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Author: Paul Lima Publisher: Paul Lima ISBN: 1927710480 Category : Body, Mind & Spirit Languages : en Pages : 92
Book Description
Chronic Readers React... "If this book were a movie, the cleaners would have to mop up buckets of tears. Of joy. Of laughter. And yes, of sadness. I'm lucky I had a box of tissues close by." "You cracked my heart, and then fixed it. Broke my heart, and then repaired it. Smashed my heart, but somehow left me feeling that it was fully mended." "I don't know if it's because I have MS, but I laughed, cheered, and cried. Sometimes all three in the same chapter." "You don't have to be sick to love this book." "I had to pause at the end of the final chapter, and have a good cry. Mostly tears of joy. Once composed, I read the epilogue. And damn it, if I was not in tears again." "As a cat lover, 'kitty' was my favorite part of a mighty fine book!" About the Book Paul and Deena are friends with MS and Parkinson's Disease respectively. They've found a wonderful flat renovated for people with disabilities, only they can't afford it. Enter Albert, a former nurse with cancer, and Bolton, an athletic paraplegic. They too look at the flat, and love it. But can't afford it. The solution? The four of them move in together. And life happens. Paul, who has retired from motivational speaking, is motivated into accepting another talk, while working on his painting. Bolton, a former sprinter, tries out for the wheelchair racing team and wheelchair basketball team, while setting up his web design business. Deena, a former PhD student, needs help with her renovation business. Instead of helping to heal people, which he did as a nurse, Albert begins to help Deena heal houses. Our main characters also have to sort out issues with former partners, some of whom have broken up on good terms and some on terms that were not so good, all while dealing with their maladies, and helping each other deal with their chronic issues. In short, illness does not make life, especially if you are determined to live as full a life as possible, despite your malady. And that is just what Paul, Deena, Albert and Bolton try their damnedest to do. About the author Paul Lima has had MS for over 20 years, moving from relapsing remitting MS to secondary progressive MS about five years ago. He has been a professional writer all his healthy and all his sick life. It's been more difficult when ill, but it has just meant he has had to work harder at it.
Author: Paul Lima Publisher: Paul Lima ISBN: 1927710480 Category : Body, Mind & Spirit Languages : en Pages : 92
Book Description
Chronic Readers React... "If this book were a movie, the cleaners would have to mop up buckets of tears. Of joy. Of laughter. And yes, of sadness. I'm lucky I had a box of tissues close by." "You cracked my heart, and then fixed it. Broke my heart, and then repaired it. Smashed my heart, but somehow left me feeling that it was fully mended." "I don't know if it's because I have MS, but I laughed, cheered, and cried. Sometimes all three in the same chapter." "You don't have to be sick to love this book." "I had to pause at the end of the final chapter, and have a good cry. Mostly tears of joy. Once composed, I read the epilogue. And damn it, if I was not in tears again." "As a cat lover, 'kitty' was my favorite part of a mighty fine book!" About the Book Paul and Deena are friends with MS and Parkinson's Disease respectively. They've found a wonderful flat renovated for people with disabilities, only they can't afford it. Enter Albert, a former nurse with cancer, and Bolton, an athletic paraplegic. They too look at the flat, and love it. But can't afford it. The solution? The four of them move in together. And life happens. Paul, who has retired from motivational speaking, is motivated into accepting another talk, while working on his painting. Bolton, a former sprinter, tries out for the wheelchair racing team and wheelchair basketball team, while setting up his web design business. Deena, a former PhD student, needs help with her renovation business. Instead of helping to heal people, which he did as a nurse, Albert begins to help Deena heal houses. Our main characters also have to sort out issues with former partners, some of whom have broken up on good terms and some on terms that were not so good, all while dealing with their maladies, and helping each other deal with their chronic issues. In short, illness does not make life, especially if you are determined to live as full a life as possible, despite your malady. And that is just what Paul, Deena, Albert and Bolton try their damnedest to do. About the author Paul Lima has had MS for over 20 years, moving from relapsing remitting MS to secondary progressive MS about five years ago. He has been a professional writer all his healthy and all his sick life. It's been more difficult when ill, but it has just meant he has had to work harder at it.
Author: Julie Jacobsen Deck Publisher: iUniverse ISBN: 149179187X Category : Fiction Languages : en Pages : 193
Book Description
A young woman with chronic illness takes matters into her own hands in this debut novel the story does an excellent job of portraying the relentless difficulties of suffering from hard-to-treat, chronic illnesses a sometimes-exhausting but realistic portrait of life under physical duress. Kirkus Reviews While writing in her journal, Adrea Drea Ragnason visualizes a creative way to deal with the increasing complications in her life even though it wont provide immediate results. In the meantime, she lives her life as simply as possible. Drea enjoys spending time with her aunt and young niece, but doesnt enjoy the time spent at doctors offices; yet she does it so she will no longer be asked the question, Youre still sick? With her aunts help, Drea finds an apartment that includes an empathetic landlord. The new space gives her much needed peace and quiet, plus the freedom to easily monitor her hopeful plan of making her doctors walk a mile in her shoes. Helene Gundersen is a psychologist with a new practice. The daughter of a doctor, she isnt surprised that many of her clients are doctors, yet she is startled they share similar symptoms. Her comments and suggestions nudge them toward research. Meanwhile, she attempts to remain detached as she helps a chronically ill client; however, Helene is hopeful when learning about POTS, a condition caused by a malfunctioning autonomic nervous system, and one of several conditions listed under the broad term of dysautonomia.
Author: Porochista Khakpour Publisher: HarperCollins ISBN: 0062428721 Category : Biography & Autobiography Languages : en Pages : 230
Book Description
A Best Book of the Year: Real Simple, Entropy, Mental Floss, Bitch Media, The Paris Review, and LitHub. Time Magazine's Best Memoirs of 2018 • Boston Globe's 25 Books We Can't Wait to Read in 2018 • Buzzfeed's 33 Most Exciting New Books • GQ Best Non Fiction Book of 2018 • Bustle’s 28 Most Anticipated Nonfiction Books of 2018 list • Nylon’s 50 Books We Can’t Wait to Read in 2018 • Electric Literature’s 46 Books to Read By Women of Color in 2018 “Porochista Khakpour’s powerful memoir, Sick, reads like a mystery and a reckoning with a love song at its core. Humane, searching, and unapologetic, Sick is about the thin lines and vast distances between illness and wellness, healing and suffering, the body and the self. Khakpour takes us all the way in on her struggle toward health with an intelligence and intimacy that moved, informed, and astonished me.” — Cheryl Strayed, New York Times bestselling author of Wild A powerful, beautifully rendered memoir of chronic illness, misdiagnosis, addiction, and the myth of full recovery. For as long as author Porochista Khakpour can remember, she has been sick. For most of that time, she didn't know why. Several drug addictions, some major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's grueling, emotional journey—as a woman, an Iranian-American, a writer, and a lifelong sufferer of undiagnosed health problems—in which she examines her subsequent struggles with mental illness and her addiction to doctor prescribed benzodiazepines, that both aided and eroded her ever-deteriorating physical health. Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, Santa Fe, and a college town in Germany—as she meditates on the physiological and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. A story of survival, pain, and transformation, Sick candidly examines the colossal impact of illness on one woman's life by not just highlighting the failures of a broken medical system but by also boldly challenging our concept of illness narratives.
Author: Paul J. Donoghue Publisher: W. W. Norton & Company ISBN: 0393342832 Category : Health & Fitness Languages : en Pages : 310
Book Description
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others. Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time. For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.
Author: Laurie Edwards Publisher: Bloomsbury Publishing USA ISBN: 1620406284 Category : Health & Fitness Languages : en Pages : 257
Book Description
Draws on scientific research and patient narratives to explore the role of social media in medical advocacy, arguing that society must change attitudes about the link between health and lifestyle and provide appropriate and compassionate treatments.
Author: Allison Alexander Publisher: Phoenix Quill Press ISBN: 9781777087845 Category : Languages : en Pages : 252
Book Description
Superheroes aren't sick. They certainly don't have chronic pain, sexual dysfunction, or diarrhea. After all, spandex suits and sudden bowel movements don't mix. Do they? With raw sincerity and tongue-in-cheek humour, Alexander holds nothing back while discussing how to navigate doctors, dating, sex, friendships, faith, and embarrassing symptoms. Part memoir, part research, part pop culture analysis, Super Sick offers a friendly hand to anyone with chronic illness, a reminder that they aren't alone and have much to offer the world. With a new foreword, updated information, and bonus materials, this second edition is a must-read for anyone who has-or knows someone who has-a chronic illness.
Author: Joy H. Selak Publisher: ISBN: 9781617021381 Category : Chronic diseases Languages : en Pages : 170
Book Description
"You Don't Look Sick" chronicles a patient's true-life stories and her physicians compassionate commentary as they take a journey through the four stages of chronic illness--Getting Sick, Being Sick, Grief and Acceptance and Living Well. The authors address such practical aspects as hiring a doctor, managing chronic pain, coping with grief and loss of function, winning battles with health and disability insurers, countering the social bias against the chronically ill, and recognizing the limitations of chronic illness care and charting a path for change and more. This warmhearted resource helps you focus on building a meaningful life that contains an illness as opposed to a life of frustration and fear. The authors have thoroughly revised and updated the second edition based upon feedback from the audience for the first edition. They have added a new section on Grief and Acceptance, updated all the chapters making them more specific, address the passage of the Affordable Health Care Act and Dr. Overman has added practical travel tips that bring organization and focus to each phase of the journey. Designed for patients at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.
Author: Tessa Miller Publisher: Henry Holt and Company ISBN: 1250751462 Category : Biography & Autobiography Languages : en Pages : 240
Book Description
"Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.
Author: Joy Selak Publisher: CRC Press ISBN: 9780789024497 Category : Health & Fitness Languages : en Pages : 145
Book Description
“Coming to terms with this reality was a lot like accepting the death of a loved one.” You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness chronicles a patient’s true-life accounts and her physician’s compassionate commentary as they take a journey through the three stages of chronic illness—Getting Sick, Being Sick, and Living Well. This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones. From the book: “I’ve learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.” You Don’t LOOK Sick! addresses practical aspects of chronic illness, such as: hiring a doctor managing chronic pain coping with grief and the loss of function winning battles with health and disability insurers countering the social bias against the chronically ill recognizing the limitations of chronics illness care and charting a path for change In You Don’t LOOK Sick!: Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey. You will also find suggested reading materials for learning to live well, medical Internet resources, illness-specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic. The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited. From the authors: “I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.” —Joy H. Selak “My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity. My job is more than giving answers; I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications.” —Dr. Steven Overman The authors are experienced public speakers. If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at [email protected].
Author: S. Kay Toombs Publisher: Indiana University Press ISBN: 9780253113559 Category : Medical Languages : en Pages : 250
Book Description
"…excellent…" -- Choices - Choice on Dying Newsletter "Toombs, Barnard, and Carson have organized and edited a valuable series of papers that provide a rare perspective on the impact of chronic illness. Beginning with the person who is experiencing the chronic condition, they are able to weave an important blend of personal, social, and policy themes." -- Choice "This volume of collected essays is a solid contribution to the medical humanities literature on chronic illness... the contributors have produced a cohesive, systematic, and sensitive examination of issues in chronic illness and disability." -- Medical Humanities Review "Although it may seem to be intended largely for health care providers, this thought-provoking volume has much that will interest a wider lay audience." -- Medical and Health Annual An often moving exploration of the human, moral, and policy aspects of a health issue that affects each of us. Through first-person accounts and the perspectives of literature, medicine, philosophy, and religion, this book explores what it means to live with chronic illness and the implications of this experience for social policy, health care, bioethics, and the professions.
Author: Paul Lima
Author: Paul Lima
Author: Julie Jacobsen Deck
Author: Porochista Khakpour
Author: Paul J. Donoghue
Author: Laurie Edwards
Author: Allison Alexander
Author: Joy H. Selak
Author: Tessa Miller
Author: Joy Selak
Author: S. Kay Toombs