A Parent's Guide to Cystic Fibrosis PDF Download

Author: Burton L. Shapiro
Publisher: U of Minnesota Press
ISBN: 9781452902449
Category : Children
Languages : en
Pages : 156

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Author: David M. Orenstein
Publisher: Lippincott Williams & Wilkins
ISBN: 1451154380
Category : Medical
Languages : en
Pages : 788

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Book Description
This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”

Author: Rachael Lippincott
Publisher: Simon & Schuster Books for Young Readers
ISBN: 1534451560
Category : Young Adult Fiction
Languages : en
Pages : 288

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Also a major motion picture starring Cole Sprouse and Haley Lu Richardson! Goodreads Choice Winner, Best Young Adult Fiction of 2019 In this #1 New York Times bestselling novel that’s perfect for fans of John Green’s The Fault in Our Stars, two teens fall in love with just one minor complication—they can’t get within a few feet of each other without risking their lives. Can you love someone you can never touch? Stella Grant likes to be in control—even though her totally out of control lungs have sent her in and out of the hospital most of her life. At this point, what Stella needs to control most is keeping herself away from anyone or anything that might pass along an infection and jeopardize the possibility of a lung transplant. Six feet apart. No exceptions. The only thing Will Newman wants to be in control of is getting out of this hospital. He couldn’t care less about his treatments, or a fancy new clinical drug trial. Soon, he’ll turn eighteen and then he’ll be able to unplug all these machines and actually go see the world, not just its hospitals. Will’s exactly what Stella needs to stay away from. If he so much as breathes on Stella, she could lose her spot on the transplant list. Either one of them could die. The only way to stay alive is to stay apart. But suddenly six feet doesn’t feel like safety. It feels like punishment. What if they could steal back just a little bit of the space their broken lungs have stolen from them? Would five feet apart really be so dangerous if it stops their hearts from breaking too?

Author: Melanie Ann Apel
Publisher: Scarecrow Press
ISBN: 9780810848214
Category : Health & Fitness
Languages : en
Pages : 288

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Describes the challenges of living with cystic fibrosis, as well as a description of the illness, and an explanation of procedures for diagnosis and therapy.

Author: Karen Hopkin
Publisher: Univ. Press of Mississippi
ISBN: 1604739525
Category : Health & Fitness
Languages : en
Pages : 144

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Book Description
Cystic Fibrosis (CF) is the most common genetic disorder in the white population. Since the discovery of the CF gene in 1989, scientists have learned a great deal about the biology of this disease, which strikes one child in every 3.300 births. With the gene pinpointed, scientists are now working on ways to replace it and are developing better tests for early diagnosis. Understanding Cystic Fibrosis charts the progress that has been made in identifying the mutations that cause CF and in understanding how these genetic errors cause a disease whose symptoms can range from mild respiratory distress to life-threatening lung infections. This book features a review of current available treatments; research that can lead to therapies and perhaps a cure; advice and resources for families and patients; how to work best with health-care providers and HMOs; the history and diagnosis of CF; who gets CF and why; how CF affects the lungs, intestines, and other organs; and a list of organizations, support groups, and resources.

Author: Charles Hart
Publisher: Simon and Schuster
ISBN: 0671750992
Category : Family & Relationships
Languages : en
Pages : 260

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Given in memory of Pete Palasota by The ARC of Bryan/College Station.

Author: Andrew Bush
Publisher: CRC Press
ISBN: 1444180010
Category : Medical
Languages : en
Pages : 675

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Book Description
Hodson and Geddes' Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This international and authoritative work brings together current knowledge and has become established in previous editions as a leading reference in the field. This fourth edition includes a wealth of new information, figures, useful videos, and a companion eBook. The basic science that underlies the disease and its progression is outlined in detail and put into a clinical context. Diagnostic and clinical aspects are covered in depth, as well as promising advances such as gene therapies and other novel molecular based treatments. Patient monitoring and the importance of multidisciplinary care are also emphasized. This edition: Features accessible sections reflecting the multidisciplinary nature of the cystic fibrosis care team Contains a chapter written by patients and families about their experiences with the disease Includes expanded coverage of clinical areas, including chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues Discusses management both in the hospital and at home Includes a new section on monitoring and discusses the use of databases to improve patient care Covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas Includes chapters devoted to nursing, physiotherapy, psychology, and palliative and spiritual care Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic science aspects of the subject and reflecting the multidisciplinary nature of the cystic fibrosis care team.

Author: Jennifer Trachtenberg
Publisher: Simon and Schuster
ISBN: 1439171890
Category : Family & Relationships
Languages : en
Pages : 338

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What to Do When You Don’t Know What to Do! “ Moms and dads need expert guidelines, especially when it comes to their kids’ health. This book reveals the inside strategies I use myself—I’m a parent, too!— to avoid critical, common blunders where it matters most: in the ER, pediatrics ward, all-night pharmacy, exam room, or any other medical hot spot for kids. These tips could save your child’s life one day. Even tomorrow.” –Dr. Jen Making health care decisions for your child can be overwhelming in this age of instant information. It’s easy to feel like you know next to nothing or way too much. Either way, you may resort to guessing instead of making smart choices. That’s why the nation’s leading health care oversight group, The Joint Commission, joined forces with Dr. Jennifer Trachtenberg on this book: to help you make the right decisions, whether you’re dealing with a checkup or a full-blown crisis. The Smart Parent’s Guide will give you the information you need to manage the pediatric health care system. Dr. Jen understands the questions parents face—as a mom, she’s faced them herself. She walks you through everything: from how to choose the best ER for kids (not adults) to when to give a kid medicine (or not to) to how pediatricians care for their own children (prepare to be surprised). Her goal is your goal: to protect the health of your children. There simply is nothing more important.

Author: Glenn H. Bock
Publisher: U of Minnesota Press
ISBN: 9781452900278
Category : Nephrology
Languages : en
Pages : 206

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Author: Phyllis R. Silverman
Publisher: Oxford University Press, USA
ISBN: 0195328841
Category : Family & Relationships
Languages : en
Pages : 271

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When children lose someone they love, life is never the same. In this sympathetic book, the authors advocate an open, honest approach, suggesting that our instinctive desire to "protect" children from the reality of death may be more harmful than helpful.