Barriers to Diagnosis and Treatment Services Faced by Latino Parents of Children with Autism PDF Download
Are you looking for read ebook online? Search for your book and save it on your Kindle device, PC, phones or tablets. Download Barriers to Diagnosis and Treatment Services Faced by Latino Parents of Children with Autism PDF full book. Access full book title Barriers to Diagnosis and Treatment Services Faced by Latino Parents of Children with Autism by . Download full books in PDF and EPUB format.
Author: Publisher: ISBN: Category : Autistic children Languages : en Pages : 248
Book Description
Autism is a pervasive developmental disorder that appears within the first three years of childhood and involves major impairments in all aspects of development including communication, social relationships, behavior, and sensory perception (Rutter, 1978). Parents who raise autistic children face unique and often painful challenges to the parenting role and family life (Dominique, Cutler, & Tarnaghan, 2000). Although epidemiological studies have demonstrated that autism can be found all over the world, research has almost primarily focused on Western and European primarily Caucasian populations which ignores minority groups (Fombonne, 2003; Seo-Gyeong, 1992). Research has demonstrated that immigrant Latino populations living in the United States experience numerous barriers to the acquisition of health care (Flores, Abreu, Olivar, & Kastner, 1998). The purpose of this study was to gain self-reported information regarding the current needs of Latino parents who have children with autism and identify specific barriers they report having experienced to the acquisition of diagnostic and treatment services for their children.Thirty Latina mothers and one Latino father of a child with autism were recruited from parent support groups and completed telephone interviews. The telephone interviews consisted of a family needs survey (Bailey & Simmeonsson, 1988), a demographic questionnaire, and a series of questions in their primary language. Results indicated that the participants in this study reported facing informational, language, and financial barriers to obtaining diagnostic and treatment services for their children. Parents reported that their children were receiving an average of almost 1 hour 30 minutes of therapy per week. Considering that most intervention approaches recommend as much as 30 hours per week of services, this study provides evidence that this population is underserved. The Latino parents in this study reported their most pressing needs were information about autism. The parents also reported numerous concerns such as current problem behaviors, lack of speech, and the lack of training and services in the professional community for children with autism. Parents also reported worries about the future of their child. Clinical and research implications for these findings are explored.
Author: Publisher: ISBN: Category : Autistic children Languages : en Pages : 248
Book Description
Autism is a pervasive developmental disorder that appears within the first three years of childhood and involves major impairments in all aspects of development including communication, social relationships, behavior, and sensory perception (Rutter, 1978). Parents who raise autistic children face unique and often painful challenges to the parenting role and family life (Dominique, Cutler, & Tarnaghan, 2000). Although epidemiological studies have demonstrated that autism can be found all over the world, research has almost primarily focused on Western and European primarily Caucasian populations which ignores minority groups (Fombonne, 2003; Seo-Gyeong, 1992). Research has demonstrated that immigrant Latino populations living in the United States experience numerous barriers to the acquisition of health care (Flores, Abreu, Olivar, & Kastner, 1998). The purpose of this study was to gain self-reported information regarding the current needs of Latino parents who have children with autism and identify specific barriers they report having experienced to the acquisition of diagnostic and treatment services for their children.Thirty Latina mothers and one Latino father of a child with autism were recruited from parent support groups and completed telephone interviews. The telephone interviews consisted of a family needs survey (Bailey & Simmeonsson, 1988), a demographic questionnaire, and a series of questions in their primary language. Results indicated that the participants in this study reported facing informational, language, and financial barriers to obtaining diagnostic and treatment services for their children. Parents reported that their children were receiving an average of almost 1 hour 30 minutes of therapy per week. Considering that most intervention approaches recommend as much as 30 hours per week of services, this study provides evidence that this population is underserved. The Latino parents in this study reported their most pressing needs were information about autism. The parents also reported numerous concerns such as current problem behaviors, lack of speech, and the lack of training and services in the professional community for children with autism. Parents also reported worries about the future of their child. Clinical and research implications for these findings are explored.
Author: Verenice Orozco Corona Publisher: ISBN: 9780355529456 Category : Autism spectrum disorders in children Languages : en Pages : 60
Book Description
Abstract: This qualitative phenomenological interview study investigated the barriers faced by Latino Spanish speakers with limited English proficiency (LEP) when seeking to obtain a diagnosis and special education resources for their children. This minority population faces several barriers that may be linked to a later diagnosis of autism spectrum disorder (ASD) among Latino children; however, limited research has focused on the identification of these barriers and factors that contribute to a later ASD diagnosis in Latino families. Five Latina Spanish-speaking mothers with LEP were included in this study. Two 1-hour interviews were conducted per participant. The results showed barriers associated with the health care system, culture beliefs, cultural differences in the view of disability, limited health literacy, LEP, lack of ASD knowledge, and lack of competent interpreters.
Author: Fred R. Volkmar Publisher: Springer Science & Business ISBN: 1493905066 Category : Psychology Languages : en Pages : 346
Book Description
The research on children with autism spectrum disorders (ASD) is extensive and growing. Although these conditions are recognized as affecting the entire lifespan, the literature on ASD after childhood is limited and has not been brought together in a single volume in over a decade. Adolescents and Adults with Autism Spectrum Disorders fills this knowledge gap by focusing on needs and difficulties unique to these stages of development. Expert contributors offer cogent reviews of complex issues, from education to employment, leisure activities to illegal behaviors, mental health issues to medical health concerns. The latest findings in key areas, such as psychosocial and residential treatments, social skills programs, epidemiology, the impact of ASD on families, are examined in detail. Throughout the volume, coverage focuses on areas requiring improved models of assessment, updated data, new interventions and increased support services. Featured topics include: Transition from high school to adulthood for adolescents and young adults with ASD. Innovative programming to support college students with ASD. Romantic relationships, sexuality and ASD. Treatment of mental health comorbidities. Assessment and treatment planning in adults with ASD. The range of outcomes and challenges in middle and later life. Adolescents and Adults with Autism Spectrum Disorders is a must-have reference for a wide range of clinicians and practitioners – as well as researchers and graduate students – in clinical child, school and developmental psychology; child and adolescent psychiatry; social work; rehabilitation medicine/therapy; education and general practice/family medicine. It will also serve as an important resource for parents and caregivers with its focus on translating the current state of knowledge relevant to understanding adolescents and adults with ASD into practical and relevant recommendations on how best to support them.
Author: Yolanda C. Padilla Publisher: Routledge ISBN: 1000709817 Category : Medical Languages : en Pages : 166
Book Description
With research showing that clients from diverse racial and ethnic groups disproportionately experience barriers in their interactions with social services and that providers recognize the need to be better prepared to work with these groups, this book invites us to rethink current approaches to social work practice with multicultural communities. We begin with a synthesis of the current evidence on the provision of care to multicultural communities that provides an in-depth look at both client and provider experiences. The following chapters offer tangible, research-based approaches to engaging with multicultural clients and reveal often unrecognized problems with current models of social work practice. A unique compilation of rigorous qualitative, experimental, and community-based studies demonstrate the effectiveness of culturally grounded interventions and identify the specific factors associated with positive outcomes. Areas covered include disability, marriage and couple relationship problems, domestic violence, and mental illness within Latinx, African American, First Nations, and South Asian communities. As the authors in this book show, the stories of multicultural communities are narratives of unprecedented resourcefulness and reinvention. Yet, social work underutilizes rich family and community cultural resources. By not facilitating their involvement, social service systems compromise these vital resources which social services cannot replace. In arguing that we need to expand professional boundaries to encompass indigenous practices, family and extended kin, and therapeutic relationships that make sense to different cultural groups, this book will be of interest to those studying the ways in which social work practice can be improved to better suit the needs of a racially and ethnically diverse population. This book was originally published as a special issue of the Journal of Ethnic & Cultural Diversity in Social Work.
Author: Jennifer Rios Publisher: ISBN: 9781321682625 Category : Fund raising Languages : en Pages : 60
Book Description
Abstract: Latino parents of youth with autism spectrum disorder (ASD) experience numerous challenges when seeking services for their children including lack of support from medical providers, lack of knowledge on autism services, and cultural barriers that impede them from appropriately advocating for them. The purpose of this project was to write a grant proposal to develop a support program for low-income Latino parents of youth with ASD in Inglewood, California. The goal of the program is to increase awareness of ASD and improve access to services through various educational workshops for these parents. Subsequently, Latino parents of youth with ASD will be equipped with the skills needed to be a more effective advocate for their adolescents. The actual submission of this grant program was not required for the completion of the project.
Author: National Academies of Sciences, Engineering, and Medicine Publisher: National Academies Press ISBN: 0309388570 Category : Social Science Languages : en Pages : 525
Book Description
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Author: Mayra Gallo Publisher: ISBN: 9781124609850 Category : Hispanic American parents Languages : en Pages : 106
Book Description
Abstract: The purpose of this study was to explore Latino family experiences raising children with Autism Spectrum Disorder (ASD), including their knowledge of autism, their extended family members views of autism, their social support and relationships with physicians to identify the limitations and barriers of Latino parents. Thirteen Latino parents raising a child with autism were interviewed from a specific area of Los Angeles. The results found that Latino parents continue to struggle with physicians to obtain the appropriate treatment for their children with autism. Latino communities continue to lack education on mental health issues jeopardizing how parents cope and react to their children's distinct behavior and coping. Due to the sample being small and from a specific area of Los Angeles, more research needs to be conducted on different socio-economic areas of Los Angeles, as well as implementing new policies to better serve the Latino community.
Author: Brian M. Conners Publisher: Routledge ISBN: 0429558902 Category : Psychology Languages : en Pages : 275
Book Description
This textbook provides a theoretical and clinical framework for addressing multiculturalism and diversity in the field of applied behavior analysis (ABA). Featuring contributions from national experts, practicing clinicians, researchers, and academics that balance both a scholarly yet practical perspective, this book guides the reader through theoretical foundations to clinical applications to help behavior analysts understand the impact of diversity in the ABA service delivery model. Chapters contain learning objectives, literature reviews, practice considerations, case studies, and discussion questions and are all aligned with the current BACB® Professional and Ethical Compliance Code and BACB® Task List. Accompanying the book are online test materials for students and instructors to assess the knowledge they have learned about various diversity topics. This book is a must have for graduate students in ABA programs, faculty to incorporate diversity topics into graduate preparation, supervisors looking to enhance a supervisee’s understanding of working with diverse clients, and practicing behavior analysts in the field wanting to increase their awareness of working with diverse populations.
Author: 
Author: 
Author: Verenice Orozco Corona
Author: Fred R. Volkmar
Author: Yolanda C. Padilla
Author: Jennifer Rios
Author: National Academies of Sciences, Engineering, and Medicine
Author: Maria Luisa Scattoni
Author: Mayra Gallo
Author: Feiyong Jia
Author: Brian M. Conners