. Werth, for making such a substantial contribution to this field."--Journal of Palliative Care "[This book offers] over 20 contributors, all with impeccable credentials, covering many perspectives that we need to consider more frequently and in greater depth...There is much that awaits you in this book."--Illness, Crisis, and Loss "Counseling Clients Near the End of Life is a marvelous resource for mental health providers who are searching for useful information in areas such as the following: resolving ethical dilemmas; assisting clients in planning for the end of life; counseling caregivers of clients who are near the end of life; and assisting people in dealing with grief. The editor of this work, Dr. James Werth, has done a splendid job of gathering various experts to share their perspectives on end of life care and choices at this time of life--and he has also written an excellent chapter on counseling clients who are dying." Gerald Corey, EdD, ABPP Professor Emeritus of Human Services and Counseling California State University, Fullerton This highly accessible guide to counseling people who are terminally ill and their families fills a critical need in the counseling literature. Written for front-line mental health professionals and counseling graduate students, the text integrates research with practical guidance. It is replete with the experiences of contributing authors who are leaders in counseling terminally ill individuals , real-life case examples, clinical pearls of wisdom, and tables of practice pointers that provide quick access to valuable knowledge. The text offers information that is requisite for all counselors who provide services to persons who are terminally ill and their families. It addresses common issues that influence different types of counseling approaches, such as how the age, ethnicity, or religion of a client affects counselor conceptualizations and actions. The book discusses how to manage symptoms of depression, anxiety, and cognitive impairment near the end of life. It explains how advance directives can be used to assist dying individuals and their loved ones. The counseling needs of family members before and after death are addressed as well as counseling loved ones experiencing complicated grief. The text also examines the particular concerns of counselors regarding self-care and the benefits of working as part of a professional team. Woven throughout are important considerations such as cultural diversity, ethical challenges, laws, and regulations; and advocacy at client and social policy levels. Readers will also benefit from the inclusion of additional references for more in-depth study. Key Features: Integrates research with practical and accessible information Provides clinical ìpearlsî that can be put to use immediately Provides a reader-friendly format that includes real-life case studies and tables with important pointers Describes the counseling experiences of leading practitioners that include examples of successful and unsuccessful interventions Based on a comprehensive framework developed by a Working Group of the American Psychological Association
Author: Peter Ubel
Author: Lutheran Academy
Author: Institute of Medicine
Author: Committee on Care at the End of Life
Author: Roi Livne
Author: Susan P. Shapiro
Author: Burnell Burnell
Author: Kathryn Butler
Author: Joseph T. Batuello
Author: James L. Werth, Jr., PhD