Behavior Management for Persons with Prader-Willi Syndrome PDF Download

Author:
Publisher:
ISBN:
Category :
Languages : en
Pages : 79

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Author: Prader-Willi Syndrome Association
Publisher:
ISBN:
Category : Prader-Willi syndrome
Languages : en
Pages : 79

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Author: Louise R. Greenswag
Publisher: Springer Science & Business Media
ISBN: 1468403168
Category : Medical
Languages : en
Pages : 293

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Book Description
Management of Prader-Willi Syndrome is the first book to provide a comprehensive source of knowledge about Prader-Willi Syndrome and to offer common-sense guidelines for management. It consists of contributions from professionals in many health and allied disciplines who have worked with this special population. The book focuses on clinical, social, familial, and community issues related to care. It is directed to health, education, and other specialists in academic, clinical, and community settings. Management of Prader-Willi Syndrome describes strategies for management which are appropriate to an interdisciplinary approach.

Author: Merlin Butler
Publisher: Springer Science & Business Media
ISBN: 0387335366
Category : Medical
Languages : en
Pages : 569

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Book Description
Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings. This manual is endorsed by The Prader-Willi Syndrome Association, which is recognized world-wide.

Author: Mary L. Caldwell
Publisher: Springer Science & Business Media
ISBN: 1461238544
Category : Medical
Languages : en
Pages : 117

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Book Description
Prader-Willi Syndrome: Selected Research and Management Issues investigates the most recent developments in the diagnosis and management of individuals with the syndrome. This volume is not intended as a comprehensive review, but as a source of new, original research on this little understood syndrome. Alternative methods of identification and treatment are considered, and issues related to the nonmedical characteristics are explored.

Author: Suzanne B. Cassidy
Publisher: John Wiley & Sons
ISBN: 1118210670
Category : Medical
Languages : en
Pages : 1678

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Book Description
The bestselling guide to the medical management of common genetic syndromes —now fully revised and expanded A review in the American Journal of Medical Genetics heralded the first edition of Management of Genetic Syndromes as an "unparalleled collection of knowledge." Since publication of the first edition, improvements in the molecular diagnostic testing of genetic conditions have greatly facilitated the identification of affected individuals. This thorough revision of the critically acclaimed bestseller offers original insights into the medical management of sixty common genetic syndromes seen in children and adults, and incorporates new research findings and the latest advances in diagnosis and treatment of these disorders. Expanded to cover five new syndromes, this comprehensive new edition also features updates of chapters from the previous editions. Each chapter is written by an expert with extensive direct professional experience with that disorder and incorporates thoroughly updated material on new genetic findings, consensus diagnostic criteria, and management strategies. Edited by two of the field's most highly esteemed experts, this landmark volume provides: A precise reference of the physical manifestations of common genetic syndromes, clearly written for professionals and families Extensive updates, particularly in sections on diagnostic criteria and diagnostic testing, pathogenesis, and management A tried-and-tested, user-friendly format, with each chapter including information on incidence, etiology and pathogenesis, diagnostic criteria and testing, and differential diagnosis Up-to-date and well-written summaries of the manifestations followed by comprehensive management guidelines, with specific advice on evaluation and treatment for each system affected, including references to original studies and reviews A list of family support organizations and resources for professionals and families Management of Genetic Syndromes, Third Edition is a premier source to guide family physicians, pediatricians, internists, medical geneticists, and genetic counselors in the clinical evaluation and treatment of syndromes. It is also the reference of choice for ancillary health professionals, educators, and families of affected individuals looking to understand appropriate guidelines for the management of these disorders. From a review of the first edition: "An unparalleled collection of knowledge . . . unique, offering a gold mine of information." —American Journal of Medical Genetics

Author: Deepan Singh
Publisher: Cambridge University Press
ISBN: 1108897797
Category : Medical
Languages : en
Pages : 201

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Book Description
The behavioral issues experienced by individuals with Prader-Willi Syndrome (PWS) can be both surprising and overwhelming to clinicians and caregivers. Despite the distress and dysfunction posed by them, there are very few resources available to address these neuropsychiatric problems. This invaluable guidebook helps to identify and address the spectrum of behavioral issues faced by individuals with PWS. Written by a psychiatrist with unique expertise in the management of patients with this condition, this easy-to-read book explores practical details that will aid any clinician or caregiver. Chapters offer vivid case examples and clear guidance on both the behavioral and pharmacological management of issues such as anxiety, skin-picking, ADHD, disruptive behavior (including non-suicidal self-harm), mood disorders (including depression and bipolar disorder), and psychosis. Neuro-behavioral Manifestations of Prader-Willi Syndrome serves as an essential and practical companion for any caregiver or healthcare professional providing care to people with PWS.

Author: Merlin G. Butler
Publisher: Springer Nature
ISBN: 3030981711
Category : Medical
Languages : en
Pages : 539

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Book Description
Now in a fully revised and updated fourth edition, this book remains the most comprehensive resource on Prader-Willi syndrome (PWS) available on the market. There have been significant changes in the diagnosis, clinical care and treatment of PWS since the previous edition was published in 2006, and more thorough information on understanding the cause and diagnosis of the condition, along with clinical presentation and findings with natural history data now available. The book is divided into three thematic sections. Part One discusses the genetics, diagnosis, research and overview of PWS, including current laboratory testing. The medical physiology and treatment of PWS comprise Part Two, covering the GI system, obesity as well as the use of growth hormone. Part Three, the largest section, presents a wide-ranging, multidisciplinary management approach to PWS, attending to the many manifestations of the condition. Topics here include neurodevelopmental aspects, speech and language disorders, motor issues, psychological and behavioral management, educational and transitional considerations, vocational training and residential care, and advocacy for both school discipline and sexuality. Syndrome-specific growth charts, benefits eligibility information and additional resources are included in helpful appendices. Timely and well-crafted, this latest edition of Management of Prader-Willi Syndrome remains the gold standard for clinicians and health care providers working with patients diagnosed with this rare obesity-related genetic disorder.

Author: Shelley Kinash
Publisher: IAP
ISBN: 1607526336
Category : Medical
Languages : en
Pages : 130

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Book Description
In North America, 64% of adults and 25% of children are overweight or obese. We are bombarded by food; it is everywhere we turn. People with Prader-Willi syndrome (PWS) are an untapped expertise in combatting this problem. People with this genetic disorder gain approximately 20-30% more weight on 50% less calories, and are driven to eat. The traditional approach to this syndrome was to lock up all food, and control, restrict, and supervise all activity. While people with PWS were kept alive, they had no quality of life. Today, there are leaders within the PWS community who are taking cutting-edge approaches to combating both health and quality of life issues. Their secrets are revealed within this book. It is a must-read for anyone seeking: a new approach to societal health and wellness; an answer to weight maintenance for themselves or someone they love, and/or; a means of supporting persons with disabling conditions such as PWS and beyond to achieve meaningful, healthy lives. “In 1999 the World Bank asked 60,000 people living on less than a dollar a day to identify the biggest hurdle to their advancement. It wasn't food, shelter or health care. It was access to a voice.” www.videovolunteers.org In 2007 Albertans with Prader-Willi syndrome and their families were interviewed and they made the same plea. Prader-Willi syndrome is a genetic condition with a complex presentation of characteristics including a body chemistry that is a poor compliment to a pronounced food desire. However, the people interviewed did not ask for a new diet, or rehabilitation strategies. They asked that people listen. By empowering persons with Prader-Willi syndrome and their families to tell their stories, A Recipe For Success gives a voice to those who have been unheard, and inspires the people who fi ght for them. This book is a must read for anyone seeking; a cutting-edge approach to societal health and wellness; an answer to weight maintenance for themselves or someone they love, and/or; a means of supporting persons with disabling conditions such as Prader-Willi syndrome and beyond to achieve meaningful, healthy lives. This book explores health and wellness, with an emphasis on food drive, as well as disability culture, through the voices of self-advocates with PWS and families. It should be read by: • Parents of all children (disabled and not) who want to instill positive, healthy food practices. • Adults who have attempted diets and still not lost the weight. Adults who are seeking an alternate approach. • Doctors and other medical professionals who seek continuing education. • Teachers who are negotiating the balance between organic and teachable conditions. • Self-advocates with disabling conditions who want to explore their own personal voice through the voices of others experiencing stigma and oppression. • Family members of persons with disabling conditions who want to affirm their experiences and interpretations and learn how to navigate the systems. • Government administrators who want to inform their funding allocation. • Extended family, friends, and the public-at-large who want to understand disability and reexamine their attitudes. • Human service workers who want to know how best to support persons with disabling conditions and how to listen to families. • Anyone who wants to know about Prader-Willi Syndrome.

Author: Gregory O'Brien
Publisher: Cambridge University Press
ISBN: 9781898683063
Category : Medical
Languages : en
Pages : 236

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Book Description
A timely distillation of current thinking on the presentation of behavioural disorders and their origins.