A Note to Parents of Children with End-stage Renal Disease PDF Download

Author: Karin Hexberg Brandt
Publisher:
ISBN:
Category : Chronic renal failure in children
Languages : en
Pages : 1

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Author: Arlesha D. Lee
Publisher:
ISBN:
Category : Parent and child
Languages : en
Pages : 138

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Author: Rebecca Joanne Hames
Publisher:
ISBN:
Category :
Languages : en
Pages : 268

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Author: Larry E. Lancaster
Publisher: John Wiley & Sons
ISBN:
Category : Medical
Languages : en
Pages : 378

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Book Description
A patient in the end of renal failure presents a myriad of challenges to the nephrology nurse. As the kidney fail, all body system eventually become involved. Normal body functions are drastically altered in ways that redefine a person ́s quialify life. Hardly an aspect of physical , social, or psychological performance is left untouched by this disease process.

Author: Bradley A. Warady
Publisher: Springer Science & Business Media
ISBN: 9781402018589
Category : Medical
Languages : en
Pages : 684

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The provision of optimal dialysis therapy to children requires a thorough understanding of the multi-disciplinary manner in which the pediatric patient is affected by renal insufficiency. Knowledge of the technical aspects of peritoneal dialysis, hemodialysis and continuous renal replacement therapy must be complemented by attention to issues such as anemia, renal osteodystrophy, hypertension, growth, cognitive development, nutrition, nursing care and the psychosocial adaptation of the child and family to chronic disease. The inaugural edition of Pediatric Dialysis provides a comprehensive review of these and other related topics with a singular emphasis on the unique aspects of their application to children. With authoritative, clinically relevant, well-referenced chapters written by a host of recognized international experts who emphasize key aspects of contemporary management, Pediatric Dialysis has been designed to serve as a primary resource to all clinicians involved in the care of the pediatric dialysis patient.

Author: Marilyn Sawyer Sommers
Publisher: F.A. Davis
ISBN: 0803689985
Category : Medical
Languages : en
Pages : 1233

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Everything you need to know about caring for patients—in one portable "must have" handbook! Put information on more than 240 diseases and disorders at your fingertips. Clear, comprehensive discussions of pathophysiology—with rationales in the test and intervention sections—help you deliver effective care with confidence.

Author: Rachel Fearnley
Publisher: Jessica Kingsley Publishers
ISBN: 0857004751
Category : Psychology
Languages : en
Pages : 196

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Book Description
When a parent is nearing the end of life, children can feel like their world has been turned upside down, and they are often scared and confused about what is happening. Sensitive and clear communication with children is vital to help them understand and cope with their parent's illness. This accessible book demonstrates how to support children through effective and sensitive communication, covering types of communication, language, information sharing, and overcoming common barriers. Developing confidence and skills such as talking, listening, giving children a voice and breaking bad news is also covered. The author outlines the concept of a 'communication continuum' which can be used to assess how much a child knows or understands about their parent's illness and how much they would like to know. The book contains a wealth of practical strategies and ideas, as well as case vignettes, practice tips and reflective exercises. This is an essential resource for anyone working with or supporting a child whose parent is at the end of life, including palliative care workers, nurses, social workers, teachers and counsellors.

Author: United States. Congress. House. Committee on Ways and Means. Subcommittee on Health
Publisher:
ISBN:
Category : Government publications
Languages : en
Pages : 280

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Author:
Publisher:
ISBN:
Category : Chronic renal failure
Languages : en
Pages : 212

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Author: Duane R. Bidwell
Publisher: Beacon Press
ISBN: 0807024708
Category : Family & Relationships
Languages : en
Pages : 194

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Book Description
For those who care for chronically ill children, a new understanding of hope that equips adults to better nurture pediatric hope among sick kids—articulated by the children themselves As anyone with a chronic illness knows, hope can sometimes be hard to come by. For parents and caregivers of children with serious illness, there can be a real struggle to move beyond one's own grief, fear, and suffering to see what hope means for these kids. Duane Bidwell, a scholar, minister, and former hospital chaplain who has struggled with serious illness himself, spent time with 48 chronically ill children in dialysis units and transplant clinics around the United States. Chronically ill kids, he found, don’t adhere to popular or scholarly understandings of hope. They experience hope as a sense of well-being in the present, not a promise of future improvement, an ability to set goals, or the absence of illness and suffering. With this mindset, these kids suggest a new understanding of pediatric hope, saying hope becomes concrete when they (1) realize community, (2) claim power, (3) attend to Spirit, (4) choose trust, and (5) maintain identity. Offering textured portraits of children with end-stage kidney disease, After the Worst Day Ever illustrates in their words how sick children experience, maintain, and turn toward hope even when illness cannot be cured and severely limits quality of life. Their insights reveal how the adults in a sick child's world—parents, chaplains, medical professionals, teachers, and others—can nurture hope. They also shift our understanding of hope from an internal resource located “inside” an individual to a shared, communal experience that becomes a resource for individuals. Rich and moving, Bidwell’s work helps us imagine anew what it means to sustain hope despite inescapable suffering and the limits of chronic illness.