A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type) PDF Download

Author: Isobel Knight
Publisher: Singing Dragon
ISBN: 0857011804
Category : Health & Fitness
Languages : en
Pages : 314

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Book Description
Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.

Author: Isobel Knight
Publisher: Singing Dragon
ISBN: 1848190689
Category : Health & Fitness
Languages : en
Pages : 242

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Book Description
People with Hypermobility Syndrome (HMS), including Ehlers-Danlos type Hypermobility Syndrome, have a larger range of joint movement than is typical, which can cause pain and fatigue despite an outward appearance of good health. This book is the complete guide to living with and managing HMS, and ultimately enjoying a fulfilling life. The book covers everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis and managing its negative effects. The author, who has HMS herself, looks at how the condition affects children and adolescents, before moving on to explore pain management (including the use of physiotherapy, pilates and a selected range of complementary health therapies), pregnancy, physical and psychological aspects of the condition, and how it widely affects dancers and other performance artists. Wider conditions that encompass Hypermobility Syndrome are also touched upon, including Fibromyalgia and IBS. This book will be a must for anybody who suffers, or suspects they might be suffering from, Hypermobility Syndrome. It will also be of interest to their families and friends, and professionals working with the condition.

Author: Brad T. Tinkle
Publisher: Wiley-Blackwell
ISBN: 9780982577158
Category : Ehlers-Danlos syndrome
Languages : en
Pages : 0

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Book Description
As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.

Author: Brad T. Tinkle
Publisher: Left Paw Press, LLC
ISBN: 9780981836003
Category : Medical
Languages : en
Pages : 144

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Book Description
A leading expert in connective tissue disorders presents a primer to encourage dialogue between patients and their health care providers in order to create an individualized treatment plan addressing the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobile Syndrome.

Author: Ellen Kelleher
Publisher: CreateSpace
ISBN: 9781499372731
Category :
Languages : en
Pages : 50

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Book Description
This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life. Faith is the backbone of this book and I hope that through faith you will also learn to cope with EDS.

Author: Pt Kevin Muldowney
Publisher:
ISBN: 9781478758884
Category : Ehlers-Danlos syndrome
Languages : en
Pages : 400

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Book Description
"This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.

Author: Pricilla M Hilda
Publisher: Independently Published
ISBN:
Category : Health & Fitness
Languages : en
Pages : 0

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Book Description
If you or someone you know is living with hypermobility, then "HYPERMOBILITY: Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders" is the essential guide you've been searching for. This concise yet comprehensive book unravels the mysteries surrounding hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD). From demystifying the diagnostic process to exploring management strategies and daily life tips, this book covers it all. Gain valuable insight into symptoms, treatment options, and how to navigate the complexities of living with hypermobility. Whether you're a patient, caregiver, or healthcare provider, "HYPERMOBILITY" is your go-to resource for understanding and managing hypermobile conditions. A trial will convince you!

Author: Dr Rundell Meehan
Publisher: Independently Published
ISBN:
Category : Health & Fitness
Languages : en
Pages : 0

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Book Description
Are you or someone you know struggling with the challenges of Hypermobility Syndrome? Look no further - "Breaking the Crisis on Hypermobility Syndrome" is your comprehensive guide to understanding, managing, and thriving with this condition. In this groundbreaking book, we dive deep into the intricacies of Hypermobility Syndrome, from its historical roots to its clinical manifestations and impact on daily life. Through meticulously researched chapters, we explore the basics of joint hypermobility, clinical manifestations, diagnosing criteria, and the crucial role of connective tissue in this syndrome. But "Breaking the Crisis on Hypermobility Syndrome" goes beyond mere understanding - it offers practical strategies for managing this condition effectively. From lifestyle modifications and physical therapy to holistic approaches and mental health considerations, this book equips you with the tools you need to take control of your health and well-being. What sets this book apart is its focus on empowerment and advocacy. Through personal stories, insights, and a call to action for societal inclusivity, "Breaking the Crisis on Hypermobility Syndrome" not only educates but also inspires change and support for those affected by this condition. Don't let Hypermobility Syndrome dictate your life - take charge with the knowledge and strategies found in "Breaking the Crisis on Hypermobility Syndrome." Your journey to empowerment starts now.

Author: BRAD T. TINKLE
Publisher:
ISBN: 9781943356720
Category :
Languages : en
Pages : 260

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Book Description
Please note: This is the same book with the same information that was in the original release of the "Joint Hypermobility Handbook." This version has an increased size so as to allow for larger margins - convenient for notetaking while ingesting the information! Book content description: As a follow-up to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the wealth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice. Brad T. Tinkle, M.D., Ph.D., is a clinical geneticist at Peyton Manning Children's Hospital. He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and skeletal dysplasias among the many.

Author: J.W.G. Jacobs
Publisher: IOS Press
ISBN: 1614998787
Category : Medical
Languages : en
Pages : 370

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Book Description
Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.